Epilepsy Support Network of Orange County
Nonprofit profile at a glance
- EIN
- 270681680
- IRS 990 coverage
- 2014–2024
- Forms available
- Form 990 2024, Form 990-EZ 2013
- Location
- Costa Mesa, CA, USA
- Phone
- 7149160456
- Rating
- 83
- Verdict
- STRONG
- Rating confidence
- Moderate
- Sector
- Health
Reported finances
- Revenue
- $342,367
- Expenses
- $347,823
- Assets
- $386,803
- Liabilities
- $0
Source: IRS Form 990. Selected filing: tax year 2024. Amounts in USD.
Leadership & pay
7 people listed
Executive titles in this filing
- JANNA L MOORE (EXECUTIVE DIRECTOR)
- KATHY NICHOLS (PRESIDENT)
Highest reported compensation
- JANNA L MOORE (EXECUTIVE DIRECTOR): $69,600 total reported compensation
Source: IRS Form 990. Selected filing: tax year 2024. Names and roles reflect this filing, not necessarily current officeholders.
Overview
Mission
Committed to building a community of support for those affected by epilepsy through educational programs, support groups and community advocacy. Our goal is to help those affected with epilepsy control the frequency and intensity of epileptic seizure and provide a safe and supportive environment to sort through the medical, educational, social and emotional aspects of this complex neurological condition.
What it reported doing in 2024
Parent educational expert series: an educational support group for parents with a child or teen diagnosed with epilepsy to learn about the most up to date information, treatments and research in the field of epilepsy. Program accomplishments: educated 445 parents.teen club: social skills group helping teens with epilepsy to build self esteem, friendship skills and stay socially connected in a safe and supportive environment. Typical teens serve as peer role models to teach appropriate social behaviors. Program accomplishments: facilitated successful teen outing, served 174 teens. Friday friends club: while parents of children with epilepsy and adults with epilepsy attend our programs, ffc provides play and social skills time for developing friendships in a safe, accepting, playful and purposeful environment for both special needs and typical children. Siblings of affected children attend to serve as neurotypical role models. Program accomplishment: expanded lesson plans with themes, character building, enrichment activities; served 1,551 children.adult educational expert series: an educational support group for adults diagnosed with epilepsy to learn about the most up to date information, treatments and research in the field of epilepsy. Program accomplishment: educated 356 adult social: this monthly social group provides the opportunity to meet other adults with epilepsy to share experiences, answer questions and meet new friends; enables adults with epilepsy to connect, share resources and challenges with one another as they are usually socially isolated. Program accomplishment: connected 129 adults throughout the year to meaningul relationships.parent educational expert series - spanish an educational support group for parents with a child or teen diagnosed with epilepsy to learn about the most up to date information, treatments and research in the field of epilepsy with spanish translation to meet the needs of our spanish speaking families in the community. Program accomplishments: expanded group; educated 88 parents.emotional support groups for parents: an encouraging and uplifting support group facilitated by a licensed, clinical psychologist who specializes in epilepsy. Parents met monthly to discuss all areas of life affected by epilepsy. Program accomplishments: counseled 55 parents.online support group for parents: provided 7-days a week, 24 hour online access to parents with diverse experience in pediatric epilepsy. Program accomplishment: newly diagnosed parents quickly connected with online support.
Operating model
- Revenue model
- Donor-supported. 93% of the money available for current operations came from contributions and gifts.
- Distribution model
- Direct operator. The filing allocates 100% of reported program-service expenses outside its grant, affiliate-payment, and member-benefit lines. This expense classification does not rule out separately announced grant awards.
- Includes noncash contributions: Reported contributions include donated property or goods.
The verdict
STRONG - A large share of available resources goes toward mission work and the filed numbers largely add up. Fundraising costs are high for each dollar raised and expenses are high relative to revenue.
Rating breakdown
- Financial Efficiency: 77
- Transparency & Controls: 92
- Accountability: 90
- Sustainability: 41
- Growth: 100
Detailed rating inputs
Financial Efficiency
- Mission deployment rate: 83%; rating input score 83
- Program expense ratio: 81.7%; rating input score 82
- Fundraising efficiency: $8.52 raised per $1 spent on fundraising; rating input score 35; 35th percentile among comparable filings
Transparency & Controls
- Consistency checks: 100%; rating input score 100; 64th percentile among comparable filings
- Pay-setting controls: Limited
- Foreign activity oversight: Limited
- Grant itemization coverage: Limited
- Major donor itemization: Yes; rating input score 100
- Related-party transparency: Limited
Accountability
- Independent voting board: 100%; rating input score 100; 63rd percentile among comparable filings
- Governance controls: 6 of 8 controls in place; rating input score 75
- Conflict-of-interest policy: Pass
- Whistleblower policy: Pass
- Document-retention policy: Pass
- CEO compensation review process: Pass
- Other executive compensation review process: NotApplicable
- Form 990 shared with the board: Pass
- Board meeting minutes documented: Pass
- Audit committee oversight: Missing
- Independent financial-statement audit: Fail
Sustainability
- Operating margin: -1.6%; rating input score 35; 35th percentile among comparable filings
- Total-asset coverage ratio: 1.11; rating input score 43; 43rd percentile among comparable filings
- Liabilities to assets ratio: 0; rating input score 80; 80th percentile among comparable filings
- Officer compensation ratio: 20%; rating input score 19; 19th percentile among comparable filings
Growth
- Program expense growth: 6% per year; rating input score 100; 58th percentile among comparable filings
- Revenue growth: 8.1% per year; rating input score 100; 66th percentile among comparable filings
- Asset growth: 12.5% per year; rating input score 100; 72nd percentile among comparable filings
Details
- Where the money goes: 83% of revenue deployed · 81.7% of spending went to programs
- Governance: 6 of 6 board members independent · 6 of 8 filing controls reported
- Programs: 4 filed program accomplishments · $284K in reported program spending
- Leadership: top reported pay $70K · 7 people listed
- Consistency: 28 of 28 current checks pass
- Schedules: 5 filed schedules · includes major donors
- Filing history: 11 filing years from 2014 to 2024
- Contacts: How to reach this organization
- Money network: 2 filed money-flow records
- Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
- People: Everyone the filings name, and which of them the filings identify by more than a name.
Key Signals
Signals prioritize questions for review. They are not findings of misconduct.
- Moderate — Financial Efficiency: Fundraising efficiency scored 35/100.
- Moderate — Sustainability: Operating margin scored 35/100.
- Review — Accountability: Governance controls: Independent financial-statement audit not reported.
- Moderate — Sustainability: Total-asset coverage ratio scored 43/100.
- High — Sustainability: Officer compensation ratio scored 19/100.