Foundation for Ichthyosis and Related Skin Types Inc
Nonprofit profile at a glance
- EIN
- 942738019
- IRS 990 coverage
- 2010–2024
- Forms available
- Form 990 2024
- Location
- Lansdale, PA, USA
- Phone
- 2159779400
- Rating
- 84
- Verdict
- STRONG
- Rating confidence
- Moderate
Reported finances
- Revenue
- $966,515
- Expenses
- $1,072,101
- Assets
- $3,272,432
- Liabilities
- $50,921
Source: IRS Form 990. Selected filing: tax year 2024. Amounts in USD.
Leadership & pay
18 people listed
Highest reported compensation
- CHRISTOPHER BOYNTON (CHIEF EXEC.): $206,961 total reported compensation
Source: IRS Form 990. Selected filing: tax year 2024. Names and roles reflect this filing, not necessarily current officeholders.
Overview
Mission
To improve the lives and seek cures for those affected by ichthyosis and related skin types.
What it reported doing in 2024
One of the cornerstones of first is its emphasis on research and its support of the yale ichthyosis registry both financially and through its promotion accross its communication channels. Critical to improving the management of their condition, participation in the yale registry provides each affected individual a genetic diagnosis of their particular type of ichthyosis or other skin type. The registry is also vitally important to the research community and continues to be referenced in numerous studies and manuscripts. The registry also serves to provide research opportunities for training the next generation of physician scientists.
Operating model
- Revenue model
- Donor-supported. 86% of the money available for current operations came from contributions and gifts.
- Distribution model
- Hybrid. The nonprofit split its reported program spending across 70% for direct work, and 30% for grants.
The verdict
STRONG - A large share of available resources goes toward mission work and the filed numbers largely add up. Fundraising costs are high for each dollar raised and expenses are high relative to revenue.
Rating breakdown
- Financial Efficiency: 83
- Transparency & Controls: 78
- Accountability: 100
- Sustainability: 39
- Growth: 100
Detailed rating inputs
Financial Efficiency
- Mission deployment rate: 92.1%; rating input score 92
- Program expense ratio: 81.8%; rating input score 82
- Fundraising efficiency: $9.88 raised per $1 spent on fundraising; rating input score 37; 37th percentile among comparable filings
Transparency & Controls
- Consistency checks: 92.9%; rating input score 93; 19th percentile among comparable filings
- Pay-setting controls: 5 of 6 controls in place; rating input score 83
- Compensation committee: Pass
- Independent consultant: Pass
- Other Form 990s reviewed: Missing
- Written employment contract: Pass
- Compensation survey or study: Pass
- Board or committee approval: Pass
- Foreign activity oversight: 2 of 8 controls in place; rating input score 25
- Claims monitoring procedures: Pass
- Requires narrative reports: Pass
- Conducts field audits: Limited
- May suspend future funding: Limited
- Requires financial reports: Limited
- Conducts site visits: Limited
- Requires grant agreements: Limited
- May require repayment: Limited
- Grant itemization coverage: 97.9%; rating input score 98; 46th percentile among comparable filings
- Major donor itemization: Yes; rating input score 100
- Related-party transparency: Limited
Accountability
- Independent voting board: 100%; rating input score 100; 63rd percentile among comparable filings
- Governance controls: 8 of 8 controls in place; rating input score 100
- Conflict-of-interest policy: Pass
- Whistleblower policy: Pass
- Document-retention policy: Pass
- CEO compensation review process: NotApplicable
- Other executive compensation review process: Pass
- Form 990 shared with the board: Pass
- Board meeting minutes documented: Pass
- Audit committee oversight: Pass
- Independent financial-statement audit: Pass
Sustainability
- Operating margin: -10.9%; rating input score 16; 16th percentile among comparable filings
- Total-asset coverage ratio: 3.05; rating input score 76; 76th percentile among comparable filings
- Liabilities to assets ratio: 0.02; rating input score 65; 65th percentile among comparable filings
- Officer compensation ratio: 19.3%; rating input score 16; 16th percentile among comparable filings
Growth
- Program expense growth: 3.1% per year; rating input score 100; 32nd percentile among comparable filings
- Revenue growth: 3.5% per year; rating input score 100; 34th percentile among comparable filings
- Asset growth: 4% per year; rating input score 100; 34th percentile among comparable filings
Details
- Where the money goes: 92.1% of revenue deployed · 81.8% of spending went to programs
- Governance: 17 of 17 board members independent · 8 of 8 filing controls reported
- Programs: 2 filed program accomplishments · $877K in reported program spending
- Leadership: top reported pay $207K · 18 people listed · 5 of 6 pay-setting controls reported
- Consistency: 35 of 36 current checks pass · 1 finding to review
- Schedules: 7 filed schedules · includes major donors, foreign activity, grants, and executive pay
- Filing history: 15 filing years from 2010 to 2024
- Contacts: How to reach this organization
- Money network: 6 filed money-flow records
- Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
- People: Everyone the filings name, and which of them the filings identify by more than a name.
- Staff and benefit plans: Retirement and health plans the organization files with the Department of Labor, and the people in them.
Key Signals
Signals prioritize questions for review. They are not findings of misconduct.
- Moderate — Financial Efficiency: Fundraising efficiency scored 37/100.
- High — Sustainability: Operating margin scored 16/100.
- High — Sustainability: Officer compensation ratio scored 16/100.
- Review — Transparency & Controls: Domestic grant itemization did not reconcile in the filed values.