Down Syndrome Innovations

Nonprofit profile at a glance

EIN
431427760
IRS 990 coverage
2012–2024
Forms available
Form 990 2024
Location
Shawnee Mission, KS, USA
Phone
9133844848
Rating
72
Verdict
SUPPORTED
Rating confidence
Moderate

Official website

Reported finances

Revenue
$1,978,318
Expenses
$2,244,514
Assets
$3,698,214
Liabilities
$1,638,953

Source: IRS Form 990. Selected filing: tax year 2024. Amounts in USD.

Leadership & pay

11 people listed

Executive titles in this filing

  • MIKE FRAZER (PRESIDENT)

Highest reported compensation

  • JASON DRUMMOND (CHIEF EXECUT): $228,750 total reported compensation
  • AMY STOLL (CHIEF DEVELO): $99,304 total reported compensation

Source: IRS Form 990. Selected filing: tax year 2024. Names and roles reflect this filing, not necessarily current officeholders.

Overview

Mission

Mission is to provided support and resouces for individuals with down syndrome, their families and the professionals who serve them. Dsi seeks to provide the entire community with information and education to broaden awareness and foster positive attitudes regarding people with down syndrome. Dsi currently serves 37 counties in Kansas and Missouri. We provide support to over 1600 individuals with down syndrome.

What it reported doing in 2024

Public awareness - dsi welcomes 50-60 new babies and their families each year. Our parent-to-parent program provides a welcome basket, quarterly support breakfasts and parent-to-parent matches. Our bi-monthly connections newsletter is distributed to 3,500 households and contains upcoming events, community group activities, and up-to-date articles on medical or educational best practices for people with down syndrome. Dsi supports 14 community groups to host 8-10 activities in their immediate geographical region to connect members on a smaller scale. Throughout the year, dsi facilitates awareness initiatives in schools and in the community often showing just liike you-down syndrome film, to foster positive attitudes and educate individuals about down syndrome. Should any of our members experience an overnight stay in the hospital, dsi provides a 50 meal voucher to support costs associated with the stay. Members can show support of the dsi brand by purchasing branded items to generate awareness within their community. All of these programs and others are shared in detail in the dsi annual report.

Operating model

Revenue model
Donor-supported. 63% of the money available for current operations came from contributions and gifts.
Distribution model
Direct operator. The filing allocates 100% of reported program-service expenses outside its grant, affiliate-payment, and member-benefit lines. This expense classification does not rule out separately announced grant awards.
  • Includes noncash contributions: Reported contributions include donated property or goods.

The verdict

SUPPORTED - A large share of available resources goes toward mission work and the filed numbers largely add up. Fundraising costs are high for each dollar raised and expenses are high relative to revenue.

Rating breakdown

  • Financial Efficiency: 64
  • Transparency & Controls: 70
  • Accountability: 95
  • Sustainability: 29
  • Growth: 100

Detailed rating inputs

Financial Efficiency

  • Mission deployment rate: 70.8%; rating input score 71
  • Program expense ratio: 62.1%; rating input score 62
  • Fundraising efficiency: $9.96 raised per $1 spent on fundraising; rating input score 38; 38th percentile among comparable filings

Transparency & Controls

  • Consistency checks: 100%; rating input score 100; 63rd percentile among comparable filings
  • Pay-setting controls: 1 of 6 controls in place; rating input score 17
    • Compensation committee: Missing
    • Independent consultant: Missing
    • Other Form 990s reviewed: Missing
    • Written employment contract: Missing
    • Compensation survey or study: Missing
    • Board or committee approval: Pass
  • Foreign activity oversight: Limited
  • Grant itemization coverage: Limited
  • Major donor itemization: Yes; rating input score 100
  • Related-party transparency: Limited

Accountability

  • Independent voting board: 100%; rating input score 100; 63rd percentile among comparable filings
  • Governance controls: 7 of 8 controls in place; rating input score 88
    • Conflict-of-interest policy: Pass
    • Whistleblower policy: Pass
    • Document-retention policy: Pass
    • CEO compensation review process: NotApplicable
    • Other executive compensation review process: Fail
    • Form 990 shared with the board: Pass
    • Board meeting minutes documented: Pass
    • Audit committee oversight: Pass
    • Independent financial-statement audit: Pass

Sustainability

  • Operating margin: -13.5%; rating input score 14; 14th percentile among comparable filings
  • Total-asset coverage ratio: 1.65; rating input score 59; 59th percentile among comparable filings
  • Liabilities to assets ratio: 0.44; rating input score 18; 18th percentile among comparable filings
  • Officer compensation ratio: 14.6%; rating input score 24; 24th percentile among comparable filings

Growth

  • Program expense growth: 9.7% per year; rating input score 100; 62nd percentile among comparable filings
  • Revenue growth: 8.5% per year; rating input score 100; 61st percentile among comparable filings
  • Asset growth: 11% per year; rating input score 100; 62nd percentile among comparable filings

Details

  • Where the money goes: 70.8% of revenue deployed · 62.1% of spending went to programs
  • Governance: 9 of 9 board members independent · 7 of 8 filing controls reported
  • Programs: 4 filed program accomplishments · $1.4M in reported program spending
  • Leadership: top reported pay $229K · 11 people listed · 1 of 6 pay-setting controls reported
  • Consistency: 34 of 34 current checks pass
  • Schedules: 8 filed schedules · includes major donors and executive pay
  • Filing history: 12 filing years from 2012 to 2024
  • Contacts: How to reach this organization
  • Money network: 2 filed money-flow records
  • Related organizations: 2 filed related-organization links
  • Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
  • People: Everyone the filings name, and which of them the filings identify by more than a name.

Key Signals

Signals prioritize questions for review. They are not findings of misconduct.

  • Moderate — Financial Efficiency: Fundraising efficiency scored 38/100.
  • High — Sustainability: Operating margin scored 14/100.
  • Review — Accountability: Governance controls: Other executive compensation review process not reported.
  • Review — Sustainability: Total-asset coverage ratio scored 59/100.
  • High — Sustainability: Liabilities to assets ratio scored 18/100.
  • High — Sustainability: Officer compensation ratio scored 24/100.