Children's Craniofacial Association

Nonprofit profile at a glance

EIN
752265649
IRS 990 coverage
2010–2025
Forms available
Form 990 2025
Location
Dallas, TX, USA
Phone
2145709099
Rating
82
Verdict
STRONG
Rating confidence
Moderate
Sector
Birth Defects and Genetic Diseases

Official website

Reported finances

Revenue
$1,071,253
Expenses
$820,342
Assets
$2,114,685
Liabilities
$199,825

Source: IRS Form 990. Selected filing: tax year 2025. Amounts in USD.

Leadership & pay

13 people listed

Highest reported compensation

  • ERICA KLAUBER (EXEC DIRECTO): $88,200 total reported compensation

Source: IRS Form 990. Selected filing: tax year 2025. Names and roles reflect this filing, not necessarily current officeholders.

Overview

Mission

To assist facially disfigured individuals and their families live positive, enriched lives by addressing their medical, financial, psychosocial, and educational concerns on a national and international basis.

What it reported doing in 2025

Assisted patients in finding medical care and facilities. Answered questions from patients and their families regarding medical care, arranged financial aid, promoted public awareness and acceptance of the facially disfigured by publishing materials about patients and their problems. Published newsletters, syndrome booklets, and papers to educate families, healthcare providers and others regarding issues that affect individuals with a craniofacial condition and their families. Conducted an annual family retreat and medical symposium to bring affected individuals and their families together to learn about current medical treatment, and to share support and resources that empower and give affected individuals and families hope.

Operating model

Revenue model
Donor-supported. 65% of the money available for current operations came from contributions and gifts.
Distribution model
Direct operator. The filing allocates 100% of reported program-service expenses outside its grant, affiliate-payment, and member-benefit lines. This expense classification does not rule out separately announced grant awards.

The verdict

STRONG - The filed numbers largely add up and a large share of available resources goes toward mission work. Fundraising costs are high for each dollar raised and some filing-based governance responses are negative or unanswered.

Rating breakdown

  • Financial Efficiency: 67
  • Transparency & Controls: 92
  • Accountability: 95
  • Sustainability: 65
  • Growth: 100

Detailed rating inputs

Financial Efficiency

  • Mission deployment rate: 67.6%; rating input score 68
  • Program expense ratio: 79.3%; rating input score 79
  • Fundraising efficiency: $6.62 raised per $1 spent on fundraising; rating input score 23; 23rd percentile among comparable filings

Transparency & Controls

  • Consistency checks: 100%; rating input score 100; 63rd percentile among comparable filings
  • Pay-setting controls: Limited
  • Foreign activity oversight: Limited
  • Grant itemization coverage: Limited
  • Major donor itemization: Yes; rating input score 100
  • Related-party transparency: Limited

Accountability

  • Independent voting board: 100%; rating input score 100; 64th percentile among comparable filings
  • Governance controls: 7 of 8 controls in place; rating input score 88
    • Conflict-of-interest policy: Pass
    • Whistleblower policy: Pass
    • Document-retention policy: Pass
    • CEO compensation review process: NotApplicable
    • Other executive compensation review process: Pass
    • Form 990 shared with the board: Fail
    • Board meeting minutes documented: Pass
    • Audit committee oversight: Pass
    • Independent financial-statement audit: Pass

Sustainability

  • Operating margin: 23.4%; rating input score 76; 76th percentile among comparable filings
  • Total-asset coverage ratio: 2.58; rating input score 71; 71st percentile among comparable filings
  • Liabilities to assets ratio: 0.09; rating input score 35; 35th percentile among comparable filings
  • Officer compensation ratio: 10.8%; rating input score 35; 35th percentile among comparable filings

Growth

  • Program expense growth: 4.1% per year; rating input score 100; 32nd percentile among comparable filings
  • Revenue growth: 5.3% per year; rating input score 100; 40th percentile among comparable filings
  • Asset growth: 12.5% per year; rating input score 100; 63rd percentile among comparable filings

Details

  • Where the money goes: 67.6% of revenue deployed · 79.3% of spending went to programs
  • Governance: 12 of 12 board members independent · 7 of 8 filing controls reported
  • Programs: 1 filed program accomplishment · $650K in reported program spending
  • Leadership: top reported pay $88K · 13 people listed
  • Consistency: 24 of 24 current checks pass
  • Schedules: 5 filed schedules · includes major donors
  • Filing history: 14 filing years from 2010 to 2025
  • Contacts: How to reach this organization
  • Money network: 1 filed money-flow record
  • Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
  • People: Everyone the filings name, and which of them the filings identify by more than a name.

Key Signals

Signals prioritize questions for review. They are not findings of misconduct.

  • High — Financial Efficiency: Fundraising efficiency scored 23/100.
  • Review — Accountability: Governance controls: Form 990 shared with the board not reported.
  • Moderate — Sustainability: Liabilities to assets ratio scored 35/100.
  • Moderate — Sustainability: Officer compensation ratio scored 35/100.