CMT Research Foundation Inc
Nonprofit profile at a glance
- EIN
- 825476655
- IRS 990 coverage
- 2020–2024
- Forms available
- Form 990 2024, Form 990-T 2024
- Location
- Atlanta, GA, USA
- Phone
- 4048067180
- Rating
- 65
- Verdict
- SUPPORTED
- Rating confidence
- Moderate
- Sector
- Nerve, Muscle, Bone Diseases Research
Reported finances
- Revenue
- $8,662,522
- Expenses
- $4,587,545
- Assets
- $8,705,044
- Liabilities
- $312,043
Source: IRS Form 990. Selected filing: tax year 2024. Amounts in USD.
Leadership & pay
15 people listed
Executive titles in this filing
- Laura MacNeill (Chief Executive Officer)
- Cleary Simpson (Vice-Chair / CEO thru 10/16/24)
Highest reported compensation
- Erich Fasnacht (Chief Operations Officer): $249,886 total reported compensation
- Anna Price (VP of Philanthropy): $191,799 total reported compensation
- Cleary Simpson (Vice-Chair / CEO thru 10/16/24): $183,333 total reported compensation
Source: IRS Form 990. Selected filing: tax year 2024. Names and roles reflect this filing, not necessarily current officeholders.
Overview
Mission
With a single focus on funding research, the CMT Research Foundation exclusively funds research leading to the discovery, development, and clinical application of treatments and cures for Charcot-Marie-Tooth (CMT).
What it reported doing in 2024
Support the most promising and efficient Charcot-Marie-Tooth research aimed only toward drug delivery by developing strategic alliances with academic and industry stakeholders.
Operating model
- Revenue model
- Donor-supported. 98% of the money available for current operations came from contributions and gifts.
- Distribution model
- Grant intermediary. The nonprofit sent 64% of its reported program spending out as grants.
The verdict
SUPPORTED - The filed numbers largely add up and most voting board members are independent. A relatively small share of available resources goes toward mission work and the filing reports few safeguards for money sent abroad.
Rating breakdown
- Financial Efficiency: 48
- Transparency & Controls: 67
- Accountability: 85
- Sustainability: 71
- Growth: 100
Detailed rating inputs
Financial Efficiency
- Mission deployment rate: 38%; rating input score 38
- Program expense ratio: 70.3%; rating input score 70
- Fundraising efficiency: $9.59 raised per $1 spent on fundraising; rating input score 36; 36th percentile among comparable filings
Transparency & Controls
- Consistency checks: 100%; rating input score 100; 63rd percentile among comparable filings
- Pay-setting controls: 2 of 6 controls in place; rating input score 33
- Compensation committee: Missing
- Independent consultant: Missing
- Other Form 990s reviewed: Missing
- Written employment contract: Pass
- Compensation survey or study: Missing
- Board or committee approval: Pass
- Foreign activity oversight: 0 of 8 controls in place; rating input score 0
- Claims monitoring procedures: Limited
- Requires narrative reports: Limited
- Conducts field audits: Limited
- May suspend future funding: Limited
- Requires financial reports: Limited
- Conducts site visits: Limited
- Requires grant agreements: Limited
- May require repayment: Limited
- Grant itemization coverage: 100%; rating input score 100; 72nd percentile among comparable filings
- Major donor itemization: Yes; rating input score 100
- Related-party transparency: Limited
Accountability
- Independent voting board: 75%; rating input score 75; 13th percentile among comparable filings
- Governance controls: 9 of 9 controls in place; rating input score 100
- Conflict-of-interest policy: Pass
- Whistleblower policy: Pass
- Document-retention policy: Pass
- CEO compensation review process: Pass
- Other executive compensation review process: Pass
- Form 990 shared with the board: Pass
- Board meeting minutes documented: Pass
- Audit committee oversight: Pass
- Independent financial-statement audit: Pass
Sustainability
- Operating margin: 47%; rating input score 91; 91st percentile among comparable filings
- Total-asset coverage ratio: 1.9; rating input score 60; 60th percentile among comparable filings
- Liabilities to assets ratio: 0.04; rating input score 74; 74th percentile among comparable filings
- Officer compensation ratio: 20.1%; rating input score 12; 12th percentile among comparable filings
Growth
- Program expense growth: 29.5% per year; rating input score 100; 92nd percentile among comparable filings
- Revenue growth: 40.1% per year; rating input score 100; 96th percentile among comparable filings
- Asset growth: 29.7% per year; rating input score 100; 93rd percentile among comparable filings
Details
- Where the money goes: 38% of revenue deployed · 70.3% of spending went to programs
- Governance: 9 of 12 board members independent · 9 of 9 filing controls reported
- Programs: 1 filed program accomplishment · $3.2M in reported program spending
- Leadership: top reported pay $250K · 15 people listed · 2 of 6 pay-setting controls reported
- Highest-paid contractors: 1 contractor listed · $275K reported
- Consistency: 38 of 38 current checks pass
- Schedules: 9 filed schedules · includes major donors, foreign activity, grants, and executive pay
- Filing history: 5 filing years from 2020 to 2024
- Contacts: How to reach this organization
- Money network: 13 filed money-flow records
- Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
- People: Everyone the filings name, and which of them the filings identify by more than a name.
- Staff and benefit plans: Retirement and health plans the organization files with the Department of Labor, and the people in them.
Key Signals
Signals prioritize questions for review. They are not findings of misconduct.
- Moderate — Financial Efficiency: Mission deployment rate scored 38/100.
- High — Transparency & Controls: Foreign activity oversight scored 0/100.
- Moderate — Financial Efficiency: Fundraising efficiency scored 36/100.
- High — Sustainability: Officer compensation ratio scored 12/100.