Chiari & Syringomyelia Research Foundation Inc
Nonprofit profile at a glance
- EIN
- 201959386
- IRS 990-EZ coverage
- 2010–2025
- Forms available
- Form 990-EZ 2025
- Location
- West Seneca, NY, USA
- Phone
- 7166337022
- Rating
- 85
- Verdict
- STRONG
- Rating confidence
- Moderate
- Sector
- Neurology, Neuroscience Research
Reported finances
- Revenue
- $37,399
- Expenses
- $68,934
- Assets
- $273,719
Source: IRS Form 990-EZ. Selected filing: tax year 2025. Amounts in USD.
Leadership & pay
5 people listed
Executive titles in this filing
- MARK S KANE (PRESIDENT)
People named in this filing
- MARK S KANE (PRESIDENT)
- BARBARA KANE (SECRETARY)
- KEVIN STRINGER (VICE PRESIDE)
Selected names, not a complete roster or a statement of current roles. Open leadership details for the complete filed list.
Source: IRS Form 990-EZ. Selected filing: tax year 2025. Names and roles reflect this filing, not necessarily current officeholders.
Overview
Mission
Searching for better understanding, treatments and cures for chiari malformation (cm), syringomyelia (sm), neuropathic pain and related disorders
What it reported doing in 2025
Strive for improved surgical outcomes for chiari malformation and syringomyelia patients including much lower initial complication rates. Ongoing studies: pre- and post-operative morphological characteristics associated with syrinx outcome after posterior fossa decompression for chiari malformation- australia - aproximately 50% of grant paid in 2025. We would expect to pay the remainder in 2026 - aproximately 47,000 - data from two centers collected - manual morphometric data collection is proceeding - "training the ai bot" for a separate analysis is ongoing - statical analysis and determination of "next steps" later in 2026 publish complication rates and surgical techniques from low complication rate centers to set a benchmark for all centers. -one center near submission for publication and one in the discussion stage. Updating clinical data for publication on syrinx shunt placement outcomes.
Operating model
- Revenue model
- Other-operating. 61% of the money available for current operations came from other operating revenue.
- Distribution model
- Grant intermediary. The nonprofit sent 100% of its reported program spending out as grants.
The verdict
STRONG - A large share of available resources goes toward mission work and the filed numbers largely add up. Expenses are high relative to revenue and program spending has declined or grown slowly.
Rating breakdown
- Financial Efficiency: 99
- Transparency & Controls: 82
- Sustainability: 34
- Growth: 20
Detailed rating inputs
Financial Efficiency
- Mission deployment rate: 100%; rating input score 100
- Program expense ratio: 98%; rating input score 98
Transparency & Controls
- Consistency checks: 100%; rating input score 100; 51st percentile among comparable filings
- Major donor itemization: Limited
Sustainability
- Operating margin: -84.3%; rating input score 8; 8th percentile among comparable filings
- Total-asset coverage ratio: 3.97; rating input score 80; 80th percentile among comparable filings
- Liabilities to assets ratio: Limited
- Officer compensation ratio: 0%; rating input score 56; 56th percentile among comparable filings
Growth
- Program expense growth: -0.8% per year; rating input score 0; 45th percentile among comparable filings
- Revenue growth: -5.9% per year; rating input score 0; 32nd percentile among comparable filings
- Asset growth: 3.3% per year; rating input score 100; 51st percentile among comparable filings
Details
- Where the money goes: 100% of revenue deployed · 98% of spending went to programs
- Governance: Filed governance answers
- Accomplishments: 2 filed program accomplishments · $68K in reported program spending
- Leadership: top reported pay $0 · 5 people listed
- Consistency: 7 of 7 current checks pass
- Schedules: 3 filed schedules
- Filing history: 15 filing years from 2010 to 2025
- Contacts: How to reach this organization
- Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
- People: Everyone the filings name, and which of them the filings identify by more than a name.
Key Signals
Signals prioritize questions for review. They are not findings of misconduct.
- High — Sustainability: Operating margin scored 8/100.
- High — Growth: Program expense growth scored 0/100.
- High — Growth: Revenue growth scored 0/100.
- Review — Sustainability: Officer compensation ratio scored 56/100.