Danny Did Foundation

Nonprofit profile at a glance

EIN
271642251
IRS 990 coverage
2011–2024
Forms available
Form 990 2024
Location
Evanston, IL, USA
Phone
7733072336
Rating
78
Verdict
SUPPORTED
Rating confidence
Moderate
Sector
Fund Raising and/or Fund Distribution

Official website

Reported finances

Revenue
$1,697,246
Expenses
$1,466,629
Assets
$3,226,076
Liabilities
$86,210

Source: IRS Form 990. Selected filing: tax year 2024. Amounts in USD.

Leadership & pay

18 people listed

Executive titles in this filing

  • KURT FLORIAN (BOARD PRESIDENT)
  • CAROLINE MCATEER (VICE PRESIDENT)
  • MARY DUFFY (EXECUTIVE DIRECTOR)
  • THOMAS F STANTON (PRESIDENT)

Highest reported compensation

  • THOMAS F STANTON (PRESIDENT): $171,765 total reported compensation
  • MARY DUFFY (EXECUTIVE DIRECTOR): $110,963 total reported compensation

Source: IRS Form 990. Selected filing: tax year 2024. Names and roles reflect this filing, not necessarily current officeholders.

Overview

Mission

To advance public awareness of epilepsy and the risk of sudden unexpected death in epilepsy (sudep), to protect people with epilepsy, and to prevent deaths caused by seizures. 3.4 million people are facing the challenges of epilepsy in the u.s. And more than 50 million people are affected by epilepsy worldwide. The issue of aggressively addressing sudep is as urgent as it is logical.

What it reported doing in 2024

The foundation advances public awareness of epilepsy and sudden unexpected death in epilepsy (sudep), strives to improve sudep disclosure between medical professionals and families affected by seizures, and advocates for the mainstream acceptance and use of seizure detection and prediction devices that may assist in preventing seizure-related deaths. In 2024, danny did subsidized 712 seizure detection devices for families in financial need and hundreds more were counseled on devices and ways to protect their loved ones living with epilepsy. In 2024, thirty nine families were provided travel assistance grants so they could attend epilepsy educational conferences. Sudep awareness was shared on billboards along highways and in airports, in spanish on building boards throughout chicago, on webmd, medscape, streaming tv channels, on eleven radio stations, throughout chicago on a bus, and at walks, conferences and expos.

Operating model

Revenue model
Donor-supported. 97% of the money available for current operations came from contributions and gifts.
Distribution model
Grant intermediary. The nonprofit sent 63% of its reported program spending out as grants.
  • Includes noncash contributions: Reported contributions include donated property or goods.

The verdict

SUPPORTED - A large share of available resources goes toward mission work and the filed numbers largely add up. Fundraising costs are high for each dollar raised and reported officer compensation is a large share of total spending, which may reflect staffing concentration.

Rating breakdown

  • Financial Efficiency: 68
  • Transparency & Controls: 76
  • Accountability: 100
  • Sustainability: 61
  • Growth: 100

Detailed rating inputs

Financial Efficiency

  • Mission deployment rate: 68.2%; rating input score 68
  • Program expense ratio: 76.2%; rating input score 76
  • Fundraising efficiency: $11.11 raised per $1 spent on fundraising; rating input score 41; 41st percentile among comparable filings

Transparency & Controls

  • Consistency checks: 94.4%; rating input score 94; 26th percentile among comparable filings
  • Pay-setting controls: 2 of 6 controls in place; rating input score 33
    • Compensation committee: Missing
    • Independent consultant: Missing
    • Other Form 990s reviewed: Missing
    • Written employment contract: Missing
    • Compensation survey or study: Pass
    • Board or committee approval: Pass
  • Foreign activity oversight: Limited
  • Grant itemization coverage: 97%; rating input score 97; 44th percentile among comparable filings
  • Major donor itemization: Yes; rating input score 100
  • Related-party transparency: Limited

Accountability

  • Independent voting board: 100%; rating input score 100; 63rd percentile among comparable filings
  • Governance controls: 8 of 8 controls in place; rating input score 100
    • Conflict-of-interest policy: Pass
    • Whistleblower policy: Pass
    • Document-retention policy: Pass
    • CEO compensation review process: Pass
    • Other executive compensation review process: NotApplicable
    • Form 990 shared with the board: Pass
    • Board meeting minutes documented: Pass
    • Audit committee oversight: Pass
    • Independent financial-statement audit: Pass

Sustainability

  • Operating margin: 13.6%; rating input score 68; 68th percentile among comparable filings
  • Total-asset coverage ratio: 2.2; rating input score 67; 67th percentile among comparable filings
  • Liabilities to assets ratio: 0.03; rating input score 59; 59th percentile among comparable filings
  • Officer compensation ratio: 19.3%; rating input score 16; 16th percentile among comparable filings

Growth

  • Program expense growth: 12.7% per year; rating input score 100; 70th percentile among comparable filings
  • Revenue growth: 11.6% per year; rating input score 100; 71st percentile among comparable filings
  • Asset growth: 16% per year; rating input score 100; 74th percentile among comparable filings

Details

  • Where the money goes: 68.2% of revenue deployed · 76.2% of spending went to programs
  • Governance: 16 of 16 board members independent · 8 of 8 filing controls reported
  • Programs: 1 filed program accomplishment · $1.1M in reported program spending
  • Leadership: top reported pay $172K · 18 people listed · 2 of 6 pay-setting controls reported
  • Consistency: 34 of 35 current checks pass · 1 finding to review
  • Schedules: 9 filed schedules · includes major donors, grants, and executive pay
  • Filing history: 14 filing years from 2011 to 2024
  • Contacts: How to reach this organization
  • Money network: 5 filed money-flow records
  • Related organizations: 3 filed related-organization links
  • Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
  • People: Everyone the filings name, and which of them the filings identify by more than a name.

Key Signals

Signals prioritize questions for review. They are not findings of misconduct.

  • Moderate — Financial Efficiency: Fundraising efficiency scored 41/100.
  • High — Sustainability: Officer compensation ratio scored 16/100.
  • Review — Transparency & Controls: Domestic grant itemization did not reconcile in the filed values.
  • Review — Sustainability: Liabilities to assets ratio scored 59/100.