Cure Clcn6
Nonprofit profile at a glance
- EIN
- 331628589
- IRS 990-EZ coverage
- 2024–2024
- Forms available
- Form 990-EZ 2024
- Location
- Sacramento, CA, USA
- Rating
- 53
- Verdict
- MIXED
- Rating confidence
- Moderate
- Sector
- Human Service Organizations
Reported finances
- Revenue
- $55,797
- Expenses
- $5,680
- Assets
- $50,117
Source: IRS Form 990-EZ. Selected filing: tax year 2024. Amounts in USD.
Leadership & pay
3 people listed
Executive titles in this filing
- PAUL PURDY (President)
People named in this filing
- PAUL PURDY (President)
- PATRICK RYAN (Secretary)
- JERRY NATOLI (Treasurer)
Selected names, not a complete roster or a statement of current roles. Open leadership details for the complete filed list.
Source: IRS Form 990-EZ. Selected filing: tax year 2024. Names and roles reflect this filing, not necessarily current officeholders.
Overview
Mission
Cure CLCN6 is dedicated to raising awareness of mutations on the CLCN6 gene, providing support and advocacy to affected children and their families, and funding the research and development of therapeutics for CLCN6 mutations and ultimately a cure.
Operating model
- Revenue model
- Cannot be determined from the filing. The filing does not provide enough consistent revenue detail to tell how this nonprofit funds its work.
- Distribution model
- Direct operator. The filing allocates 100% of reported program-service expenses outside its grant, affiliate-payment, and member-benefit lines. This expense classification does not rule out separately announced grant awards.
The verdict
MIXED - The filed numbers largely add up and revenue comfortably covers expenses. A relatively small share of available resources goes toward mission work and a relatively small share of total spending goes to programs.
Rating breakdown
- Financial Efficiency: 18
- Transparency & Controls: 100
- Sustainability: 79
- Growth: NotEnoughData
Detailed rating inputs
Financial Efficiency
- Mission deployment rate: 4%; rating input score 4
- Program expense ratio: 39.6%; rating input score 40
Transparency & Controls
- Consistency checks: 100%; rating input score 100; 52nd percentile among comparable filings
- Major donor itemization: Yes; rating input score 100
Sustainability
- Operating margin: 89.8%; rating input score 98; 98th percentile among comparable filings
- Total-asset coverage ratio: 8.82; rating input score 91; 91st percentile among comparable filings
- Liabilities to assets ratio: Limited
- Officer compensation ratio: 0%; rating input score 56; 56th percentile among comparable filings
Growth
- Program expense growth: Limited
- Revenue growth: Limited
- Asset growth: Limited
Details
- Where the money goes: 4% of revenue deployed · 39.6% of spending went to programs
- Governance: Filed governance answers
- Accomplishments: 1 filed program accomplishment · $2K in reported program spending
- Leadership: top reported pay $0 · 3 people listed
- Consistency: 6 of 6 current checks pass
- Schedules: 3 filed schedules
- Contacts: How to reach this organization
- Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
- People: Everyone the filings name, and which of them the filings identify by more than a name.
Key Signals
Signals prioritize questions for review. They are not findings of misconduct.
- High — Financial Efficiency: Mission deployment rate scored 4/100.
- Moderate — Financial Efficiency: Program expense ratio scored 40/100.
- Review — Sustainability: Officer compensation ratio scored 56/100.