Courageous Parents Networkinc

What it reported doing in 2025

Collaborations in thought leadership courageous parents network is recognized by clinicians, patient groups and industry as a trusted authority and thought-leader partner representing the lived experience and needs of families caring for a child with a serious medical condition. Cpn values these relationships for three reasons: they extend the reach of cpn resources; they increase cpn's exposure to adjacent groups serving families and thereby grow our understanding of what is available to families; and they enhance our shared understanding of how best to support affected families. 2025 collaborations include: stanford center for continuing medical education (sccme) courageous parents network delivers monthly webinars on psychosocial topics affecting parents of children with medical complexity (see the in the room article). While designed for a parent audience, pediatric healthcare clinicians frequently attend. They report benefits of learning from cpn about the family lived experience and they value hearing directly from parents. In september 2025 cpn began to offer continuing education credit to approved professions. Continuing education is made available through the stanford center for continuing medical education (sccme). Thanks to support from the stanford medicine division of quality of life and pediatric palliative care, these credits are being offered at no cost through june 2026ct1.1. Trisomy 13 and 18 collaborative trisomy 13 and 18 are medically understood as life-limiting genetic conditions. Babies usually die before their first birthday but some children live much longer, and a growing number of families and clinicians are working to improve information available to families to inform decision-making. In 2025, the trisomy 13 and 18 collaborative announced a request for proposals for a funding opportunity for projects designed to identify and evaluate educational resources available to families affected by these diagnoses, and to assess informational needs and access barriers. Under the leadership of chrissy salley, phd, courageous parents network submitted a proposal in collaboration with stanford medicine, the genetic support foundation, and columbia university, and was awarded the grant. Investigation and data collection is underway and findings, with recommendations, should be available by 2027. Programming highlights & updates courageous provider award the courageous provider award annually recognizes clinicians providing exceptional family-centered care in circumstances of serious childhood illness. Nominees must demonstrate excellence in engaging with patients, parents or other caregivers, and/or other pediatric specialists in a holistic, multi-disciplinary approach to care. They must demonstrate qualities of compassion, tenacity and empathy in journeying with children and their families. The 2025 courageous provider award recipient was camara van breeman, mn, np, canuck place children's hospice, british columbia, canada. Cpn's blyth lord had an opportunity to visit and tour canuck place and recognize camara with the award in person. Expanding access: neurojourney now available in arabic courageous parents network was proud to make neurojourney available in arabic, expanding access to trusted information for families and the professionals who serve them. Arabic is the sixth-most spoken language in the united states, the fifth-most spoken language worldwide, and the fourth=most used language on the internet. By offering this resource in arabic, cpn enables clinicians and patient organizations to better educate families and strengthen health literacy across the communities they support. This important work was made possible through generous funding from alexion charitable foundation. Extension of the parent champion program in 2023, the cpn team launched the parent champions program to amplify the organization's reach and ensure that palliative-informed family perspectives are integrated into clinical practice

Financial Efficiency

• Mission deployment rate: 64.4%; rating input score 64
• Program expense ratio: 83.7%; rating input score 84
• Fundraising efficiency: $24.75 raised per $1 spent on fundraising; rating input score 61; 61st percentile among comparable filings

Transparency & Controls

• Consistency checks: 100%; rating input score 100; 63rd percentile among comparable filings
• Pay-setting controls: Limited
• Foreign activity oversight: Limited
• Grant itemization coverage: Limited
• Major donor itemization: Yes; rating input score 100
• Related-party transparency: Limited

Accountability

• Independent voting board: 100%; rating input score 100; 64th percentile among comparable filings
• Governance controls: 5 of 9 controls in place; rating input score 56
  • Conflict-of-interest policy: Fail
  • Whistleblower policy: Fail
  • Document-retention policy: Fail
  • CEO compensation review process: Pass
  • Other executive compensation review process: Pass
  • Form 990 shared with the board: Fail
  • Board meeting minutes documented: Pass
  • Audit committee oversight: Pass
  • Independent financial-statement audit: Pass

Sustainability

• Operating margin: 24.4%; rating input score 77; 77th percentile among comparable filings
• Total-asset coverage ratio: 1.79; rating input score 61; 61st percentile among comparable filings
• Liabilities to assets ratio: 0; rating input score 68; 68th percentile among comparable filings
• Officer compensation ratio: 26.2%; rating input score 10; 10th percentile among comparable filings

Growth

• Program expense growth: 7% per year; rating input score 100; 46th percentile among comparable filings
• Revenue growth: 12.9% per year; rating input score 100; 69th percentile among comparable filings
• Asset growth: 7.7% per year; rating input score 100; 47th percentile among comparable filings