Down Syndrome Indiana Inc

What it reported doing in 2025

New parent packets - down syndrome Indiana provides comprehensive parent packets that contain a wealth of information to parents that have a newborn with down syndrome or have just learned of the diagnosis before their child is born. These packets are distributed to the families upon request or through local hospitals. A spanish version of the new parent packet is also available! There were 126 new parent packets distributed in 2025.community support groups - down syndrome Indiana recognizes that there are varied interests among the down syndrome community. Examples include geographical considerations, cultural considerations, educational considerations, and age considerations. Down syndrome Indiana recognizes the benefits of a community group among these families. Community groups include: dsi cass area down syndrome ("cads"), dsi cuenta conmigo, dsi dads appreciating down syndrome ("dads"), dsi lafayette, dsi terre haute, dsi east central playgroup, dsi mom's night out, dsi self-advocates, dsi teens, dsi Delaware county/muncie area, dsi black family village, dsi babies and toddlers, dsi southside, and dsi westside.first call - first call volunteers make a difference in lives by serving as the first point of contact with a new family. A first call parent is trained in empathetic listening skills and is a new parent's first look at what life with a child with down syndrome is like.medical outreach - the goal is to build relationships of trust and respect between medical providers and the down syndrome community. Provide accurate and up-to-date information about down syndrome to medical providers.dsi pathways to learning - the dsi pathways to learning program provides direct services through the community and was developed to supplement traditional education in reading and math through direct instruction and materials for students with down syndrome or other developmental disabilities. This program includes programming, educational advocacy, parent workshops, and family sessions. Awareness presentations - down syndrome Indiana representatives spoke to 2,100 people in 2025 through down syndrome awareness presentations. We speak to k-12 students, college students, medical professionals, service providers, and corporate partners and organizations.during 2025, down syndrome Indiana was able to reach 3,107 parents and 1,600 individuals with down syndrome through their programming.

Financial Efficiency

• Mission deployment rate: 71%; rating input score 71
• Program expense ratio: 78.1%; rating input score 78
• Fundraising efficiency: $5.57 raised per $1 spent on fundraising; rating input score 23; 23rd percentile among comparable filings

Transparency & Controls

• Consistency checks: 94.1%; rating input score 94; 27th percentile among comparable filings
• Pay-setting controls: Limited
• Foreign activity oversight: Limited
• Grant itemization coverage: Limited
• Major donor itemization: Yes; rating input score 100
• Related-party transparency: Limited

Accountability

• Independent voting board: 100%; rating input score 100; 64th percentile among comparable filings
• Governance controls: 6 of 8 controls in place; rating input score 75
  • Conflict-of-interest policy: Pass
  • Whistleblower policy: Fail
  • Document-retention policy: Pass
  • CEO compensation review process: Pass
  • Other executive compensation review process: NotApplicable
  • Form 990 shared with the board: Pass
  • Board meeting minutes documented: Pass
  • Audit committee oversight: Fail
  • Independent financial-statement audit: Pass

Sustainability

• Operating margin: 10.2%; rating input score 57; 57th percentile among comparable filings
• Total-asset coverage ratio: 2.52; rating input score 65; 65th percentile among comparable filings
• Liabilities to assets ratio: 0.04; rating input score 30; 30th percentile among comparable filings
• Officer compensation ratio: 16.4%; rating input score 22; 22nd percentile among comparable filings

Growth

• Program expense growth: -0.6% per year; rating input score 0; 26th percentile among comparable filings
• Revenue growth: 2.9% per year; rating input score 100; 36th percentile among comparable filings
• Asset growth: 9.3% per year; rating input score 100; 61st percentile among comparable filings