Down Syndrome Association of Minnesota
Nonprofit profile at a glance
- EIN
- 411631873
- IRS 990 coverage
- 2010–2024
- Forms available
- Form 990 2024
- Location
- Saint Paul, MN, USA
- Phone
- 6516030720
- Rating
- 78
- Verdict
- SUPPORTED
- Rating confidence
- Moderate
- Sector
- Health
Reported finances
- Revenue
- $885,400
- Expenses
- $888,948
- Assets
- $335,328
- Liabilities
- $91,261
Source: IRS Form 990. Selected filing: tax year 2024. Amounts in USD.
Leadership & pay
15 people listed
Executive titles in this filing
- Cora Holland-Koller (Vice President)
- Michele Olson (Vice President)
Highest reported compensation
- Sarah Curfman (Executive Dir.): $113,000 total reported compensation
Source: IRS Form 990. Selected filing: tax year 2024. Names and roles reflect this filing, not necessarily current officeholders.
Overview
Mission
It is the mission of down syndrome association of Minnesota to empower individuals and families, to create community and celebrate the abilities of people with down syndrome our v ision is for all people with down syndrome to achieve their fullest potential in an accepting and inclusive community.
What it reported doing in 2024
Family Connector Program served 332 and an additional 64 families through the emergency financial assistance program. Reached more than 33,432 students through our World Down Syndrome Day and 4,900 people for Step Up for Down Syndrome awareness events. Served 596 through our Parent Support Group programs and an additional 66 parents who welcomed a new child with Ds in 2024. Provided direct services programs and community family engagement events to 1351 individuals with Down syndrome and their families including 494 individuals with Down syndrome. We continued to help 38 families of transition age 14-23 work through necessary requirements turning to an adult and ending school. DSAMn began working with three different clinics in the metro area in 2024.
Operating model
- Revenue model
- Mixed. Its operating money came from several sources; no one source provided a clear majority.
- Distribution model
- Direct operator. The filing allocates 96% of reported program-service expenses outside its grant, affiliate-payment, and member-benefit lines. This expense classification does not rule out separately announced grant awards.
The verdict
SUPPORTED - A large share of available resources goes toward mission work and the filed numbers largely add up. Fundraising costs are high for each dollar raised and some filing-based governance responses are negative or unanswered.
Rating breakdown
- Financial Efficiency: 68
- Transparency & Controls: 90
- Accountability: 90
- Sustainability: 28
- Growth: 80
Detailed rating inputs
Financial Efficiency
- Mission deployment rate: 75.3%; rating input score 75
- Program expense ratio: 74.9%; rating input score 75
- Fundraising efficiency: $4.13 raised per $1 spent on fundraising; rating input score 13; 13th percentile among comparable filings
Transparency & Controls
- Consistency checks: 94.1%; rating input score 94; 25th percentile among comparable filings
- Pay-setting controls: Limited
- Foreign activity oversight: Limited
- Grant itemization coverage: 100%; rating input score 100; 76th percentile among comparable filings
- Major donor itemization: Yes; rating input score 100
- Related-party transparency: Limited
Accountability
- Independent voting board: 100%; rating input score 100; 63rd percentile among comparable filings
- Governance controls: 6 of 8 controls in place; rating input score 75
- Conflict-of-interest policy: Pass
- Whistleblower policy: Pass
- Document-retention policy: Pass
- CEO compensation review process: NotApplicable
- Other executive compensation review process: Fail
- Form 990 shared with the board: Pass
- Board meeting minutes documented: Pass
- Audit committee oversight: Fail
- Independent financial-statement audit: Pass
Sustainability
- Operating margin: -0.4%; rating input score 34; 34th percentile among comparable filings
- Total-asset coverage ratio: 0.38; rating input score 18; 18th percentile among comparable filings
- Liabilities to assets ratio: 0.27; rating input score 26; 26th percentile among comparable filings
- Officer compensation ratio: 12.7%; rating input score 29; 29th percentile among comparable filings
Growth
- Program expense growth: 7.6% per year; rating input score 100; 54th percentile among comparable filings
- Revenue growth: 4.6% per year; rating input score 100; 41st percentile among comparable filings
- Asset growth: -5.8% per year; rating input score 0; 6th percentile among comparable filings
Details
- Where the money goes: 75.3% of revenue deployed · 74.9% of spending went to programs
- Governance: 15 of 15 board members independent · 6 of 8 filing controls reported
- Programs: 1 filed program accomplishment · $666K in reported program spending
- Leadership: top reported pay $113K · 15 people listed
- Consistency: 34 of 35 current checks pass · 1 finding to review
- Schedules: 6 filed schedules · includes major donors and grants
- Filing history: 12 filing years from 2010 to 2024
- Contacts: How to reach this organization
- Money network: 1 filed money-flow record
- Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
- People: Everyone the filings name, and which of them the filings identify by more than a name.
Key Signals
Signals prioritize questions for review. They are not findings of misconduct.
- High — Financial Efficiency: Fundraising efficiency scored 13/100.
- Review — Accountability: Governance controls: 2 of 8 not reported.
- Moderate — Sustainability: Operating margin scored 34/100.
- High — Sustainability: Total-asset coverage ratio scored 18/100.
- High — Growth: Asset growth scored 0/100.
- Moderate — Transparency & Controls: Schedule A contributions reconciliation did not reconcile in the filed values.
- High — Sustainability: Liabilities to assets ratio scored 26/100.
- High — Sustainability: Officer compensation ratio scored 29/100.