Global Action Network For Sickle Cell & Other Inherited Blood Disorders Inc

Nonprofit profile at a glance

EIN
922380477
IRS 990 coverage
2022–2025
Forms available
Form 990 2025
Location
Dover, DE, USA
Phone
4169516981
Rating
72
Verdict
SUPPORTED
Rating confidence
Moderate
Sector
Heart and Circulatory System Diseases, Disorders

Reported finances

Revenue
$250,000
Expenses
$260,894
Assets
$138,004
Liabilities
$17,050

Source: IRS Form 990. Selected filing: tax year 2025. Amounts in USD.

Leadership & pay

8 people listed

Executive titles in this filing

  • Iyabode Olanrewaju Tunji-Ajayi (CEO)

People named in this filing

  • Iyabode Olanrewaju Tunji-Ajayi (CEO)
  • Sandra Newton (Member)
  • Donnell Edward Ivy (Member)

Selected names, not a complete roster or a statement of current roles. Open leadership details for the complete filed list.

Source: IRS Form 990. Selected filing: tax year 2025. Names and roles reflect this filing, not necessarily current officeholders.

Overview

Mission

Through data-driven advocacy, collaboration, and capacity building, we empower healthcare providers and patient organizations to advance disease-specific and cross-disease initiatives, improving outcomes for people living with sickle cell & other inherited blood disorders, regardless of where they are in the world1. GANSID's programs include:-Education and capacity building program: -Educating and building capacity of clinicians and patient organizations serving people affected by inherited blood disorders by creating online modules for educating patient organizations to become seasoned leaders and advocates, mentoring opportunities for clinicians and delivering workshops-Developing booklets and other resources for patient organizations-Mentorship and training for clinicians-Annual Congress 2. Research: Currently, working on projects relating to clinical trials site standardization as well as on sickle cell disease registry initiative. 3. Advocacy: -Supporting

What it reported doing in 2025

Program #1: Healthcare providers Capacity/Mentorship Program

Operating model

Revenue model
Donor-supported. 100% of the money available for current operations came from contributions and gifts.
Distribution model
Direct operator. The filing allocates 100% of reported program-service expenses outside its grant, affiliate-payment, and member-benefit lines. This expense classification does not rule out separately announced grant awards.

The verdict

SUPPORTED - A large share of available resources goes toward mission work and the filed numbers largely add up. Some filing-based governance responses are negative or unanswered and expenses are high relative to revenue.

Rating breakdown

  • Financial Efficiency: 89
  • Transparency & Controls: 92
  • Accountability: 12
  • Sustainability: 30
  • Growth: 100

Detailed rating inputs

Financial Efficiency

  • Mission deployment rate: 100%; rating input score 100
  • Program expense ratio: 100%; rating input score 100
  • Fundraising efficiency: Limited

Transparency & Controls

  • Consistency checks: 100%; rating input score 100; 64th percentile among comparable filings
  • Pay-setting controls: Limited
  • Foreign activity oversight: Limited
  • Grant itemization coverage: Limited
  • Major donor itemization: Yes; rating input score 100
  • Related-party transparency: Limited

Accountability

  • Independent voting board: Limited
  • Governance controls: 2 of 7 controls in place; rating input score 29
    • Conflict-of-interest policy: Fail
    • Whistleblower policy: Fail
    • Document-retention policy: Fail
    • CEO compensation review process: NotApplicable
    • Other executive compensation review process: NotApplicable
    • Form 990 shared with the board: Pass
    • Board meeting minutes documented: Pass
    • Audit committee oversight: Missing
    • Independent financial-statement audit: Fail

Sustainability

  • Operating margin: -4.4%; rating input score 26; 26th percentile among comparable filings
  • Total-asset coverage ratio: 0.53; rating input score 26; 26th percentile among comparable filings
  • Liabilities to assets ratio: 0.12; rating input score 20; 20th percentile among comparable filings
  • Officer compensation ratio: 0%; rating input score 67; 67th percentile among comparable filings

Growth

  • Program expense growth: 89.3% per year; rating input score 100; 98th percentile among comparable filings
  • Revenue growth: 62.2% per year; rating input score 100; 98th percentile among comparable filings
  • Asset growth: 51.9% per year; rating input score 100; 96th percentile among comparable filings

Details

  • Where the money goes: 100% of revenue deployed · 100% of spending went to programs
  • Governance: 2 of 7 filing controls reported
  • Programs: 1 filed program accomplishment · $261K in reported program spending
  • Leadership: top reported pay $0 · 8 people listed
  • Consistency: 15 of 15 current checks pass
  • Schedules: 3 filed schedules · includes major donors
  • Filing history: 4 filing years from 2022 to 2025
  • Contacts: How to reach this organization
  • Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
  • People: Everyone the filings name, and which of them the filings identify by more than a name.

Key Signals

Signals prioritize questions for review. They are not findings of misconduct.

  • High — Accountability: Governance controls: 4 of 6 not reported.
  • High — Sustainability: Operating margin scored 26/100.
  • High — Sustainability: Total-asset coverage ratio scored 26/100.
  • High — Sustainability: Liabilities to assets ratio scored 20/100.