Epilepsy Foundation New England
Nonprofit profile at a glance
- EIN
- 222505819
- IRS 990 coverage
- 2011–2024
- Forms available
- Form 990 2024
- Location
- Lowell, MA, USA
- Phone
- 6175066041
- Rating
- 77
- Verdict
- SUPPORTED
- Rating confidence
- Moderate
Reported finances
- Revenue
- $7,486,018
- Expenses
- $6,800,011
- Assets
- $15,377,474
- Liabilities
- $1,533,044
Source: IRS Form 990. Selected filing: tax year 2024. Amounts in USD.
Leadership & pay
25 people listed
Executive titles in this filing
- SUSAN LINN (FORMER PRESIDENT & CEO - EFNE THRU MAY25)
- BRADLEY RICH (PRESIDENT - DC)
- KIMBERLEE SCHUMACHER (INTERIM-PRESIDENT & CEO BEGINNING JUN25)
Highest reported compensation
- SUSAN LINN (FORMER PRESIDENT & CEO - EFNE THRU MAY25): $298,029 total reported compensation
- BRADLEY RICH (PRESIDENT - DC): $271,079 total reported compensation
- JEFFREY GANZ (CHIEF OPERATING OFFICER -): $158,810 total reported compensation
Source: IRS Form 990. Selected filing: tax year 2024. Names and roles reflect this filing, not necessarily current officeholders.
Overview
Mission
To improve the lives of people affected by epilepsy through education, advocacy, research, and connection. Efne's services are designed to provide help for today and hope for tomorrow.
What it reported doing in 2024
Resource and support services: efne provides epilepsy resource rooms in about 13 hospitals across new england. Thousands of clients receive active listening and mentoring, education, and info/referrals. In fiscal year 2024, efne provided one-time grants of $50-$1,000 to 45 families affected by epilepsy and in financial crisis. Efne provides approximately 30 support groups per month, serving 400-500 people per year. Efne provides educational programs about epilepsy and seizure first aid to approximately 5,000 people per year, including school children, school personnel, first responders, parents and the general public. We maintain an online knowledge center and resource library.
Operating model
- Revenue model
- Earned-program. 66% of the money available for current operations came from fees and other program revenue.
- Distribution model
- Direct operator. The filing allocates 95% of reported program-service expenses outside its grant, affiliate-payment, and member-benefit lines. This expense classification does not rule out separately announced grant awards.
The verdict
SUPPORTED - The filed numbers largely add up and most voting board members are independent. A relatively small share of available resources goes toward mission work and fundraising costs are high for each dollar raised.
Rating breakdown
- Financial Efficiency: 55
- Transparency & Controls: 91
- Accountability: 100
- Sustainability: 58
- Growth: 100
Detailed rating inputs
Financial Efficiency
- Mission deployment rate: 57.4%; rating input score 57
- Program expense ratio: 67.6%; rating input score 68
- Fundraising efficiency: $1.42 raised per $1 spent on fundraising; rating input score 3; 3rd percentile among comparable filings
Transparency & Controls
- Consistency checks: 100%; rating input score 100; 63rd percentile among comparable filings
- Pay-setting controls: 5 of 6 controls in place; rating input score 83
- Compensation committee: Pass
- Independent consultant: Missing
- Other Form 990s reviewed: Pass
- Written employment contract: Pass
- Compensation survey or study: Pass
- Board or committee approval: Pass
- Foreign activity oversight: Limited
- Grant itemization coverage: 100%; rating input score 100; 72nd percentile among comparable filings
- Major donor itemization: Yes; rating input score 100
- Related-party transparency: Limited
Accountability
- Independent voting board: 100%; rating input score 100; 63rd percentile among comparable filings
- Governance controls: 9 of 9 controls in place; rating input score 100
- Conflict-of-interest policy: Pass
- Whistleblower policy: Pass
- Document-retention policy: Pass
- CEO compensation review process: Pass
- Other executive compensation review process: Pass
- Form 990 shared with the board: Pass
- Board meeting minutes documented: Pass
- Audit committee oversight: Pass
- Independent financial-statement audit: Pass
Sustainability
- Operating margin: 9.2%; rating input score 61; 61st percentile among comparable filings
- Total-asset coverage ratio: 2.26; rating input score 66; 66th percentile among comparable filings
- Liabilities to assets ratio: 0.1; rating input score 59; 59th percentile among comparable filings
- Officer compensation ratio: 10.3%; rating input score 29; 29th percentile among comparable filings
Growth
- Program expense growth: 1.3% per year; rating input score 100; 19th percentile among comparable filings
- Revenue growth: 4.4% per year; rating input score 100; 37th percentile among comparable filings
- Asset growth: 16.9% per year; rating input score 100; 78th percentile among comparable filings
Details
- Where the money goes: 57.4% of revenue deployed · 67.6% of spending went to programs
- Governance: 17 of 17 board members independent · 9 of 9 filing controls reported
- Programs: 3 filed program accomplishments · $4.6M in reported program spending
- Leadership: top reported pay $298K · 25 people listed · 5 of 6 pay-setting controls reported
- Highest-paid contractors: 1 contractor listed · $124K reported
- Consistency: 33 of 33 current checks pass
- Schedules: 9 filed schedules · includes major donors, grants, and executive pay
- Filing history: 12 filing years from 2011 to 2024
- Contacts: How to reach this organization
- Money network: 6 filed money-flow records
- Related organizations: 3 filed related-organization links
- Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
- People: Everyone the filings name, and which of them the filings identify by more than a name.
- Staff and benefit plans: Retirement and health plans the organization files with the Department of Labor, and the people in them.
Key Signals
Signals prioritize questions for review. They are not findings of misconduct.
- Review — Financial Efficiency: Mission deployment rate scored 57/100.
- High — Financial Efficiency: Fundraising efficiency scored 3/100.
- High — Sustainability: Officer compensation ratio scored 29/100.
- Review — Sustainability: Liabilities to assets ratio scored 59/100.