Down Syndrome Community of Puget Sound

Nonprofit profile at a glance

EIN
911565600
IRS 990 coverage
2019–2024
Forms available
Form 990 2024, Form 990-EZ 2018
Location
Seattle, WA, USA
Phone
2062577191
Rating
56
Verdict
MIXED
Rating confidence
Moderate
Sector
Developmentally Disabled Centers

Official website

Reported finances

Revenue
$690,084
Expenses
$790,398
Assets
$975,469
Liabilities
$12,860

Source: IRS Form 990. Selected filing: tax year 2024. Amounts in USD.

Leadership & pay

13 people listed

Executive titles in this filing

  • Jeffery Wells (Vice President)
  • Jimmie Lee (President)

Highest reported compensation

  • Rosie van Coevorden (Executive Dir.): $125,000 total reported compensation

Source: IRS Form 990. Selected filing: tax year 2024. Names and roles reflect this filing, not necessarily current officeholders.

Overview

Mission

DSC's mission is to empower people with down syndrome and their families through life-long learning and experiences, while building an accepting and inclusive society.

What it reported doing in 2024

Host family and community social events across the Puget Sound region, providing a supportive, non-judgemental environment for people with down syndrome, their families and friends, facilitating communication between families with similar experiences. Community activities include holiday party, fashion show, picnic, sweetheart dance, spring fling, megarama day and "Trunk or Treat". New parent packets are made available to local hospitals to educate parents about care of and services available for babies with down syndrome.Sponsor the annual Puget Sound Buddy Walk, an event where approximately 1300 people with down syndrome, family, friends, educators, therapists, legislators and community leaders promote advocacy, awareness and networking around down syndrome.Learning program designed to teach childrent with down syndrome and their parents skill development for literacy, math, language and fine motor skills. This program is designed to supplement traditional education, focusing on parents as the first teachers for their children.

Operating model

Revenue model
Donor-supported. 92% of the money available for current operations came from contributions and gifts.
Distribution model
Direct operator. The filing allocates 100% of reported program-service expenses outside its grant, affiliate-payment, and member-benefit lines. This expense classification does not rule out separately announced grant awards.

The verdict

MIXED - The filed numbers largely add up and program spending has grown recently. A relatively small share of available resources goes toward mission work and a relatively small share of total spending goes to programs.

Rating breakdown

  • Financial Efficiency: 27
  • Transparency & Controls: 90
  • Accountability: 58
  • Sustainability: 31
  • Growth: 100

Detailed rating inputs

Financial Efficiency

  • Mission deployment rate: 32.7%; rating input score 33
  • Program expense ratio: 25.1%; rating input score 25
  • Fundraising efficiency: Limited

Transparency & Controls

  • Consistency checks: 100%; rating input score 100; 63rd percentile among comparable filings
  • Pay-setting controls: Limited
  • Foreign activity oversight: Limited
  • Grant itemization coverage: Limited
  • Major donor itemization: Limited
  • Related-party transparency: Limited

Accountability

  • Independent voting board: 100%; rating input score 100; 63rd percentile among comparable filings
  • Governance controls: 0 of 8 controls in place; rating input score 0
    • Conflict-of-interest policy: Fail
    • Whistleblower policy: Fail
    • Document-retention policy: Fail
    • CEO compensation review process: NotApplicable
    • Other executive compensation review process: Fail
    • Form 990 shared with the board: Fail
    • Board meeting minutes documented: Fail
    • Audit committee oversight: Missing
    • Independent financial-statement audit: Fail

Sustainability

  • Operating margin: -14.5%; rating input score 13; 13th percentile among comparable filings
  • Total-asset coverage ratio: 1.23; rating input score 50; 50th percentile among comparable filings
  • Liabilities to assets ratio: 0.01; rating input score 66; 66th percentile among comparable filings
  • Officer compensation ratio: 15.8%; rating input score 21; 21st percentile among comparable filings

Growth

  • Program expense growth: 19.2% per year; rating input score 100; 81st percentile among comparable filings
  • Revenue growth: 23.7% per year; rating input score 100; 89th percentile among comparable filings
  • Asset growth: 16.3% per year; rating input score 100; 75th percentile among comparable filings

Details

  • Where the money goes: 32.7% of revenue deployed · 25.1% of spending went to programs
  • Governance: 20 of 20 board members independent · 0 of 8 filing controls reported
  • Programs: 1 filed program accomplishment · $198K in reported program spending
  • Leadership: top reported pay $125K · 13 people listed
  • Consistency: 26 of 26 current checks pass
  • Schedules: 3 filed schedules
  • Filing history: 5 filing years from 2019 to 2024
  • Contacts: How to reach this organization
  • Money network: 1 filed money-flow record
  • Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
  • People: Everyone the filings name, and which of them the filings identify by more than a name.
  • Staff and benefit plans: Retirement and health plans the organization files with the Department of Labor, and the people in them.

Key Signals

Signals prioritize questions for review. They are not findings of misconduct.

  • Moderate — Financial Efficiency: Mission deployment rate scored 33/100.
  • High — Financial Efficiency: Program expense ratio scored 25/100.
  • High — Accountability: Governance controls: 7 of 7 not reported.
  • High — Sustainability: Operating margin scored 13/100.
  • Review — Sustainability: Total-asset coverage ratio scored 50/100.
  • High — Sustainability: Officer compensation ratio scored 21/100.