Epilepsy Association
Nonprofit profile at a glance
- EIN
- 237198807
- IRS 990 coverage
- 2010–2024
- Forms available
- Form 990 2024
- Location
- Cleveland, OH, USA
- Phone
- 2165791330
- Rating
- 79
- Verdict
- SUPPORTED
- Rating confidence
- Moderate
- Sector
- Health
Reported finances
- Revenue
- $641,757
- Expenses
- $690,816
- Assets
- $1,371,554
- Liabilities
- $80,871
Source: IRS Form 990. Selected filing: tax year 2024. Amounts in USD.
Leadership & pay
31 people listed
Executive titles in this filing
- SARAH SALISBURY (VICE PRESIDENT)
- MARK HOLCOMB (PRESIDENT)
- PATRICIA VARANESE (EXECUTIVE DIRECTOR)
Highest reported compensation
- PATRICIA VARANESE (EXECUTIVE DIRECTOR): $93,396 total reported compensation
Source: IRS Form 990. Selected filing: tax year 2024. Names and roles reflect this filing, not necessarily current officeholders.
Overview
Mission
Epilepsey association raises awareness for children, adults and families in northeast Ohio that are impacted by epilepsy in the community, provide education, advocacy and direct services thatlead to an increased understanding of the disorder and to better management of the condition, resilience, personal fulfillment, independence and the ability to contribute meaningfully to the community.
What it reported doing in 2024
Patient services: the association provides community case management and mental health assessment services to adult clients who are affected by epilepsy. Clients meet with agency case managers to create an individualized service plans. Plans are established to assist clients in meeting identified goals. An emphasis is placed on consumer choice, maintaining medical stability, and improving the quality of life for clients. In 2024, there were on average 72 adults who received case management and other social services.
Operating model
- Revenue model
- Donor-supported. 66% of the money available for current operations came from contributions and gifts.
- Distribution model
- Direct operator. The filing allocates 100% of reported program-service expenses outside its grant, affiliate-payment, and member-benefit lines. This expense classification does not rule out separately announced grant awards.
- Includes noncash contributions: Reported contributions include donated property or goods.
The verdict
SUPPORTED - A large share of available resources goes toward mission work and the filed numbers largely add up. Fundraising costs are high for each dollar raised and program spending has declined or grown slowly.
Rating breakdown
- Financial Efficiency: 70
- Transparency & Controls: 92
- Accountability: 95
- Sustainability: 37
- Growth: 60
Detailed rating inputs
Financial Efficiency
- Mission deployment rate: 79.3%; rating input score 79
- Program expense ratio: 71.5%; rating input score 72
- Fundraising efficiency: $4.53 raised per $1 spent on fundraising; rating input score 15; 15th percentile among comparable filings
Transparency & Controls
- Consistency checks: 100%; rating input score 100; 63rd percentile among comparable filings
- Pay-setting controls: Limited
- Foreign activity oversight: Limited
- Grant itemization coverage: Limited
- Major donor itemization: Yes; rating input score 100
- Related-party transparency: Limited
Accountability
- Independent voting board: 100%; rating input score 100; 63rd percentile among comparable filings
- Governance controls: 7 of 8 controls in place; rating input score 88
- Conflict-of-interest policy: Pass
- Whistleblower policy: Pass
- Document-retention policy: Pass
- CEO compensation review process: Pass
- Other executive compensation review process: NotApplicable
- Form 990 shared with the board: Fail
- Board meeting minutes documented: Pass
- Audit committee oversight: Pass
- Independent financial-statement audit: Pass
Sustainability
- Operating margin: -7.6%; rating input score 20; 20th percentile among comparable filings
- Total-asset coverage ratio: 1.99; rating input score 64; 64th percentile among comparable filings
- Liabilities to assets ratio: 0.06; rating input score 50; 50th percentile among comparable filings
- Officer compensation ratio: 13.5%; rating input score 26; 26th percentile among comparable filings
Growth
- Program expense growth: -0.1% per year; rating input score 0; 18th percentile among comparable filings
- Revenue growth: 1.1% per year; rating input score 100; 19th percentile among comparable filings
- Asset growth: 2.8% per year; rating input score 100; 29th percentile among comparable filings
Details
- Where the money goes: 79.3% of revenue deployed · 71.5% of spending went to programs
- Governance: 30 of 30 board members independent · 7 of 8 filing controls reported
- Programs: 3 filed program accomplishments · $494K in reported program spending
- Leadership: top reported pay $93K · 31 people listed
- Consistency: 33 of 33 current checks pass
- Schedules: 6 filed schedules · includes major donors
- Filing history: 14 filing years from 2010 to 2024
- Contacts: How to reach this organization
- Money network: 1 filed money-flow record
- Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
- People: Everyone the filings name, and which of them the filings identify by more than a name.
- Staff and benefit plans: Retirement and health plans the organization files with the Department of Labor, and the people in them.
Key Signals
Signals prioritize questions for review. They are not findings of misconduct.
- High — Financial Efficiency: Fundraising efficiency scored 15/100.
- High — Growth: Program expense growth scored 0/100.
- High — Sustainability: Operating margin scored 20/100.
- Review — Accountability: Governance controls: Form 990 shared with the board not reported.
- High — Sustainability: Officer compensation ratio scored 26/100.
- Review — Sustainability: Liabilities to assets ratio scored 50/100.