Gbscidp Foundation International Inc

Nonprofit profile at a glance

EIN
222474769
IRS 990 coverage
2010–2025
Forms available
Form 990 2025
Location
Conshohocken, PA, USA
Phone
6106670131
Rating
75
Verdict
SUPPORTED
Rating confidence
Moderate
Sector
Voluntary Health Associations & Medical Disciplines N.E.C.

Official website

Reported finances

Revenue
$7,799,708
Expenses
$7,412,920
Assets
$20,008,529
Liabilities
$3,171,159

Source: IRS Form 990. Selected filing: tax year 2025. Amounts in USD.

Leadership & pay

18 people listed

Executive titles in this filing

  • ELIZABETH BUTLER (PRESIDENT &CEO)
  • CORBIN WHITTINGTON (PRESIDENT)
  • PETER DONOFRIO MD (VICE PRESIDENT)

Highest reported compensation

  • ELIZABETH BUTLER (PRESIDENT &CEO): $418,236 total reported compensation
  • MAUREEN NEVILLE (CHIEF OF PROGRAMS & MKTG): $242,399 total reported compensation
  • LAURA BLAIR (CFO): $228,943 total reported compensation

Source: IRS Form 990. Selected filing: tax year 2025. Names and roles reflect this filing, not necessarily current officeholders.

Overview

Mission

To improve the quality of life for individuals and families worldwide affected by gbs, cidp and variants by 1) providing a network for all patients, their caregivers and families 2) providing public and professional education programs worldwide designed to heighten awareness and improve the understanding and treatment of gbs, cidp and variants. 3) expanding the foundation's role in sponsoring research and engaging in patient advocacy.

What it reported doing in 2025

Distribution of information and literature to members, hospitals, doctors, and individuals upon request; organize and sponsor symposium or regional meeting and other educational and research programs for medical professional and laypeople; provide research grants to further the study of guillain-barre, cidp and variants.

Operating model

Revenue model
Donor-supported. 95% of the money available for current operations came from contributions and gifts.
Distribution model
Hybrid. The nonprofit split its reported program spending across 67% for direct work, and 33% for grants.
  • Includes noncash contributions: Reported contributions include donated property or goods.

The verdict

SUPPORTED - A large share of available resources goes toward mission work and most voting board members are independent. The filing reports few safeguards for money sent abroad and the filing does not identify recipients for some grant dollars.

Rating breakdown

  • Financial Efficiency: 85
  • Transparency & Controls: 48
  • Accountability: 95
  • Sustainability: 47
  • Growth: 100

Detailed rating inputs

Financial Efficiency

  • Mission deployment rate: 88.6%; rating input score 89
  • Program expense ratio: 88.4%; rating input score 88
  • Fundraising efficiency: $16.11 raised per $1 spent on fundraising; rating input score 52; 52nd percentile among comparable filings

Transparency & Controls

  • Consistency checks: 94.1%; rating input score 94; 23rd percentile among comparable filings
  • Pay-setting controls: 2 of 6 controls in place; rating input score 33
    • Compensation committee: Missing
    • Independent consultant: Missing
    • Other Form 990s reviewed: Missing
    • Written employment contract: Missing
    • Compensation survey or study: Pass
    • Board or committee approval: Pass
  • Foreign activity oversight: Scored; rating input score 0
  • Grant itemization coverage: 0.2%; rating input score 0; 16th percentile among comparable filings
  • Major donor itemization: Yes; rating input score 100
  • Related-party transparency: Limited

Accountability

  • Independent voting board: 100%; rating input score 100; 63rd percentile among comparable filings
  • Governance controls: 8 of 9 controls in place; rating input score 89
    • Conflict-of-interest policy: Pass
    • Whistleblower policy: Pass
    • Document-retention policy: Pass
    • CEO compensation review process: Pass
    • Other executive compensation review process: Fail
    • Form 990 shared with the board: Pass
    • Board meeting minutes documented: Pass
    • Audit committee oversight: Pass
    • Independent financial-statement audit: Pass

Sustainability

  • Operating margin: 5%; rating input score 43; 43rd percentile among comparable filings
  • Total-asset coverage ratio: 2.7; rating input score 67; 67th percentile among comparable filings
  • Liabilities to assets ratio: 0.16; rating input score 40; 40th percentile among comparable filings
  • Officer compensation ratio: 16.7%; rating input score 20; 20th percentile among comparable filings

Growth

  • Program expense growth: 12.3% per year; rating input score 100; 68th percentile among comparable filings
  • Revenue growth: 12.2% per year; rating input score 100; 73rd percentile among comparable filings
  • Asset growth: 8.7% per year; rating input score 100; 52nd percentile among comparable filings

Details

  • Where the money goes: 88.6% of revenue deployed · 88.4% of spending went to programs
  • Governance: 13 of 13 board members independent · 8 of 9 filing controls reported
  • Programs: 1 filed program accomplishment · $6.5M in reported program spending
  • Leadership: top reported pay $418K · 18 people listed · 2 of 6 pay-setting controls reported
  • Consistency: 34 of 35 current checks pass · 1 finding to review
  • Schedules: 9 filed schedules · includes major donors, foreign activity, grants, and executive pay
  • Filing history: 16 filing years from 2010 to 2025
  • Contacts: How to reach this organization
  • Money network: 6 filed money-flow records
  • Related organizations: 1 filed related-organization link
  • Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
  • People: Everyone the filings name, and which of them the filings identify by more than a name.
  • Staff and benefit plans: Retirement and health plans the organization files with the Department of Labor, and the people in them.

Key Signals

Signals prioritize questions for review. They are not findings of misconduct.

  • High — Transparency & Controls: Foreign activity oversight scored 0/100.
  • High — Transparency & Controls: Grant itemization coverage scored 0/100.
  • Review — Financial Efficiency: Fundraising efficiency scored 52/100.
  • Moderate — Sustainability: Operating margin scored 43/100.
  • Review — Accountability: Governance controls: Other executive compensation review process not reported.
  • High — Sustainability: Officer compensation ratio scored 20/100.
  • Moderate — Sustainability: Liabilities to assets ratio scored 40/100.
  • Review — Transparency & Controls: Domestic grant itemization did not reconcile in the filed values.