Epilepsy Foundation of Greater Los Angeles
Nonprofit profile at a glance
- EIN
- 952046033
- IRS 990 coverage
- 2009–2017
- Forms available
- Form 990 2017
- Location
- Los Angeles, CA, USA
- Phone
- 3106702870
- Rating
- 74
- Verdict
- SUPPORTED
- Rating confidence
- Moderate
- Sector
- Health
Reported finances
- Revenue
- $1,841,660
- Expenses
- $1,550,620
- Assets
- $0
- Liabilities
- $0
Source: IRS Form 990. Selected filing: tax year 2017. Amounts in USD.
Leadership & pay
23 people listed
Executive titles in this filing
- AZITA KARIMKHANY FATHEREE (PRESIDENT)
- LOREN ZITOMERSKY (VICE PRESIDENT)
- SUSAN PIETSCH-ESCUETA (EXECUTIVE DIRECTOR)
- REBEKKAH HALLIWELL (INTERIM EXECUTIVE DIRECTOR)
Highest reported compensation
- SUSAN PIETSCH-ESCUETA (EXECUTIVE DIRECTOR): $154,137 total reported compensation
- DONALD NOSE (CHIEF DEVELOPMENT OFFICER): $153,511 total reported compensation
- REBEKKAH HALLIWELL (INTERIM EXECUTIVE DIRECTOR): $92,274 total reported compensation
Source: IRS Form 990. Selected filing: tax year 2017. Names and roles reflect this filing, not necessarily current officeholders.
Overview
Mission
See form 990, part i, line 1 for explanation of mission statement.
What it reported doing in 2017
Care: specialty care - improve access to and quality of specialty care to improve outcomes for children with epilepsy. During the year ending june 30, 2018, the efgla continued our care+cure initiatives to support the training of specialists at medical epilepsy centers in our region: (a) university of California los angeles (ucla) mattel children's hospital [1 pediatric epilepsy fellows in year 2 of training,] (b) los angeles county and university of southern California medical centers (lac+usc) [1 epilepsy/eeg fellow], (c) university of California, irvine (uci) 1 pediatric epilepsy fellow and (d) children's hospital los angeles (chla) [1 pediatric neurology fellow]. Efgla signed a statement of intent to establish a pediatric epilepsy fellow endowment over a period of 6 years for a total gift intent of $1.6 million and, during fy18, gifts totaling $266,000 were given for this endowment. (note: the statement of intent expires annually on 6/30 and the efgla intends to execute a new statement of intent on an annual basis until such time as the entirety of the gift intent is fulfilled. However, if the efgla does not renew, efgla has no further financial obligation and the endowment will stay intact supporting its intended purpose.) supportive care - connect people affected by epilepsy to each other and to information in order to empower them and so they feel less alone in their fight to end epilepsy. The efgla offered various supportive care programs -- family camp, family holiday party, social events, adult/family therapy group, art therapy, college scholarships, assistance fund, and scholarships for programs.
Operating model
- Revenue model
- Donor-supported. 99% of the money available for current operations came from contributions and gifts.
- Distribution model
- Hybrid. The nonprofit split its reported program spending across 59% for direct work, and 41% for grants.
The verdict
SUPPORTED - A large share of available resources goes toward mission work and most voting board members are independent. The required major-donor schedule is missing or incomplete and total assets are small relative to annual expenses; liquid coverage is unknown.
Rating breakdown
- Financial Efficiency: 74
- Transparency & Controls: 63
- Accountability: 100
- Sustainability: 37
- Growth: 80
Detailed rating inputs
Financial Efficiency
- Mission deployment rate: 70.8%; rating input score 71
- Program expense ratio: 83.9%; rating input score 84
- Fundraising efficiency: $20.63 raised per $1 spent on fundraising; rating input score 63; 63rd percentile among comparable filings
Transparency & Controls
- Consistency checks: 93.8%; rating input score 94; 22nd percentile among comparable filings
- Pay-setting controls: 1 of 6 controls in place; rating input score 17
- Compensation committee: Missing
- Independent consultant: Missing
- Other Form 990s reviewed: Missing
- Written employment contract: Missing
- Compensation survey or study: Missing
- Board or committee approval: Pass
- Foreign activity oversight: Limited
- Grant itemization coverage: 98.9%; rating input score 99; 43rd percentile among comparable filings
- Major donor itemization: No; rating input score 0
- Related-party transparency: Limited
Accountability
- Independent voting board: 100%; rating input score 100; 63rd percentile among comparable filings
- Governance controls: 9 of 9 controls in place; rating input score 100
- Conflict-of-interest policy: Pass
- Whistleblower policy: Pass
- Document-retention policy: Pass
- CEO compensation review process: Pass
- Other executive compensation review process: Pass
- Form 990 shared with the board: Pass
- Board meeting minutes documented: Pass
- Audit committee oversight: Pass
- Independent financial-statement audit: Pass
Sustainability
- Operating margin: 15.8%; rating input score 76; 76th percentile among comparable filings
- Total-asset coverage ratio: 0; rating input score 0; 0th percentile among comparable filings
- Liabilities to assets ratio: Limited
- Officer compensation ratio: 25.8%; rating input score 8; 8th percentile among comparable filings
Growth
- Program expense growth: 4.8% per year; rating input score 100; 52nd percentile among comparable filings
- Revenue growth: 6.7% per year; rating input score 100; 61st percentile among comparable filings
- Asset growth: -3.7% per year; rating input score 0; 16th percentile among comparable filings
Details
- Where the money goes: 70.8% of revenue deployed · 83.9% of spending went to programs
- Governance: 20 of 20 board members independent · 9 of 9 filing controls reported
- Programs: 3 filed program accomplishments · $1.3M in reported program spending
- Leadership: top reported pay $154K · 23 people listed · 1 of 6 pay-setting controls reported
- Consistency: 29 of 30 current checks pass · 1 finding to review
- Schedules: 8 filed schedules · includes major donors, grants, and executive pay
- Filing history: 9 filing years from 2009 to 2017
- Contacts: How to reach this organization
- Money network: 8 filed money-flow records
- Related organizations: 6 filed related-organization links
- Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
- People: Everyone the filings name, and which of them the filings identify by more than a name.
Key Signals
Signals prioritize questions for review. They are not findings of misconduct.
- High — Transparency & Controls: Major donor itemization scored 0/100.
- High — Sustainability: Total-asset coverage ratio scored 0/100.
- High — Growth: Asset growth scored 0/100.
- High — Sustainability: Officer compensation ratio scored 8/100.
- Review — Transparency & Controls: Domestic grant itemization did not reconcile in the filed values.