Finding Hope for FRRS1L

Nonprofit profile at a glance

EIN
873285525
IRS 990 coverage
2024–2025
Forms available
Form 990 2025, Form 990-EZ 2021, Form 990-N 2023
Location
Fort Collins, CO, USA
Phone
9704306681
Rating
89
Verdict
STRONG
Rating confidence
Moderate
Sector
Birth Defects, Genetic Diseases Research

Reported finances

Revenue
$2,543,539
Expenses
$2,394,640
Assets
$1,376,884
Liabilities
$4,189

Source: IRS Form 990. Selected filing: tax year 2025. Amounts in USD.

Leadership & pay

6 people listed

Executive titles in this filing

  • Viviana Rodriguez (Vice President)
  • Christine Green (President)

People named in this filing

  • Viviana Rodriguez (Vice President)
  • Christine Green (President)
  • Stephen Green (Secretary)

Selected names, not a complete roster or a statement of current roles. Open leadership details for the complete filed list.

Source: IRS Form 990. Selected filing: tax year 2025. Names and roles reflect this filing, not necessarily current officeholders.

Overview

Mission

FIND a Community : Create a community of Hope for FRRS1L gene disorder children and families to connect communicate collaborate and support one another. HOPE for a Cure: Serve to fund the research and development of gene therapy replacement treatment that has been proven in research to bring FRRS1L mouse back to function. FRRS1L awareness: Share information and resources with the public medical professionals and researchers to increase the awareness and understanding of FRRS1L.

What it reported doing in 2025

Serve to fund the research and development of gene therapy replacement treatment that has been proven in research to bring FRRS1L mouse back to function.

Operating model

Revenue model
Donor-supported. 98% of the money available for current operations came from contributions and gifts.
Distribution model
Cannot be determined from the filing. The filing does not provide enough consistent spending detail to tell whether the nonprofit works directly or through others.
  • Includes noncash contributions: Reported contributions include donated property or goods.

The verdict

STRONG - A large share of available resources goes toward mission work and the filed numbers largely add up. Some filing-based governance responses are negative or unanswered and expenses are high relative to revenue.

Rating breakdown

  • Financial Efficiency: 95
  • Transparency & Controls: 86
  • Accountability: 88
  • Sustainability: 47
  • Growth: 100

Detailed rating inputs

Financial Efficiency

  • Mission deployment rate: 93.3%; rating input score 93
  • Program expense ratio: 99.1%; rating input score 99
  • Fundraising efficiency: $152.09 raised per $1 spent on fundraising; rating input score 91; 91st percentile among comparable filings

Transparency & Controls

  • Consistency checks: 92.3%; rating input score 92; 11th percentile among comparable filings
  • Pay-setting controls: Limited
  • Foreign activity oversight: Limited
  • Grant itemization coverage: Limited
  • Major donor itemization: Yes; rating input score 100
  • Related-party transparency: Limited

Accountability

  • Independent voting board: 100%; rating input score 100; 63rd percentile among comparable filings
  • Governance controls: 5 of 7 controls in place; rating input score 71
    • Conflict-of-interest policy: Pass
    • Whistleblower policy: Pass
    • Document-retention policy: Pass
    • CEO compensation review process: NotApplicable
    • Other executive compensation review process: NotApplicable
    • Form 990 shared with the board: Pass
    • Board meeting minutes documented: Pass
    • Audit committee oversight: Missing
    • Independent financial-statement audit: Fail

Sustainability

  • Operating margin: 5.9%; rating input score 45; 45th percentile among comparable filings
  • Total-asset coverage ratio: 0.57; rating input score 19; 19th percentile among comparable filings
  • Liabilities to assets ratio: 0; rating input score 85; 85th percentile among comparable filings
  • Officer compensation ratio: 0%; rating input score 90; 90th percentile among comparable filings

Growth

  • Program expense growth: 171% per year; rating input score 100; 100th percentile among comparable filings
  • Revenue growth: 44% per year; rating input score 100; 97th percentile among comparable filings
  • Asset growth: 38.4% per year; rating input score 100; 96th percentile among comparable filings

Details

  • Where the money goes: 93.3% of revenue deployed · 99.1% of spending went to programs
  • Governance: 6 of 6 board members independent · 5 of 7 filing controls reported
  • Programs: 3 filed program accomplishments · $2.4M in reported program spending
  • Leadership: top reported pay $0 · 6 people listed
  • Consistency: 41 of 44 current checks pass · 3 findings to review
  • Schedules: 5 filed schedules · includes major donors
  • Filing history: 2 filing years from 2024 to 2025
  • Contacts: How to reach this organization
  • Money network: Resolved incoming and outgoing counterparties from filed money flows.
  • Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
  • People: Everyone the filings name, and which of them the filings identify by more than a name.

Key Signals

Signals prioritize questions for review. They are not findings of misconduct.

  • Review — Accountability: Governance controls: Independent financial-statement audit not reported.
  • Moderate — Sustainability: Operating margin scored 45/100.
  • High — Sustainability: Total-asset coverage ratio scored 19/100.
  • Moderate — Transparency & Controls: Functional expense sum did not reconcile in the filed values.
  • Moderate — Transparency & Controls: Part IX Travel column sum did not reconcile in the filed values.
  • Moderate — Transparency & Controls: Schedule A contributions reconciliation did not reconcile in the filed values.