Fibromuscular Dysplasia Society of America Inc

Nonprofit profile at a glance

EIN
010771966
IRS 990-EZ coverage
2023–2025
Forms available
Form 990 2022, Form 990-EZ 2025
Location
North Olmsted, OH, USA
Phone
2168342410
Rating
82
Verdict
STRONG
Rating confidence
Moderate
Sector
Medical Disciplines Research

Official website

Reported finances

Revenue
$158,513
Expenses
$161,812
Assets
$134,555
Liabilities
$1,161

Source: IRS Form 990-EZ. Selected filing: tax year 2025. Amounts in USD.

Leadership & pay

6 people listed

Executive titles in this filing

  • KAY TANNER (President)
  • PAM MACE (EXECUTIVE DIRECTOR)

People named in this filing

  • KAY TANNER (President)
  • ROSIE MIKLAVCIC (Secretary)
  • GIAMILA FANTUZZI (Director)

Selected names, not a complete roster or a statement of current roles. Open leadership details for the complete filed list.

Source: IRS Form 990-EZ. Selected filing: tax year 2025. Names and roles reflect this filing, not necessarily current officeholders.

Overview

Mission

FMDSA is a public healthcare related charity working towards better diagnosis and treatments for Fibromuscular Dysplasia (FMD). The organization is engaged in funding and facilitating research, physician education and support, building awareness of FMD within the medical community and patient communities, providing patient support, and in patient education programs.

What it reported doing in 2025

Patient and family member education services. The organization provides educational support and resources for patients educate their family, friends, and healthcare providers about FMD with written materials and videos. Resources that help communicate the complex medical language and physiological elements of FMD are laid out in easy-to-understand terms and materials include a Public Service Announcement and tailored materials designed to bridge the gaps between patients and physicians. The Program also includes educational work with media outlets, other organizations, journals, speaking engagements, and articles. It is a rare day when we are not contacted by a newly diagnosed patient. We have seen the diagnosis rate grow in direct proportion to our programs. We also participate in events such as the Cleveland & Detroit Marathons, along with other high profile well attended events, to help increase awareness and to raise funds to support our programs.

Operating model

Revenue model
Cannot be determined from the filing. The filing does not provide enough consistent revenue detail to tell how this nonprofit funds its work.
Distribution model
Hybrid. The nonprofit split its reported program spending across 63% for direct work, and 37% for grants.

The verdict

STRONG - A large share of available resources goes toward mission work and the filed numbers largely add up. Expenses are high relative to revenue and total assets are small relative to annual expenses; liquid coverage is unknown.

Rating breakdown

  • Financial Efficiency: 84
  • Transparency & Controls: 82
  • Sustainability: 39
  • Growth: 100

Detailed rating inputs

Financial Efficiency

  • Mission deployment rate: 85.1%; rating input score 85
  • Program expense ratio: 83.4%; rating input score 83

Transparency & Controls

  • Consistency checks: 100%; rating input score 100; 52nd percentile among comparable filings
  • Major donor itemization: Limited

Sustainability

  • Operating margin: -2.1%; rating input score 25; 25th percentile among comparable filings
  • Total-asset coverage ratio: 0.83; rating input score 53; 53rd percentile among comparable filings
  • Liabilities to assets ratio: 0.01; rating input score 38; 38th percentile among comparable filings
  • Officer compensation ratio: 0%; rating input score 63; 63rd percentile among comparable filings

Growth

  • Program expense growth: 57.9% per year; rating input score 100; 93rd percentile among comparable filings
  • Revenue growth: 1.5% per year; rating input score 100; 25th percentile among comparable filings
  • Asset growth: 7.5% per year; rating input score 100; 51st percentile among comparable filings

Details

  • Where the money goes: 85.1% of revenue deployed · 83.4% of spending went to programs
  • Governance: Filed governance answers
  • Accomplishments: 8 filed program accomplishments · $135K in reported program spending
  • Leadership: top reported pay $0 · 6 people listed
  • Consistency: 8 of 8 current checks pass
  • Schedules: 2 filed schedules
  • Filing history: 3 filing years from 2023 to 2025
  • Contacts: How to reach this organization
  • Money network: 1 filed money-flow record
  • Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
  • People: Everyone the filings name, and which of them the filings identify by more than a name.

Key Signals

Signals prioritize questions for review. They are not findings of misconduct.

  • High — Sustainability: Operating margin scored 25/100.
  • Review — Sustainability: Total-asset coverage ratio scored 53/100.
  • Moderate — Sustainability: Liabilities to assets ratio scored 38/100.