Dysphonia International Inc
Nonprofit profile at a glance
- EIN
- 863907079
- IRS 990 coverage
- 2022–2025
- Forms available
- Form 990 2025, Form 990-N 2021
- Location
- Itasca, IL, USA
- Phone
- 6302504504
- Rating
- 82
- Verdict
- STRONG
- Rating confidence
- Moderate
- Sector
- Diseases of Specific Organs
Reported finances
- Revenue
- $721,322
- Expenses
- $484,521
- Assets
- $3,589,818
- Liabilities
- $27,571
Source: IRS Form 990. Selected filing: tax year 2025. Amounts in USD.
Leadership & pay
13 people listed
Executive titles in this filing
- CHARLIE REAVIS (PRESIDENT)
Highest reported compensation
- KIMBERLY KUMAN (EXECUTIVE DI): $103,750 total reported compensation
Source: IRS Form 990. Selected filing: tax year 2025. Names and roles reflect this filing, not necessarily current officeholders.
Overview
Mission
Dysphonia international is dedicated to improving the lives of people affected with spasmodic dysphonia and related voice conditions through research, education, awareness and support. While these disorders are not life-threatening, they are life-altering and can impact every facet of a person's life. Our community of volunteers, healthcare professionals, researchers, families, and individuals works together to provide connection, support, and a shared path forward, helping those affected by voice disorders overcome adversity and thrive in a community that cares about them and their voice.
What it reported doing in 2025
Education and awareness efforts continued to expand throughout the year. Dysphonia international hosted a successful symposium in phoenix, az, exhibited at three professional voice conferences, and presented to a group of 70 laryngology fellows at the fall voice conference. The annual issue of the our voice newsletter was published. In celebration of world voice day, the organization launched an awareness campaign highlighting the theme empower your voice dysphonia international also attended advocacy day with the dystonia advocacy network. Through the guest speaker program, 23 presentations were coordinated for undergraduate and graduate-level speech-language pathology students. The organization also participated in interviews across 20 podcast episodes on different podcasts. The 6th annual walk for talk brought together worldwide participation through 27 in-person events, including seven first-time walks. The community raised a record 130,915, which was matched to total 261,830 in support of research and programs.
Operating model
- Revenue model
- Donor-supported. 79% of the money available for current operations came from contributions and gifts.
- Distribution model
- Direct operator. The filing allocates 84% of reported program-service expenses outside its grant, affiliate-payment, and member-benefit lines. This expense classification does not rule out separately announced grant awards.
The verdict
STRONG - The filed numbers largely add up and a large share of available resources goes toward mission work. Fundraising costs are high for each dollar raised and some filing-based governance responses are negative or unanswered.
Rating breakdown
- Financial Efficiency: 65
- Transparency & Controls: 94
- Accountability: 95
- Sustainability: 74
- Growth: 100
Detailed rating inputs
Financial Efficiency
- Mission deployment rate: 61.6%; rating input score 62
- Program expense ratio: 78.3%; rating input score 78
- Fundraising efficiency: $13.96 raised per $1 spent on fundraising; rating input score 45; 45th percentile among comparable filings
Transparency & Controls
- Consistency checks: 100%; rating input score 100; 63rd percentile among comparable filings
- Pay-setting controls: Limited
- Foreign activity oversight: Limited
- Grant itemization coverage: 100%; rating input score 100; 78th percentile among comparable filings
- Major donor itemization: Yes; rating input score 100
- Related-party transparency: Limited
Accountability
- Independent voting board: 100%; rating input score 100; 64th percentile among comparable filings
- Governance controls: 7 of 8 controls in place; rating input score 88
- Conflict-of-interest policy: Pass
- Whistleblower policy: Pass
- Document-retention policy: Pass
- CEO compensation review process: NotApplicable
- Other executive compensation review process: Fail
- Form 990 shared with the board: Pass
- Board meeting minutes documented: Pass
- Audit committee oversight: Pass
- Independent financial-statement audit: Pass
Sustainability
- Operating margin: 32.8%; rating input score 83; 83rd percentile among comparable filings
- Total-asset coverage ratio: 7.41; rating input score 89; 89th percentile among comparable filings
- Liabilities to assets ratio: 0.01; rating input score 62; 62nd percentile among comparable filings
- Officer compensation ratio: 21.4%; rating input score 14; 14th percentile among comparable filings
Growth
- Program expense growth: 2.9% per year; rating input score 100; 26th percentile among comparable filings
- Revenue growth: 13.5% per year; rating input score 100; 71st percentile among comparable filings
- Asset growth: 5% per year; rating input score 100; 35th percentile among comparable filings
Details
- Where the money goes: 61.6% of revenue deployed · 78.3% of spending went to programs
- Governance: 12 of 12 board members independent · 7 of 8 filing controls reported
- Programs: 3 filed program accomplishments · $379K in reported program spending
- Leadership: top reported pay $104K · 13 people listed
- Consistency: 28 of 28 current checks pass
- Schedules: 5 filed schedules · includes major donors and grants
- Filing history: 4 filing years from 2022 to 2025
- Contacts: How to reach this organization
- Money network: 2 filed money-flow records
- Related organizations: Filed and resolved organization relationships.
- Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
- People: Everyone the filings name, and which of them the filings identify by more than a name.
Key Signals
Signals prioritize questions for review. They are not findings of misconduct.
- Moderate — Financial Efficiency: Fundraising efficiency scored 45/100.
- Review — Accountability: Governance controls: Other executive compensation review process not reported.
- High — Sustainability: Officer compensation ratio scored 14/100.