Children's Cancer Connection
Nonprofit profile at a glance
- EIN
- 421313167
- IRS 990 coverage
- 2010–2025
- Forms available
- Form 990 2025
- Location
- Johnston, IA, USA
- Phone
- 5152436239
- Rating
- 83
- Verdict
- STRONG
- Rating confidence
- Moderate
Reported finances
- Revenue
- $1,563,590
- Expenses
- $1,390,711
- Assets
- $2,761,575
- Liabilities
- $298,978
Source: IRS Form 990. Selected filing: tax year 2025. Amounts in USD.
Leadership & pay
10 people listed
Executive titles in this filing
- JENNIFER HINES (CHIEF EXECUTIVE OFFICER)
Highest reported compensation
- JENNIFER HINES (CHIEF EXECUTIVE OFFICER): $129,551 total reported compensation
Source: IRS Form 990. Selected filing: tax year 2025. Names and roles reflect this filing, not necessarily current officeholders.
Overview
Mission
Connecting families affected by childhood cancer by providing opportunities that encourage relationships and strengthen community.
What it reported doing in 2025
Children's cancer connection strives to be a leader in providing services from diagnosis through the entire journey. Our hospital-based programming supports the child, family, and healthcare team. Programs like the my journey series, includes my journey book, a parent resource and teaching guide for the healthcare team. Beads4bravery allows the child a way of journaling their treatment process by collecting unique beads that represent the different procedures they face. The courage store provides a tracking and reward system to help patients feel empowered throughout treatment.
Operating model
- Revenue model
- Donor-supported. 72% of the money available for current operations came from contributions and gifts.
- Distribution model
- Direct operator. The filing allocates 99% of reported program-service expenses outside its grant, affiliate-payment, and member-benefit lines. This expense classification does not rule out separately announced grant awards.
The verdict
STRONG - The filed numbers largely add up and a large share of available resources goes toward mission work. Fundraising costs are high for each dollar raised and expenses are high relative to revenue.
Rating breakdown
- Financial Efficiency: 68
- Transparency & Controls: 94
- Accountability: 100
- Sustainability: 55
- Growth: 100
Detailed rating inputs
Financial Efficiency
- Mission deployment rate: 71.1%; rating input score 71
- Program expense ratio: 78.5%; rating input score 78
- Fundraising efficiency: $6.99 raised per $1 spent on fundraising; rating input score 24; 24th percentile among comparable filings
Transparency & Controls
- Consistency checks: 100%; rating input score 100; 63rd percentile among comparable filings
- Pay-setting controls: Limited
- Foreign activity oversight: Limited
- Grant itemization coverage: 100%; rating input score 100; 78th percentile among comparable filings
- Major donor itemization: Yes; rating input score 100
- Related-party transparency: Limited
Accountability
- Independent voting board: 100%; rating input score 100; 64th percentile among comparable filings
- Governance controls: 8 of 8 controls in place; rating input score 100
- Conflict-of-interest policy: Pass
- Whistleblower policy: Pass
- Document-retention policy: Pass
- CEO compensation review process: Pass
- Other executive compensation review process: NotApplicable
- Form 990 shared with the board: Pass
- Board meeting minutes documented: Pass
- Audit committee oversight: Pass
- Independent financial-statement audit: Pass
Sustainability
- Operating margin: 11.1%; rating input score 58; 58th percentile among comparable filings
- Total-asset coverage ratio: 1.99; rating input score 64; 64th percentile among comparable filings
- Liabilities to assets ratio: 0.11; rating input score 34; 34th percentile among comparable filings
- Officer compensation ratio: 9.3%; rating input score 39; 39th percentile among comparable filings
Growth
- Program expense growth: 5.8% per year; rating input score 100; 41st percentile among comparable filings
- Revenue growth: 4.6% per year; rating input score 100; 35th percentile among comparable filings
- Asset growth: 7.4% per year; rating input score 100; 46th percentile among comparable filings
Details
- Where the money goes: 71.1% of revenue deployed · 78.5% of spending went to programs
- Governance: 9 of 9 board members independent · 8 of 8 filing controls reported
- Programs: 4 filed program accomplishments · $1.1M in reported program spending
- Leadership: top reported pay $130K · 10 people listed
- Consistency: 31 of 31 current checks pass
- Schedules: 6 filed schedules · includes major donors and grants
- Filing history: 14 filing years from 2010 to 2025
- Contacts: How to reach this organization
- Money network: 1 filed money-flow record
- Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
- People: Everyone the filings name, and which of them the filings identify by more than a name.
Key Signals
Signals prioritize questions for review. They are not findings of misconduct.
- High — Financial Efficiency: Fundraising efficiency scored 24/100.
- Review — Sustainability: Operating margin scored 58/100.
- Moderate — Sustainability: Liabilities to assets ratio scored 34/100.
- Moderate — Sustainability: Officer compensation ratio scored 39/100.