Fragile X Association of Southern California
Nonprofit profile at a glance
- EIN
- 954546917
- IRS 990-EZ coverage
- 2023–2024
- Forms available
- Form 990-EZ 2024, Form 990-N 2022
- Location
- Burbank, CA, USA
- Phone
- 8187544227
- Rating
- 94
- Verdict
- STRONG
- Rating confidence
- Moderate
Reported finances
- Revenue
- $66,154
- Expenses
- $61,701
- Assets
- $101,327
Source: IRS Form 990-EZ. Selected filing: tax year 2024. Amounts in USD.
Leadership & pay
10 people listed
Executive titles in this filing
- GRETCHEN SLUSSER (PRESIDENT)
People named in this filing
- GRETCHEN SLUSSER (PRESIDENT)
- JENNIFER NEWSOME (VICE PRESIDE)
- MARY SEWARD (TREASURER)
Selected names, not a complete roster or a statement of current roles. Open leadership details for the complete filed list.
Source: IRS Form 990-EZ. Selected filing: tax year 2024. Names and roles reflect this filing, not necessarily current officeholders.
Overview
Mission
The specific purposes for which this corporation is organized are to provide information and support to families affected by, and to promote education and research about, fragile x syndrome.
What it reported doing in 2024
Our non-profit organization was formed to promote public awareness of fragile x syndrome with special emphasis on educators and health professionals; provide a forum for families and children with fragile x to meet and share their ideas, concerns and problems; and support scientific research on fragile x syndrome.
Operating model
- Revenue model
- Donor-supported. 97% of the money available for current operations came from contributions and gifts.
- Distribution model
- Grant intermediary. The nonprofit sent 87% of its reported program spending out as grants.
The verdict
STRONG - A large share of available resources goes toward mission work and the filed numbers largely add up. Revenue has declined or grown slowly and expenses are high relative to revenue.
Rating breakdown
- Financial Efficiency: 96
- Transparency & Controls: 100
- Sustainability: 51
- Growth: 60
Detailed rating inputs
Financial Efficiency
- Mission deployment rate: 93.5%; rating input score 93
- Program expense ratio: 100%; rating input score 100
Transparency & Controls
- Consistency checks: 100%; rating input score 100; 52nd percentile among comparable filings
- Major donor itemization: Yes; rating input score 100
Sustainability
- Operating margin: 6.7%; rating input score 57; 57th percentile among comparable filings
- Total-asset coverage ratio: 1.64; rating input score 60; 60th percentile among comparable filings
- Liabilities to assets ratio: Limited
- Officer compensation ratio: 0%; rating input score 56; 56th percentile among comparable filings
Growth
- Program expense growth: 67.1% per year; rating input score 100; 95th percentile among comparable filings
- Revenue growth: -4.5% per year; rating input score 0; 36th percentile among comparable filings
- Asset growth: 4.5% per year; rating input score 100; 56th percentile among comparable filings
Details
- Where the money goes: 93.5% of revenue deployed · 100% of spending went to programs
- Governance: Filed governance answers
- Accomplishments: 2 filed program accomplishments · $62K in reported program spending
- Leadership: top reported pay $0 · 10 people listed
- Consistency: 7 of 7 current checks pass
- Schedules: 4 filed schedules
- Filing history: 2 filing years from 2023 to 2024
- Contacts: How to reach this organization
- Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
- People: Everyone the filings name, and which of them the filings identify by more than a name.
Key Signals
Signals prioritize questions for review. They are not findings of misconduct.
- High — Growth: Revenue growth scored 0/100.
- Review — Sustainability: Operating margin scored 57/100.
- Review — Sustainability: Officer compensation ratio scored 56/100.