Epilepsy Foundation of Greater Los Angel

Nonprofit profile at a glance

EIN
854002671
IRS 990 coverage
2020–2024
Forms available
Form 990 2024
Location
Los Angeles, CA, USA
Phone
3106702870
Rating
90
Verdict
STRONG
Rating confidence
Moderate
Sector
Health

Official website

Reported finances

Revenue
$1,133,404
Expenses
$2,664,483
Assets
$5,845,538
Liabilities
$73,627

Source: IRS Form 990. Selected filing: tax year 2024. Amounts in USD.

Leadership & pay

23 people listed

Executive titles in this filing

  • LOREN ZITOMERSKY (PRESIDENT)
  • MATT EDELMAN (VICE PRESIDENT)
  • REBEKKAH HALLIWELL (EXECUTIVE DIRECTOR)

Highest reported compensation

  • REBEKKAH HALLIWELL (EXECUTIVE DIRECTOR): $126,921 total reported compensation
  • JULIE PALETTA (FINANCE DIRECTOR): $70,861 total reported compensation

Source: IRS Form 990. Selected filing: tax year 2024. Names and roles reflect this filing, not necessarily current officeholders.

Overview

Mission

Epilepsy foundation los angeles is a champion and voice for individuals and families living with epilepsy. We enhance lives by offering programs that foster a supportive community, increasing access to specialty treatment and resources, and generating greater awareness and understanding of epilepsy. United in the mission of our epilepsy foundation network, the epilepsy foundation los angeles improves the lives of people affected by epilepsy through education, advocacy, research, and connection.

What it reported doing in 2024

Public education & awareness: promote understanding, fairness, access and justice for those with epilepsy. Promoted awareness about epilepsy and efla through community events, website and social media so that more people are informed and inspired to join the fight to end epilepsy together. Promoted awareness to grow the number of grassroot advocates. Efla led state efforts to educate the California legislature and other key stakeholders regarding a current law that discriminates against people with the diagnosis of epilepsy. Efla supported state and federal measures that benefit people with epilepsy, and continued involvement with various advocacy coalitions with similar goals. In conjunction with the epilepsy foundation of america, we participated in nationwide advocacy through the public policy institute and teens speak up to advocate for more funding for epilepsy research and public health education and engage young people as advocates. Education to the public-at-large was delivered through seizure recognition and first aid trainings to employers, schools, and through partner community agencies. Efla participated in the California school nurses organization's annual conference to update school nurses on the latest treatments in epilepsy and how best to support students with seizures.

Operating model

Revenue model
Donor-supported. 75% of the money available for current operations came from contributions and gifts.
Distribution model
Grant intermediary. The nonprofit sent 77% of its reported program spending out as grants.

The verdict

STRONG - A large share of available resources goes toward mission work and the filed numbers largely add up. Expenses are high relative to revenue and fundraising costs are high for each dollar raised.

Rating breakdown

  • Financial Efficiency: 93
  • Transparency & Controls: 94
  • Accountability: 91
  • Sustainability: 33
  • Growth: 100

Detailed rating inputs

Financial Efficiency

  • Mission deployment rate: 100%; rating input score 100
  • Program expense ratio: 92.9%; rating input score 93
  • Fundraising efficiency: $18.7 raised per $1 spent on fundraising; rating input score 57; 57th percentile among comparable filings

Transparency & Controls

  • Consistency checks: 100%; rating input score 100; 63rd percentile among comparable filings
  • Pay-setting controls: Limited
  • Foreign activity oversight: Limited
  • Grant itemization coverage: 99.7%; rating input score 100; 50th percentile among comparable filings
  • Major donor itemization: Yes; rating input score 100
  • Related-party transparency: Limited

Accountability

  • Independent voting board: 100%; rating input score 100; 63rd percentile among comparable filings
  • Governance controls: 7 of 9 controls in place; rating input score 78
    • Conflict-of-interest policy: Pass
    • Whistleblower policy: Pass
    • Document-retention policy: Pass
    • CEO compensation review process: Pass
    • Other executive compensation review process: Fail
    • Form 990 shared with the board: Fail
    • Board meeting minutes documented: Pass
    • Audit committee oversight: Pass
    • Independent financial-statement audit: Pass

Sustainability

  • Operating margin: -135.1%; rating input score 1; 1st percentile among comparable filings
  • Total-asset coverage ratio: 2.19; rating input score 67; 67th percentile among comparable filings
  • Liabilities to assets ratio: 0.01; rating input score 67; 67th percentile among comparable filings
  • Officer compensation ratio: 7.4%; rating input score 46; 46th percentile among comparable filings

Growth

  • Program expense growth: 34.4% per year; rating input score 100; 92nd percentile among comparable filings
  • Revenue growth: 19.6% per year; rating input score 100; 85th percentile among comparable filings
  • Asset growth: 5.9% per year; rating input score 100; 43rd percentile among comparable filings

Details

  • Where the money goes: 100% of revenue deployed · 92.9% of spending went to programs
  • Governance: 21 of 21 board members independent · 7 of 9 filing controls reported
  • Programs: 3 filed program accomplishments · $2.5M in reported program spending
  • Leadership: top reported pay $127K · 23 people listed
  • Consistency: 37 of 37 current checks pass
  • Schedules: 8 filed schedules · includes major donors and grants
  • Filing history: 5 filing years from 2020 to 2024
  • Contacts: How to reach this organization
  • Money network: 4 filed money-flow records
  • Related organizations: 3 filed related-organization links
  • Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
  • People: Everyone the filings name, and which of them the filings identify by more than a name.
  • Staff and benefit plans: Retirement and health plans the organization files with the Department of Labor, and the people in them.

Key Signals

Signals prioritize questions for review. They are not findings of misconduct.

  • High — Sustainability: Operating margin scored 1/100.
  • Review — Financial Efficiency: Fundraising efficiency scored 57/100.
  • Review — Accountability: Governance controls: 2 of 9 not reported.
  • Moderate — Sustainability: Officer compensation ratio scored 46/100.