Cure Rare Foundation
Nonprofit profile at a glance
- EIN
- 881224171
- IRS 990-EZ coverage
- 2023–2025
- Forms available
- Form 990 2022, Form 990-EZ 2025
- Location
- Manhattan Beach, CA, USA
- Phone
- 3105455400
- Rating
- 71
- Verdict
- SUPPORTED
- Rating confidence
- Moderate
- Sector
- Fund Raising and/or Fund Distribution
Reported finances
- Revenue
- $33,733
- Expenses
- $8,108
- Assets
- $299,715
Source: IRS Form 990-EZ. Selected filing: tax year 2025. Amounts in USD.
Leadership & pay
1 person listed
Executive titles in this filing
- JESSICA LINDERMAN (President & CEO)
People named in this filing
- JESSICA LINDERMAN (President & CEO)
Selected names, not a complete roster or a statement of current roles. Open leadership details for the complete filed list.
Source: IRS Form 990-EZ. Selected filing: tax year 2025. Names and roles reflect this filing, not necessarily current officeholders.
Overview
Mission
Cure Rare Foundation, established in Spring 2022, is a nonprofit organization devoted to funding the research and development of treatments and cures for rare genetic diseases. In the United States, diseases are considered rare when a single condition affects fewer than 200,000 individuals. However, these diseases arent rare at all because over 7,000 rare diseases have been identified and there are over 25,000,000 people living with rare diseases in the US alone! Yet because each individual disease impacts a small population, research and development for treatments and cures are largely underfunded, resulting in less than 5% of rare disease having effective treatments.
What it reported doing in 2025
In 2025, we spent more time identifying potential grant giving opportunities and made strides in identifying potential donors.
Operating model
- Revenue model
- Cannot be determined from the filing. The filing does not provide enough consistent revenue detail to tell how this nonprofit funds its work.
- Distribution model
- Grant intermediary. The nonprofit sent 92% of its reported program spending out as grants.
The verdict
SUPPORTED - The filed numbers largely add up and revenue comfortably covers expenses. A relatively small share of available resources goes toward mission work and program spending has declined or grown slowly.
Rating breakdown
- Financial Efficiency: 52
- Transparency & Controls: 100
- Sustainability: 81
- Growth: 20
Detailed rating inputs
Financial Efficiency
- Mission deployment rate: 24%; rating input score 24
- Program expense ratio: 100%; rating input score 100
Transparency & Controls
- Consistency checks: 100%; rating input score 100; 51st percentile among comparable filings
- Major donor itemization: Yes; rating input score 100
Sustainability
- Operating margin: 76%; rating input score 96; 96th percentile among comparable filings
- Total-asset coverage ratio: 36.97; rating input score 98; 98th percentile among comparable filings
- Liabilities to assets ratio: Limited
- Officer compensation ratio: 0%; rating input score 56; 56th percentile among comparable filings
Growth
- Program expense growth: -0.5% per year; rating input score 0; 46th percentile among comparable filings
- Revenue growth: -81.3% per year; rating input score 0; 3rd percentile among comparable filings
- Asset growth: 4.1% per year; rating input score 100; 53rd percentile among comparable filings
Details
- Where the money goes: 24% of revenue deployed · 100% of spending went to programs
- Governance: Filed governance answers
- Accomplishments: 1 filed program accomplishment · $8K in reported program spending
- Leadership: top reported pay $0 · 1 people listed
- Consistency: 7 of 7 current checks pass
- Schedules: 3 filed schedules
- Filing history: 3 filing years from 2023 to 2025
- Contacts: How to reach this organization
- Money network: Resolved incoming and outgoing counterparties from filed money flows.
- Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
- People: Everyone the filings name, and which of them the filings identify by more than a name.
Key Signals
Signals prioritize questions for review. They are not findings of misconduct.
- High — Financial Efficiency: Mission deployment rate scored 24/100.
- High — Growth: Program expense growth scored 0/100.
- High — Growth: Revenue growth scored 0/100.
- Review — Sustainability: Officer compensation ratio scored 56/100.