Dcis Understood Inc

What it reported doing in 2025

The organization operates a single integrated program that serves dcis patients, their families, clinicians, and the general public through three coordinated activities. Education: the organization publishes free, evidence-based educational content including diagnosis explainers, treatment overviews, frequently asked questions, and plain-language summaries of emerging clinical research reviewed for accuracy by a volunteer advisory council of breast oncologists, surgeons, and researchers. Advocacy: the organization raises public awareness of dcis, promotes informed shared decision-making between patients and their clinicians, and works to elevate the patient voice in research and policy priorities. Support: the organization provides coping resources and curated referrals to support communities for individuals navigating a dcis diagnosis. These activities are delivered primarily through the organization's public website (dcisunderstood.org) and through partnerships with clinicians, researchers, and patient communities.during the tax year, dcis understood launched its public educational platform at dcisunderstood.org and reached approximately 2,200 new users from the united states and nine other countries seeking information about dcis. The organization convened a volunteer advisory council of seven breast-cancer clinicians and researchers; published a patient education brochure for newly diagnosed individuals in both english and spanish; launched a blog on the organization's website and published 20 educational articles and research summaries; launched a quarterly e-newsletter, growing the subscriber base to 200; began development of an integrated ai assistant designed to answer common patient questions about dcis directly on the website; and established a social media strategy and initiated its rollout to expand the organization's reach. In addition, the organization attended the san antonio breast cancer symposium and the annual breast cancer symposium in hudson, ny, which yielded numerous partnerships and professional connections; participated in a widely followed podcast; was featured in an article in cure magazine; and launched a coordinated fundraising strategy designed to engage individual donors, foundations, and corporate partners; all contributions received during the tax year came from individual donors. All program work was performed by volunteers, including the founder and board of directors; the organization had no paid staff during the tax year.

Financial Efficiency

• Mission deployment rate: 17.7%; rating input score 18
• Program expense ratio: 74.2%; rating input score 74

Transparency & Controls

• Consistency checks: 100%; rating input score 100; 51st percentile among comparable filings
• Major donor itemization: Yes; rating input score 100

Sustainability

• Operating margin: 76.1%; rating input score 96; 96th percentile among comparable filings
• Total-asset coverage ratio: 4.19; rating input score 81; 81st percentile among comparable filings
• Liabilities to assets ratio: 0; rating input score 66; 66th percentile among comparable filings
• Officer compensation ratio: 0%; rating input score 56; 56th percentile among comparable filings

Growth

• Program expense growth: Limited
• Revenue growth: Limited
• Asset growth: Limited