Eastern PA Down Syndrome Center
Legal name: Eastern Pennsylvania Down Syndrome Center
Nonprofit profile at a glance
- EIN
- 232828404
- IRS 990 coverage
- 2013–2024
- Official website data refreshed
- Sep 2026
- Forms available
- Form 990 2024
- Location
- Bethlehem, PA, US
- Phone
- 484-224-5288
- Rating
- 55
- Verdict
- MIXED
- Rating confidence
- Moderate
- Sector
- Birth Defects, Genetic Diseases Research
Reported finances
- Revenue
- $193,149
- Expenses
- $129,198
- Assets
- $499,028
- Liabilities
- $0
Source: IRS Form 990. Selected filing: tax year 2024. Amounts in USD.
Leadership & pay
8 people listed
Executive titles in this filing
- BRIAN PAUGH (PRESIDENT)
People named in this filing
- BRIAN PAUGH (PRESIDENT)
- PETER IORIO (TREASURER)
- BRYAN MELTZER (BOARD MEMBER)
Selected names, not a complete roster or a statement of current roles. Open leadership details for the complete filed list.
Source: IRS Form 990. Selected filing: tax year 2024. Names and roles reflect this filing, not necessarily current officeholders.
Overview
Mission
To be a positive influence, respected resource, fierce advocate and dedicated support system for individuals with Down syndrome and their families, educators, healthcare professionals and the community as a whole.
What it reported doing in 2024
Scholarships - The Center offers two scholarships to empower the community. The Bryan Meltzer Rise Up Scholarship - The goal is to award these scholarships in support of unique and meaningful opportunities that go beyond everyday expenses. The Dr Donald Levick Lighting the Way Scholarship - This scholarship is designed to support siblings or immediate family members of individuals with Down syndrome who are pursuing degrees in medical or therapeutic fields that support individuals with Down syndrome.
Operating model
- Revenue model
- Donor-supported. 85% of the money available for current operations came from contributions and gifts.
- Distribution model
- Direct operator. The filing allocates 96% of reported program-service expenses outside its grant, affiliate-payment, and member-benefit lines. This expense classification does not rule out separately announced grant awards.
The verdict
MIXED - The filed numbers largely add up and most voting board members are independent. A relatively small share of available resources goes toward mission work and the filing does not identify recipients for some grant dollars.
Rating breakdown
- Financial Efficiency: 39
- Transparency & Controls: 64
- Accountability: 64
- Sustainability: 79
- Growth: 60
Detailed rating inputs
Financial Efficiency
- Mission deployment rate: 36.1%; rating input score 36
- Program expense ratio: 50.2%; rating input score 50
- Fundraising efficiency: $4.31 raised per $1 spent on fundraising; rating input score 19; 19th percentile among comparable filings
Transparency & Controls
- Consistency checks: 91.7%; rating input score 92; 19th percentile among comparable filings
- Pay-setting controls: Limited
- Foreign activity oversight: Limited
- Grant itemization coverage: 0%; rating input score 0; 19th percentile among comparable filings
- Major donor itemization: Yes; rating input score 100
- Related-party transparency: Limited
Accountability
- Independent voting board: 100%; rating input score 100; 63rd percentile among comparable filings
- Governance controls: 1 of 7 controls in place; rating input score 14
- Conflict-of-interest policy: Fail
- Whistleblower policy: Fail
- Document-retention policy: Fail
- CEO compensation review process: NotApplicable
- Other executive compensation review process: NotApplicable
- Form 990 shared with the board: Fail
- Board meeting minutes documented: Pass
- Audit committee oversight: Fail
- Independent financial-statement audit: Fail
Sustainability
- Operating margin: 33.1%; rating input score 84; 84th percentile among comparable filings
- Total-asset coverage ratio: 3.86; rating input score 74; 74th percentile among comparable filings
- Liabilities to assets ratio: 0; rating input score 80; 80th percentile among comparable filings
- Officer compensation ratio: 0%; rating input score 69; 69th percentile among comparable filings
Growth
- Program expense growth: 0.1% per year; rating input score 100; 31st percentile among comparable filings
- Revenue growth: -1.7% per year; rating input score 0; 18th percentile among comparable filings
- Asset growth: 2% per year; rating input score 100; 33rd percentile among comparable filings
Details
- What they do: 13 programs and campaigns described on the official site · 4 operating locations identified
- Where the money goes: 36.1% of revenue deployed · 50.2% of spending went to programs
- Governance: 8 of 8 board members independent · 1 of 7 filing controls reported
- Programs: 4 filed program accomplishments · $65K in reported program spending
- Leadership: top reported pay $0 · 8 people listed
- Consistency: 22 of 24 current checks pass · 2 findings to review
- Schedules: 5 filed schedules · includes major donors and grants
- Filing history: 11 filing years from 2013 to 2024
- Contacts: How to reach this organization
- Money network: Resolved incoming and outgoing counterparties from filed money flows.
- Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
- People: Everyone the filings name, and which of them the filings identify by more than a name.
Key Signals
Signals prioritize questions for review. They are not findings of misconduct.
- Moderate — Financial Efficiency: Mission deployment rate scored 36/100.
- High — Transparency & Controls: Grant itemization coverage scored 0/100.
- High — Accountability: Governance controls: 6 of 7 not reported.
- Review — Financial Efficiency: Program expense ratio scored 50/100.
- High — Financial Efficiency: Fundraising efficiency scored 19/100.
- High — Growth: Revenue growth scored 0/100.
- Moderate — Transparency & Controls: Schedule A contributions reconciliation did not reconcile in the filed values.
- Review — Transparency & Controls: Domestic grant itemization did not reconcile in the filed values.