Foundation for Children with Neuroimmune Disorders Inc

Nonprofit profile at a glance

EIN
823128162
IRS 990 coverage
2019–2025
Forms available
Form 990 2025, Form 990-N 2018
Location
St Augustine, FL, USA
Phone
6083810367
Rating
71
Verdict
SUPPORTED
Rating confidence
Moderate
Sector
Voluntary Health Associations & Medical Disciplines N.E.C.

Official website

Reported finances

Revenue
$482,434
Expenses
$315,390
Assets
$1,028,283
Liabilities
$0

Source: IRS Form 990. Selected filing: tax year 2025. Amounts in USD.

Leadership & pay

5 people listed

Executive titles in this filing

  • JOHANNA CONKEY (PRESIDENT)
  • LESLIE PHILLIPS (VICE PRESIDENT)

Highest reported compensation

  • JOHANNA CONKEY (PRESIDENT): $145,834 total reported compensation

Source: IRS Form 990. Selected filing: tax year 2025. Names and roles reflect this filing, not necessarily current officeholders.

Overview

Mission

Neuroimmune foundation is a non-profit organization dedicated to dramatically accelerating physician education of pans, pandas, and encephalitis; significantly improving outcomes for individuals impacted by these disorders; providing meaningful support to families during their darkest days; and catalyzing research at an unprecedented pace

What it reported doing in 2025

Physician education - in january 2025, launched comprehensive educational model in colaboration with project echo with accredited cme disgined to equip physicians to evaluate and treat children, youth, and adults with psychiatric symptoms due to an underlying neuroimmune condition (pans, pandas, encephalitis, etc). The free cme program featured one-hour weekly meetings featuring short didactics by 8 world-renowned expert physicians from leading university programs followed by case presentations. Detailed treatment and diagnosis guides to support physicians reached over 25,000 physicians in the united states and abroad. Over 200,000 clinicians worldwide were offered free cme. Continued sustained outreach to 150+ residency programs in the us with free accredited continuing medical education. We have now educated 7000+ clinicians in 70+ countries around the world with accredited cme - 90% of them completely free of charge in an effort to improve patient outcomes. Educated at the national aap meeting, offering free resources to clinicians. Published our second peer-reviewed special issue in developmental neuroscience focusing on advances in pans and related neuroimmue disorders. Expenses included accreditation, marketing, platform fees, honorarium, travel to aap, printing, and a robust outreach.

Operating model

Revenue model
Mixed. Its operating money came from several sources; no one source provided a clear majority.
Distribution model
Direct operator. The filing allocates 81% of reported program-service expenses outside its grant, affiliate-payment, and member-benefit lines. This expense classification does not rule out separately announced grant awards.

The verdict

SUPPORTED - The filed numbers largely add up and most voting board members are independent. A relatively small share of available resources goes toward mission work and the filing reports few safeguards for money sent abroad.

Rating breakdown

  • Financial Efficiency: 57
  • Transparency & Controls: 71
  • Accountability: 90
  • Sustainability: 69
  • Growth: 100

Detailed rating inputs

Financial Efficiency

  • Mission deployment rate: 52.1%; rating input score 52
  • Program expense ratio: 82.7%; rating input score 83
  • Fundraising efficiency: Limited

Transparency & Controls

  • Consistency checks: 90.9%; rating input score 91; 15th percentile among comparable filings
  • Pay-setting controls: Limited
  • Foreign activity oversight: 0 of 8 controls in place; rating input score 0
    • Claims monitoring procedures: Limited
    • Requires narrative reports: Limited
    • Conducts field audits: Limited
    • May suspend future funding: Limited
    • Requires financial reports: Limited
    • Conducts site visits: Limited
    • Requires grant agreements: Limited
    • May require repayment: Limited
  • Grant itemization coverage: 98%; rating input score 98; 60th percentile among comparable filings
  • Major donor itemization: Yes; rating input score 100
  • Related-party transparency: Limited

Accountability

  • Independent voting board: 100%; rating input score 100; 64th percentile among comparable filings
  • Governance controls: 6 of 8 controls in place; rating input score 75
    • Conflict-of-interest policy: Pass
    • Whistleblower policy: Pass
    • Document-retention policy: Pass
    • CEO compensation review process: Pass
    • Other executive compensation review process: NotApplicable
    • Form 990 shared with the board: Pass
    • Board meeting minutes documented: Pass
    • Audit committee oversight: Fail
    • Independent financial-statement audit: Fail

Sustainability

  • Operating margin: 34.6%; rating input score 83; 83rd percentile among comparable filings
  • Total-asset coverage ratio: 3.26; rating input score 71; 71st percentile among comparable filings
  • Liabilities to assets ratio: 0; rating input score 77; 77th percentile among comparable filings
  • Officer compensation ratio: 46.2%; rating input score 4; 4th percentile among comparable filings

Growth

  • Program expense growth: 16.1% per year; rating input score 100; 78th percentile among comparable filings
  • Revenue growth: 13.1% per year; rating input score 100; 77th percentile among comparable filings
  • Asset growth: 21.6% per year; rating input score 100; 84th percentile among comparable filings

Details

  • Where the money goes: 52.1% of revenue deployed · 82.7% of spending went to programs
  • Governance: 5 of 5 board members independent · 6 of 8 filing controls reported
  • Programs: 3 filed program accomplishments · $261K in reported program spending
  • Leadership: top reported pay $146K · 5 people listed
  • Consistency: 23 of 24 current checks pass · 1 finding to review
  • Schedules: 4 filed schedules · includes major donors and foreign activity
  • Filing history: 7 filing years from 2019 to 2025
  • Contacts: How to reach this organization
  • Money network: 1 filed money-flow record
  • Related organizations: Filed and resolved organization relationships.
  • Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
  • People: Everyone the filings name, and which of them the filings identify by more than a name.

Key Signals

Signals prioritize questions for review. They are not findings of misconduct.

  • Review — Financial Efficiency: Mission deployment rate scored 52/100.
  • High — Transparency & Controls: Foreign activity oversight scored 0/100.
  • Review — Accountability: Governance controls: 2 of 8 not reported.
  • Moderate — Transparency & Controls: Schedule A contributions reconciliation did not reconcile in the filed values.
  • High — Sustainability: Officer compensation ratio scored 4/100.