Cystic Fibrosis Foundation - Group Return for the Chapters

Nonprofit profile at a glance

EIN
136161105
IRS 990 coverage
2010–2015
Forms available
Form 990 2015
Location
Bethesda, MD, USA
Phone
3019514422
Rating
86
Verdict
STRONG
Rating confidence
Moderate
Sector
Birth Defects and Genetic Diseases

Official website

Reported finances

Revenue
$113,971,674
Expenses
$113,971,674
Assets
$0
Liabilities
$0

Source: IRS Form 990. Selected filing: tax year 2015. Amounts in USD.

Leadership & pay

23 people listed

Executive titles in this filing

  • PRESTON CAMPBELL MD (PRESIDENT & CEO (AS OF 10/1))
  • ROBERT BEALL PHD (PRESIDENT & CEO (UNTIL 9/30))

Highest reported compensation

  • C RICHARD MATTINGLY (EXECUTIVE VP & COO): $2,786,919 total reported compensation
  • ROBERT BEALL PHD (PRESIDENT & CEO (UNTIL 9/30)): $2,463,334 total reported compensation
  • PRESTON CAMPBELL MD (PRESIDENT & CEO (AS OF 10/1)): $955,082 total reported compensation

Source: IRS Form 990. Selected filing: tax year 2015. Names and roles reflect this filing, not necessarily current officeholders.

Overview

Mission

The mission of the cystic fibrosis foundation is to cure cystic fibrosis and to provide all people with the disease the opportunity to lead full, productive lives by funding research and drug development, promoting individualized treatment, and ensuring access to high quality, specialized care. A life-shortening genetic disease, cf affects the lungs and digestive systems of more than 30,000 people in the u.s. Currently, there is no cure.

What it reported doing in 2015

Public information and education: to broaden its reach and to support its mission, the cystic fibrosis foundation has programs designed to inform cystic fibrosis patients, their families and the general public regarding the disease. In 2015, chapter offices distributed educational materials to the cf community, including audio and visual AIDS, exhibits and correspondence. The chapter office also made available up to 10 publications and 50 videos that were developed specifically for the cf community by the cystic fibrosis foundation.

Operating model

Revenue model
Donor-supported. 99% of the money available for current operations came from contributions and gifts.
Distribution model
Affiliate network. The nonprofit sent 85% of its reported program spending through affiliated organizations.
  • Includes noncash contributions: Reported contributions include donated property or goods.

The verdict

STRONG - A large share of available resources goes toward mission work and the filed numbers largely add up. Program spending has declined or grown slowly and expenses are high relative to revenue.

Rating breakdown

  • Financial Efficiency: 87
  • Transparency & Controls: 94
  • Accountability: 97
  • Sustainability: 23
  • Growth: 40

Detailed rating inputs

Financial Efficiency

  • Mission deployment rate: 89.9%; rating input score 90
  • Program expense ratio: 89.9%; rating input score 90
  • Fundraising efficiency: $14.26 raised per $1 spent on fundraising; rating input score 64; 64th percentile among comparable filings

Transparency & Controls

  • Consistency checks: 100%; rating input score 100; 67th percentile among comparable filings
  • Pay-setting controls: 6 of 6 controls in place; rating input score 100
    • Compensation committee: Pass
    • Independent consultant: Pass
    • Other Form 990s reviewed: Pass
    • Written employment contract: Pass
    • Compensation survey or study: Pass
    • Board or committee approval: Pass
  • Foreign activity oversight: Limited
  • Grant itemization coverage: Limited
  • Major donor itemization: Yes; rating input score 100
  • Related-party transparency: Limited

Accountability

  • Independent voting board: 94.7%; rating input score 95; 57th percentile among comparable filings
  • Governance controls: 9 of 9 controls in place; rating input score 100
    • Conflict-of-interest policy: Pass
    • Whistleblower policy: Pass
    • Document-retention policy: Pass
    • CEO compensation review process: Pass
    • Other executive compensation review process: Pass
    • Form 990 shared with the board: Pass
    • Board meeting minutes documented: Pass
    • Audit committee oversight: Pass
    • Independent financial-statement audit: Pass

Sustainability

  • Operating margin: 0%; rating input score 28; 28th percentile among comparable filings
  • Total-asset coverage ratio: 0; rating input score 0; 0th percentile among comparable filings
  • Liabilities to assets ratio: Limited
  • Officer compensation ratio: 0.6%; rating input score 85; 85th percentile among comparable filings

Growth

  • Program expense growth: -3% per year; rating input score 0; 10th percentile among comparable filings
  • Revenue growth: 2.3% per year; rating input score 100; 30th percentile among comparable filings
  • Asset growth: Limited

Details

  • Where the money goes: 89.9% of revenue deployed · 89.9% of spending went to programs
  • Governance: 18 of 19 board members independent · 9 of 9 filing controls reported
  • Programs: 3 filed program accomplishments · $102.5M in reported program spending
  • Leadership: top reported pay $2.8M · 23 people listed · 6 of 6 pay-setting controls reported
  • Highest-paid contractors: 5 contractors listed · $2.2M reported
  • Consistency: 27 of 27 current checks pass
  • Schedules: 8 filed schedules · includes major donors and executive pay
  • Filing history: 6 filing years from 2010 to 2015
  • Contacts: How to reach this organization
  • Money network: 1 filed money-flow record
  • Related organizations: 1 filed related-organization link
  • Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
  • People: Everyone the filings name, and which of them the filings identify by more than a name.

Key Signals

Signals prioritize questions for review. They are not findings of misconduct.

  • High — Growth: Program expense growth scored 0/100.
  • High — Sustainability: Operating margin scored 28/100.
  • High — Sustainability: Total-asset coverage ratio scored 0/100.