Epilepsy Foundation of Connecticut Inc

Nonprofit profile at a glance

EIN
222535999
IRS 990 coverage
2010–2024
Forms available
Form 990 2024
Location
Middletown, CT, USA
Phone
8603461924
Rating
82
Verdict
STRONG
Rating confidence
Moderate
Sector
Health

Official website

Reported finances

Revenue
$699,473
Expenses
$716,921
Assets
$3,467,051
Liabilities
$79,547

Source: IRS Form 990. Selected filing: tax year 2024. Amounts in USD.

Leadership & pay

17 people listed

Executive titles in this filing

  • DENISE BROWER (PRESIDENT)

Highest reported compensation

  • CHERIE POIRIER (EXECUTIVE DI): $101,443 total reported compensation

Source: IRS Form 990. Selected filing: tax year 2024. Names and roles reflect this filing, not necessarily current officeholders.

Overview

Mission

The mission of the epilepsy foundation of Connecticut is to support people impacted by epilepsy through advocacy, education, programs and connections to ensure that they can live their best lives.

What it reported doing in 2024

The epilepsy foundation of Connecticut: provided information i.e. Brochures, medication information, legal rights, advocacy, etc. To clients. Conducted educational programs that served participants including school nurses, allied healthcare professionals, teachers, camp counselors, lifeguards, early childcare educators, other agency and employee training, senior citizens, transit companies, elementary school students, middle school students, high school students, police officers, and first responders. Hosted educational webinars with professionals providing information about various epilepsy related topics. Successfully advocated for emergency legislation expanding access to and reimbursement of telehealth services during the covid pandemic. Sponsored a camping program for children and teens with epilepsy. Managed a parent & family telephone support network. Managed a friend to friend telephone support network. Sponsored virtual support groups throughout Connecticut, serving dozens of people monthly. Provided transportation assistance for clients with epilepsy. Offered the halyn murtha family assistance fund to help people with epilepsy in need of financial assistance to cover the cost of epilepsy treatment, and care services associated with the condition. Enrolled clients in the hobscotch memory & cognition program. Enrolled clients in project uplift program that improved mental health through mindfulness and cognitive behavioral skills.

Operating model

Revenue model
Donor-supported. 70% of the money available for current operations came from contributions and gifts.
Distribution model
Direct operator. The filing allocates 100% of reported program-service expenses outside its grant, affiliate-payment, and member-benefit lines. This expense classification does not rule out separately announced grant awards.
  • Includes noncash contributions: Reported contributions include donated property or goods.

The verdict

STRONG - A large share of available resources goes toward mission work and the filed numbers largely add up. Fundraising costs are high for each dollar raised and some filing-based governance responses are negative or unanswered.

Rating breakdown

  • Financial Efficiency: 73
  • Transparency & Controls: 92
  • Accountability: 90
  • Sustainability: 48
  • Growth: 100

Detailed rating inputs

Financial Efficiency

  • Mission deployment rate: 89.6%; rating input score 90
  • Program expense ratio: 65%; rating input score 65
  • Fundraising efficiency: $3.37 raised per $1 spent on fundraising; rating input score 10; 10th percentile among comparable filings

Transparency & Controls

  • Consistency checks: 100%; rating input score 100; 63rd percentile among comparable filings
  • Pay-setting controls: Limited
  • Foreign activity oversight: Limited
  • Grant itemization coverage: Limited
  • Major donor itemization: Yes; rating input score 100
  • Related-party transparency: Limited

Accountability

  • Independent voting board: 100%; rating input score 100; 63rd percentile among comparable filings
  • Governance controls: 6 of 8 controls in place; rating input score 75
    • Conflict-of-interest policy: Pass
    • Whistleblower policy: Pass
    • Document-retention policy: Pass
    • CEO compensation review process: NotApplicable
    • Other executive compensation review process: Fail
    • Form 990 shared with the board: Fail
    • Board meeting minutes documented: Pass
    • Audit committee oversight: Pass
    • Independent financial-statement audit: Pass

Sustainability

  • Operating margin: -2.5%; rating input score 29; 29th percentile among comparable filings
  • Total-asset coverage ratio: 4.84; rating input score 84; 84th percentile among comparable filings
  • Liabilities to assets ratio: 0.02; rating input score 61; 61st percentile among comparable filings
  • Officer compensation ratio: 14.1%; rating input score 25; 25th percentile among comparable filings

Growth

  • Program expense growth: 5% per year; rating input score 100; 42nd percentile among comparable filings
  • Revenue growth: 2% per year; rating input score 100; 24th percentile among comparable filings
  • Asset growth: 12.1% per year; rating input score 100; 65th percentile among comparable filings

Details

  • Where the money goes: 89.6% of revenue deployed · 65% of spending went to programs
  • Governance: 15 of 15 board members independent · 6 of 8 filing controls reported
  • Programs: 1 filed program accomplishment · $466K in reported program spending
  • Leadership: top reported pay $101K · 17 people listed
  • Consistency: 34 of 34 current checks pass
  • Schedules: 7 filed schedules · includes major donors
  • Filing history: 15 filing years from 2010 to 2024
  • Contacts: How to reach this organization
  • Money network: 1 filed money-flow record
  • Related organizations: Filed and resolved organization relationships.
  • Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
  • People: Everyone the filings name, and which of them the filings identify by more than a name.

Key Signals

Signals prioritize questions for review. They are not findings of misconduct.

  • High — Financial Efficiency: Fundraising efficiency scored 10/100.
  • Review — Accountability: Governance controls: 2 of 8 not reported.
  • High — Sustainability: Operating margin scored 29/100.
  • High — Sustainability: Officer compensation ratio scored 25/100.