CureMAPK8IP3 Foundation
Nonprofit profile at a glance
- EIN
- 932326992
- IRS 990-N coverage
- 2025–2025
- Official website data refreshed
- Aug 2026
- Forms available
- Form 990-EZ 2023, Form 990-N 2025
- Location
- Fort Mill, SC, US
- Rating confidence
- Limited
- Sector
- Medical Disciplines Research
What the e-Postcard reports
- Notice states gross receipts normally $50,000 or less
- Yes
- Termination reported
- No
- Principal officer
- Anne Jones
- Tax period began
- 2025-01-01 00:00:00
- Tax period ended
- 2025-12-31 00:00:00
- Filed website
- curemapk8ip3.org
Source: IRS Form 990-N, tax year 2025. These are filed notice facts, not independently verified current operations. The notice does not report exact revenue, expenses, assets, leadership compensation, or governance controls.
Overview
From its website
The CureMAPK8IP3 Foundation is a patient advocacy organization dedicated to supporting families affected by MAPK8IP3-related neurodevelopmental disorder, a rare genetic condition caused by a variant in the MAPK8IP3 gene. Serving approximately 100 families worldwide, the foundation funds research into the gene and potential treatments, facilitates a natural history study to establish clinical care guidelines and trial baselines, and hosts biennial conferences to connect families with experts. It also offers a monthly newsletter and community resources to empower caregivers and advance understanding of this ultra-rare disease.
IRS classification
Medical Disciplines Research (NTEE H90).
Filing
Its tax year 2025 Form 990-N states gross receipts are normally $50,000 or less. The notice does not report termination.
Other filing
A Form 990-EZ for tax year 2023 is also available.
Coverage
Other list screening or federal responsibility records are incomplete in the available data.
Sources: Official website capture · IRS Business Master File · IRS Form 990-N · IRS filing history · Grant-readiness source coverage
The verdict
- The available evidence is not sufficient to produce an overall rating for this filing. This is not a warning sign.
Rating breakdown
Details
- What they do: 7 programs and campaigns described on the official site · 1 operating location identified
- Postcard: tax year 2025 · gross receipts were within the e-Postcard filing limit
- Contacts: How to reach this organization
- Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
- People: Everyone the filings name, and which of them the filings identify by more than a name.