Epilepsy Foundation of Wisconsin
Legal name: Epilepsy Foundation of Wisconsin Inc
Nonprofit profile at a glance
- EIN
- 391370658
- IRS 990 coverage
- 2012–2024
- Official website data refreshed
- Sep 2026
- Forms available
- Form 990 2024
- Location
- Madison, WI, US
- Phone
- (608) 665-1848
- Rating
- 60
- Verdict
- SUPPORTED
- Rating confidence
- Standard
- Sector
- Health
Reported finances
- Revenue
- $268,572
- Expenses
- $244,104
- Assets
- $285,093
- Liabilities
- $28,079
Source: IRS Form 990. Selected filing: tax year 2024. Amounts in USD.
Leadership & pay
9 people listed
Executive titles in this filing
- Kristin Dostal (Executive Director)
- Rachael Koval (President)
Highest reported compensation
- Kristin Dostal (Executive Director): $39,680 total reported compensation
Source: IRS Form 990. Selected filing: tax year 2024. Names and roles reflect this filing, not necessarily current officeholders.
Overview
Mission
Committed to enhancing the quality of life for individuals and families affected by epilepsy. We aim to provide comprehensive support through a range of services, including education, advocacy, and direct assistance. Our goal is to empower those living with epilepsy by offering resources that promote independence, self-management, and overall well-being.
What it reported doing in 2024
Direct client services - each year, efw conducts three types of in-person programs that directly benefit individuals living with epilepsy. The programs include support grooups, a kids camp and an adult retreat. Each program promotes connection, community, and fellowship among individuals living with epilepsy, so they never feel alone in the diagnosis. The efw team plans and facilitates all sessions, ensuring a meaningful and inclusive experience for participants.
Operating model
- Revenue model
- Donor-supported. 66% of the money available for current operations came from contributions and gifts.
- Distribution model
- Direct operator. The filing allocates 97% of reported program-service expenses outside its grant, affiliate-payment, and member-benefit lines. This expense classification does not rule out separately announced grant awards.
- Includes noncash contributions: Reported contributions include donated property or goods.
The verdict
SUPPORTED - The filed numbers largely add up and most voting board members are independent. A relatively small share of available resources goes toward mission work and a relatively small share of total spending goes to programs.
Rating breakdown
- Financial Efficiency: 49
- Transparency & Controls: 70
- Accountability: 84
- Sustainability: 46
- Growth: 0
Detailed rating inputs
Financial Efficiency
- Mission deployment rate: 51.4%; rating input score 51
- Program expense ratio: 55.4%; rating input score 55
- Fundraising efficiency: $4.82 raised per $1 spent on fundraising; rating input score 21; 21st percentile among comparable filings
Transparency & Controls
- Consistency checks: 92.3%; rating input score 92; 22nd percentile among comparable filings
- Pay-setting controls: 1 of 6 controls in place; rating input score 17
- Compensation committee: Missing
- Independent consultant: Missing
- Other Form 990s reviewed: Missing
- Written employment contract: Missing
- Compensation survey or study: Missing
- Board or committee approval: Pass
- Foreign activity oversight: Limited
- Grant itemization coverage: Limited
- Major donor itemization: Yes; rating input score 100
- Related-party transparency: Limited
Accountability
- Independent voting board: 100%; rating input score 100; 63rd percentile among comparable filings
- Governance controls: 5 of 8 controls in place; rating input score 62
- Conflict-of-interest policy: Pass
- Whistleblower policy: Pass
- Document-retention policy: Pass
- CEO compensation review process: Fail
- Other executive compensation review process: NotApplicable
- Form 990 shared with the board: Pass
- Board meeting minutes documented: Pass
- Audit committee oversight: Missing
- Independent financial-statement audit: Fail
Sustainability
- Operating margin: 9.1%; rating input score 58; 58th percentile among comparable filings
- Total-asset coverage ratio: 1.17; rating input score 45; 45th percentile among comparable filings
- Liabilities to assets ratio: 0.1; rating input score 26; 26th percentile among comparable filings
- Officer compensation ratio: 16.3%; rating input score 23; 23rd percentile among comparable filings
Growth
- Program expense growth: -12.9% per year; rating input score 0; 9th percentile among comparable filings
- Revenue growth: -6.3% per year; rating input score 0; 9th percentile among comparable filings
- Asset growth: -0.3% per year; rating input score 0; 23rd percentile among comparable filings
Details
- What they do: 6 programs and campaigns described on the official site · 1 operating location identified
- Where the money goes: 51.4% of revenue deployed · 55.4% of spending went to programs
- Governance: 8 of 8 board members independent · 5 of 8 filing controls reported
- Programs: 3 filed program accomplishments · $135K in reported program spending
- Leadership: top reported pay $40K · 9 people listed · 1 of 6 pay-setting controls reported
- Consistency: 29 of 30 current checks pass · 1 finding to review
- Schedules: 7 filed schedules · includes major donors and executive pay
- Filing history: 12 filing years from 2012 to 2024
- Contacts: How to reach this organization
- Money network: 1 filed money-flow record
- Related organizations: 1 filed related-organization link
- Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
- People: Everyone the filings name, and which of them the filings identify by more than a name.
Key Signals
Signals prioritize questions for review. They are not findings of misconduct.
- Review — Financial Efficiency: Mission deployment rate scored 51/100.
- Review — Financial Efficiency: Program expense ratio scored 55/100.
- High — Financial Efficiency: Fundraising efficiency scored 21/100.
- Review — Accountability: Governance controls: 2 of 7 not reported.
- High — Growth: Program expense growth scored 0/100.
- High — Growth: Revenue growth scored 0/100.
- High — Growth: Asset growth scored 0/100.
- Review — Sustainability: Operating margin scored 58/100.
- Moderate — Sustainability: Total-asset coverage ratio scored 45/100.
- Review — Transparency & Controls: Schedule R controlled transactions itemized did not reconcile in the filed values.
- High — Sustainability: Officer compensation ratio scored 23/100.
- High — Sustainability: Liabilities to assets ratio scored 26/100.