Disability Lead

Nonprofit profile at a glance

EIN
841895211
IRS 990 coverage
2019–2025
Forms available
Form 990 2025
Location
Chicago, IL, USA
Phone
7736204603
Rating
84
Verdict
STRONG
Rating confidence
Moderate
Sector
Education N.E.C.

Official website

Reported finances

Revenue
$557,320
Expenses
$1,320,228
Assets
$1,081,917
Liabilities
$144,659

Source: IRS Form 990. Selected filing: tax year 2025. Amounts in USD.

Leadership & pay

15 people listed

Executive titles in this filing

  • CHAD TURNER (PRESIDENT)
  • AZEEMA AKRAM (VICE PRESIDENT)
  • EMILY E BLUM (EXECUTIVE DIRECTOR)

Highest reported compensation

  • EMILY E BLUM (EXECUTIVE DIRECTOR): $142,349 total reported compensation
  • RISA J RIFKIND (DIRECTOR): $103,000 total reported compensation

Source: IRS Form 990. Selected filing: tax year 2025. Names and roles reflect this filing, not necessarily current officeholders.

Overview

Mission

To elevate and connect a network of leaders with disabilities who shift power, transform systems, and redefine leadership.

What it reported doing in 2025

Disability lead builds the power of people with disabilities, developing and connecting a growing network of disabled leaders, led by and for the disability community, who shift power, transform systems, and redefine what leaderships looks like across civic, corporate, government, and nonprofit sectors. In 2025, disability lead marked its tenth institute, a year-long leadership development fellowship, welcoming a cohort of 19 fellows and bringing its network to more than 300 leaders. Throughout the year, members stayed connected and active through robust programming, including recurring networking and educational gatherings, a celebration during disability pride month, the disability power series, and public storytelling events. Disability lead also convened its second annual disability leadership summit, which grew 25 percent over the prior year and, unlike the organization's regional programming, is open to disabled leaders nationwide. That work translated into real influence: over the course of 2025, disability lead facilitated 202 connections that moved members into civic appointments, professional leadership roles, competitive national fellowships, and public recognition, carrying disability leadership into some of the most consequential rooms in the country. In 2025, disability lead expanded beyond chicago for the first time, launching its southwestern Pennsylvania chapter in pittsburgh with dedicated staff, programming, and investment, and by december had selected the chapter's inaugural cohort of 13 institute fellows. With both the chicago and southwestern Pennsylvania regions fully operational, disability lead is building toward a national goal of establishing a presence in ten regions by 2040, the fiftieth anniversary of the americans with disabilities act.

Operating model

Revenue model
Donor-supported. 92% of the money available for current operations came from contributions and gifts.
Distribution model
Direct operator. The filing allocates 100% of reported program-service expenses outside its grant, affiliate-payment, and member-benefit lines. This expense classification does not rule out separately announced grant awards.

The verdict

STRONG - A large share of available resources goes toward mission work and the filed numbers largely add up. Fundraising costs are high for each dollar raised and expenses are high relative to revenue.

Rating breakdown

  • Financial Efficiency: 79
  • Transparency & Controls: 92
  • Accountability: 95
  • Sustainability: 17
  • Growth: 100

Detailed rating inputs

Financial Efficiency

  • Mission deployment rate: 100%; rating input score 100
  • Program expense ratio: 68.7%; rating input score 69
  • Fundraising efficiency: $2.4 raised per $1 spent on fundraising; rating input score 7; 7th percentile among comparable filings

Transparency & Controls

  • Consistency checks: 100%; rating input score 100; 63rd percentile among comparable filings
  • Pay-setting controls: Limited
  • Foreign activity oversight: Limited
  • Grant itemization coverage: Limited
  • Major donor itemization: Yes; rating input score 100
  • Related-party transparency: Limited

Accountability

  • Independent voting board: 100%; rating input score 100; 64th percentile among comparable filings
  • Governance controls: 7 of 8 controls in place; rating input score 88
    • Conflict-of-interest policy: Fail
    • Whistleblower policy: Pass
    • Document-retention policy: Pass
    • CEO compensation review process: Pass
    • Other executive compensation review process: NotApplicable
    • Form 990 shared with the board: Pass
    • Board meeting minutes documented: Pass
    • Audit committee oversight: Pass
    • Independent financial-statement audit: Pass

Sustainability

  • Operating margin: -136.9%; rating input score 0; 0th percentile among comparable filings
  • Total-asset coverage ratio: 0.82; rating input score 37; 37th percentile among comparable filings
  • Liabilities to assets ratio: 0.13; rating input score 31; 31st percentile among comparable filings
  • Officer compensation ratio: 18.6%; rating input score 18; 18th percentile among comparable filings

Growth

  • Program expense growth: 21% per year; rating input score 100; 81st percentile among comparable filings
  • Revenue growth: 6.2% per year; rating input score 100; 44th percentile among comparable filings
  • Asset growth: 16.5% per year; rating input score 100; 73rd percentile among comparable filings

Details

  • Where the money goes: 100% of revenue deployed · 68.7% of spending went to programs
  • Governance: 13 of 13 board members independent · 7 of 8 filing controls reported
  • Programs: 1 filed program accomplishment · $907K in reported program spending
  • Leadership: top reported pay $142K · 15 people listed
  • Consistency: 28 of 28 current checks pass
  • Schedules: 5 filed schedules · includes major donors
  • Filing history: 7 filing years from 2019 to 2025
  • Contacts: How to reach this organization
  • Money network: 2 filed money-flow records
  • Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
  • People: Everyone the filings name, and which of them the filings identify by more than a name.

Key Signals

Signals prioritize questions for review. They are not findings of misconduct.

  • High — Financial Efficiency: Fundraising efficiency scored 7/100.
  • High — Sustainability: Operating margin scored 0/100.
  • Review — Accountability: Governance controls: Conflict-of-interest policy not reported.
  • Moderate — Sustainability: Total-asset coverage ratio scored 37/100.
  • High — Sustainability: Officer compensation ratio scored 18/100.
  • Moderate — Sustainability: Liabilities to assets ratio scored 31/100.