Cure Cmd

Nonprofit profile at a glance

EIN
262640975
IRS 990 coverage
2020–2024
Forms available
Form 990 2024
Location
Lakewood, CA, USA
Phone
9135226993
Rating
64
Verdict
SUPPORTED
Rating confidence
Moderate
Sector
Nerve, Muscle, Bone Diseases Research

Reported finances

Revenue
$677,234
Expenses
$442,453
Assets
$508,508
Liabilities
$33,793

Source: IRS Form 990. Selected filing: tax year 2024. Amounts in USD.

Leadership & pay

13 people listed

Executive titles in this filing

  • Robert Sunris (President)
  • Eunice Kim (Vice President)
  • Rachel Alvarez (Executive Director Secretary)

Highest reported compensation

  • Rachel Alvarez (Executive Director Secretary): $108,898 total reported compensation

Source: IRS Form 990. Selected filing: tax year 2024. Names and roles reflect this filing, not necessarily current officeholders.

Overview

Mission

Cure CMDs mission is to advance research toward treatments for the congenital muscular dystrophies and empower those living with CMD through engagement and support of our community.

What it reported doing in 2024

Outreach & Education - While we work with the research community to identify a pipeline of future treatments for the congenital muscular dystrophies Cure CMD supports the affected community where they are today through a variety of supportive content and connections that are responsive to the their needs and giving them a prominent voice in determining Cure CMDs priorities and future programming. We host the CMD Scientific and Family Conference SciFam: scifam.info bringing together stakeholders from around the world to learn share and interrogate research progress. We host an ongoing webinar series that explores topics relevant to those living with or caring for someone with CMD. We host online support groups and other opportunities for community members to connect and share their experiences. Our Legislative Advocacy Team forges a path for community members to share their story and their needs with local state and federal policy makers. And our Executive and Scientific Directors provide 1:1 support for those newly diagnosed and struggling to understand where they should begin to ensure their affected loved one has the best possible quality of life. These are just some of the opportunities we offer to support those living with CMD and will continue to evolve our programming to best serve the communitys ever-changing needs.

Operating model

Revenue model
Donor-supported. 97% of the money available for current operations came from contributions and gifts.
Distribution model
Direct operator. The filing allocates 94% of reported program-service expenses outside its grant, affiliate-payment, and member-benefit lines. This expense classification does not rule out separately announced grant awards.

The verdict

SUPPORTED - The filed numbers largely add up and most voting board members are independent. A relatively small share of available resources goes toward mission work and the filing reports few safeguards for money sent abroad.

Rating breakdown

  • Financial Efficiency: 53
  • Transparency & Controls: 75
  • Accountability: 84
  • Sustainability: 62
  • Growth: 0

Detailed rating inputs

Financial Efficiency

  • Mission deployment rate: 44.7%; rating input score 45
  • Program expense ratio: 67.5%; rating input score 68
  • Fundraising efficiency: $12.7 raised per $1 spent on fundraising; rating input score 45; 45th percentile among comparable filings

Transparency & Controls

  • Consistency checks: 100%; rating input score 100; 63rd percentile among comparable filings
  • Pay-setting controls: Limited
  • Foreign activity oversight: 0 of 8 controls in place; rating input score 0
    • Claims monitoring procedures: Fail
    • Requires narrative reports: Fail
    • Conducts field audits: Fail
    • May suspend future funding: Fail
    • Requires financial reports: Fail
    • Conducts site visits: Fail
    • Requires grant agreements: Fail
    • May require repayment: Fail
  • Grant itemization coverage: 100%; rating input score 100; 76th percentile among comparable filings
  • Major donor itemization: Yes; rating input score 100
  • Related-party transparency: Limited

Accountability

  • Independent voting board: 100%; rating input score 100; 63rd percentile among comparable filings
  • Governance controls: 5 of 8 controls in place; rating input score 62
    • Conflict-of-interest policy: Pass
    • Whistleblower policy: Fail
    • Document-retention policy: Fail
    • CEO compensation review process: Fail
    • Other executive compensation review process: NotApplicable
    • Form 990 shared with the board: Pass
    • Board meeting minutes documented: Pass
    • Audit committee oversight: Pass
    • Independent financial-statement audit: Pass

Sustainability

  • Operating margin: 34.7%; rating input score 87; 87th percentile among comparable filings
  • Total-asset coverage ratio: 1.15; rating input score 47; 47th percentile among comparable filings
  • Liabilities to assets ratio: 0.07; rating input score 48; 48th percentile among comparable filings
  • Officer compensation ratio: 24.6%; rating input score 10; 10th percentile among comparable filings

Growth

  • Program expense growth: -19.4% per year; rating input score 0; 2nd percentile among comparable filings
  • Revenue growth: -5.9% per year; rating input score 0; 4th percentile among comparable filings
  • Asset growth: -11.5% per year; rating input score 0; 3rd percentile among comparable filings

Details

  • Where the money goes: 44.7% of revenue deployed · 67.5% of spending went to programs
  • Governance: 12 of 12 board members independent · 5 of 8 filing controls reported
  • Programs: 3 filed program accomplishments · $299K in reported program spending
  • Leadership: top reported pay $109K · 13 people listed
  • Consistency: 43 of 43 current checks pass
  • Schedules: 4 filed schedules · includes major donors and foreign activity
  • Filing history: 4 filing years from 2020 to 2024
  • Contacts: How to reach this organization
  • Money network: 1 filed money-flow record
  • Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
  • People: Everyone the filings name, and which of them the filings identify by more than a name.
  • Staff and benefit plans: Retirement and health plans the organization files with the Department of Labor, and the people in them.

Key Signals

Signals prioritize questions for review. They are not findings of misconduct.

  • Moderate — Financial Efficiency: Mission deployment rate scored 45/100.
  • High — Transparency & Controls: Foreign activity oversight: 8 of 8 not reported.
  • Review — Accountability: Governance controls: 3 of 8 not reported.
  • Moderate — Financial Efficiency: Fundraising efficiency scored 45/100.
  • High — Growth: Program expense growth scored 0/100.
  • High — Growth: Revenue growth scored 0/100.
  • High — Growth: Asset growth scored 0/100.
  • Moderate — Sustainability: Total-asset coverage ratio scored 47/100.
  • High — Sustainability: Officer compensation ratio scored 10/100.
  • Moderate — Sustainability: Liabilities to assets ratio scored 48/100.