Conquering Congenital Heart Disease
Nonprofit profile at a glance
- EIN
- 463576700
- IRS 990 coverage
- 2016–2023
- Forms available
- Form 990 2023, Form 990-EZ 2015, Form 990-N 2020
- Location
- Middleton, WI, USA
- Phone
- 8507979354
- Rating
- 81
- Verdict
- STRONG
- Rating confidence
- Moderate
- Sector
- Heart, Circulatory Research
Reported finances
- Revenue
- $291,957
- Expenses
- $333,995
- Assets
- $21,394
- Liabilities
- $3,610
Source: IRS Form 990. Selected filing: tax year 2023. Amounts in USD.
Leadership & pay
5 people listed
Executive titles in this filing
- Mark Fried (Former Executive Director)
- Amy Basken (Former Executive Director)
- Carissa Ostrom (Executive Director)
Highest reported compensation
- Amy Basken (Former Executive Director): $38,461 total reported compensation
- Carissa Ostrom (Executive Director): $30,855 total reported compensation
- Mark Fried (Former Executive Director): $16,797 total reported compensation
Source: IRS Form 990. Selected filing: tax year 2023. Names and roles reflect this filing, not necessarily current officeholders.
Overview
Mission
At conquering chd we exist to conquerin the most common birth defect. We engage, listen, learn, and act. We create visibility and empower all impacted by chd. We accomplish this through awareness, knowledge, community and research.
What it reported doing in 2023
Learning your child has congenital heart disease can be overwhelming. Many children with congenital heart disease need life saving surgery or intervention in the first few weeks or months of their life. This leads to important medical decisions about the care of your child, often in a short amount of time and under stress. However, the ability to get important information about where your child will get their treatment is limited. The organization is working to address this issue on many levels. We empower patients and families directly through the use of the guided questions tool. Given to families at the time of diagnosis, this list of questions offers support and confidence when talking to doctors, surgeons and the care team about quality, what to expect when in the hospital, and beyond. Although widely distributed.
Operating model
- Revenue model
- Donor-supported. 86% of the money available for current operations came from contributions and gifts.
- Distribution model
- Direct operator. The filing allocates 100% of reported program-service expenses outside its grant, affiliate-payment, and member-benefit lines. This expense classification does not rule out separately announced grant awards.
The verdict
STRONG - A large share of available resources goes toward mission work and the filed numbers largely add up. Expenses are high relative to revenue and total assets are small relative to annual expenses; liquid coverage is unknown.
Rating breakdown
- Financial Efficiency: 84
- Transparency & Controls: 88
- Accountability: 78
- Sustainability: 15
- Growth: 100
Detailed rating inputs
Financial Efficiency
- Mission deployment rate: 99%; rating input score 99
- Program expense ratio: 86.5%; rating input score 87
- Fundraising efficiency: Limited
Transparency & Controls
- Consistency checks: 84.6%; rating input score 85; 2nd percentile among comparable filings
- Pay-setting controls: Limited
- Foreign activity oversight: Limited
- Grant itemization coverage: Limited
- Major donor itemization: Yes; rating input score 100
- Related-party transparency: Limited
Accountability
- Independent voting board: 80%; rating input score 80; 21st percentile among comparable filings
- Governance controls: 6 of 8 controls in place; rating input score 75
- Conflict-of-interest policy: Pass
- Whistleblower policy: Pass
- Document-retention policy: Pass
- CEO compensation review process: Pass
- Other executive compensation review process: NotApplicable
- Form 990 shared with the board: Pass
- Board meeting minutes documented: Pass
- Audit committee oversight: Missing
- Independent financial-statement audit: Fail
Sustainability
- Operating margin: -14.4%; rating input score 20; 20th percentile among comparable filings
- Total-asset coverage ratio: 0.06; rating input score 5; 5th percentile among comparable filings
- Liabilities to assets ratio: 0.17; rating input score 22; 22nd percentile among comparable filings
- Officer compensation ratio: 25.8%; rating input score 14; 14th percentile among comparable filings
Growth
- Program expense growth: 9.4% per year; rating input score 100; 68th percentile among comparable filings
- Revenue growth: 9.6% per year; rating input score 100; 71st percentile among comparable filings
- Asset growth: 4.3% per year; rating input score 100; 45th percentile among comparable filings
Details
- Where the money goes: 99% of revenue deployed · 86.5% of spending went to programs
- Governance: 4 of 5 board members independent · 6 of 8 filing controls reported
- Programs: 3 filed program accomplishments · $76K in reported program spending
- Leadership: top reported pay $38K · 5 people listed
- Consistency: 27 of 29 current checks pass · 2 findings to review
- Schedules: 6 filed schedules · includes major donors
- Filing history: 7 filing years from 2016 to 2023
- Contacts: How to reach this organization
- Money network: 3 filed money-flow records
- Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
- People: Everyone the filings name, and which of them the filings identify by more than a name.
Key Signals
Signals prioritize questions for review. They are not findings of misconduct.
- High — Sustainability: Operating margin scored 20/100.
- High — Sustainability: Total-asset coverage ratio scored 5/100.
- Review — Accountability: Governance controls: Independent financial-statement audit not reported.
- Moderate — Transparency & Controls: Schedule A contributions reconciliation did not reconcile in the filed values.
- Moderate — Transparency & Controls: Schedule D other liabilities reconciliation did not reconcile in the filed values.
- High — Sustainability: Officer compensation ratio scored 14/100.
- High — Sustainability: Liabilities to assets ratio scored 22/100.