Cerebral Palsy Foundation Inc

Nonprofit profile at a glance

EIN
136093337
IRS 990 coverage
2009–2024
Forms available
Form 990 2024
Location
New York, NY, USA
Phone
2125201686
Rating
84
Verdict
STRONG
Rating confidence
Standard

Official website

Reported finances

Revenue
$4,490,185
Expenses
$5,347,918
Assets
$2,066,811
Liabilities
$352,718

Source: IRS Form 990. Selected filing: tax year 2024. Amounts in USD.

Leadership & pay

15 people listed

Executive titles in this filing

  • RACHEL JORDAN (EXECUTIVE DIRECTOR)
  • CYNTHIA FRISINA (VICE PRESIDENT OF PARTNERSHIPS)

Highest reported compensation

  • RACHEL JORDAN (EXECUTIVE DIRECTOR): $236,529 total reported compensation
  • CYNTHIA FRISINA (VICE PRESIDENT OF PARTNERSHIPS): $147,000 total reported compensation
  • REBECCA LAM (VP OF PROGRAMS AND OPERATIONS): $141,581 total reported compensation

Source: IRS Form 990. Selected filing: tax year 2024. Names and roles reflect this filing, not necessarily current officeholders.

Overview

Mission

The foundation develops and spearheads initiatives designed to change lives today for people with cerebral palsy through research, innovation, and collaboration.

What it reported doing in 2024

The foundation provides financial support to rigorously reviewed, scientifically important research relevant to cerebral palsy and other developmental disabilities. The foundation also provides medical expertise, as requested by other organizations, and serves as a resource for the international public, clinicians, and policy-makers about best health care practices, prevention, and curative strategies for cerebral palsy. The foundation is also focusing its attention on research directed at issues of early diagnosis, mechanisms of nervous system injury and repair, regenerative treatments, neurological rehabilitation, orthopedic rehabilitation and engineering solutions, as well as research to prevent the secondary neuromuscular, musculoskeletal, and cardiovascular complications seen in adults with cerebral palsy. There are approximately 1 million children and adults in the USA with cerebral palsy and related developmental disabilities, more clinical and basic biomedical research is urgently needed for improving neurological functions, preventing medical complications, and optimizing quality of life in these individuals from infancy through adulthood.

Operating model

Revenue model
Donor-supported. 90% of the money available for current operations came from contributions and gifts.
Distribution model
Grant intermediary. The nonprofit sent 63% of its reported program spending out as grants.

The verdict

STRONG - A large share of available resources goes toward mission work and the filed numbers largely add up. The filing reports few safeguards for money sent abroad and expenses are high relative to revenue.

Rating breakdown

  • Financial Efficiency: 97
  • Transparency & Controls: 79
  • Accountability: 82
  • Sustainability: 16
  • Growth: 80

Detailed rating inputs

Financial Efficiency

  • Mission deployment rate: 100%; rating input score 100
  • Program expense ratio: 95.8%; rating input score 96
  • Fundraising efficiency: $70.42 raised per $1 spent on fundraising; rating input score 83; 83rd percentile among comparable filings

Transparency & Controls

  • Consistency checks: 100%; rating input score 100; 63rd percentile among comparable filings
  • Pay-setting controls: 3 of 6 controls in place; rating input score 50
    • Compensation committee: Pass
    • Independent consultant: Missing
    • Other Form 990s reviewed: Pass
    • Written employment contract: Missing
    • Compensation survey or study: Missing
    • Board or committee approval: Pass
  • Foreign activity oversight: 3 of 8 controls in place; rating input score 38
    • Claims monitoring procedures: Pass
    • Requires narrative reports: Pass
    • Conducts field audits: Fail
    • May suspend future funding: Fail
    • Requires financial reports: Pass
    • Conducts site visits: Fail
    • Requires grant agreements: Fail
    • May require repayment: Fail
  • Grant itemization coverage: 100%; rating input score 100; 72nd percentile among comparable filings
  • Major donor itemization: Yes; rating input score 100
  • Related-party transparency: Limited

Accountability

  • Independent voting board: 92.3%; rating input score 92; 23rd percentile among comparable filings
  • Governance controls: 6 of 9 controls in place; rating input score 67
    • Conflict-of-interest policy: Pass
    • Whistleblower policy: Pass
    • Document-retention policy: Pass
    • CEO compensation review process: Pass
    • Other executive compensation review process: Fail
    • Form 990 shared with the board: Pass
    • Board meeting minutes documented: Pass
    • Audit committee oversight: Missing
    • Independent financial-statement audit: Fail

Sustainability

  • Operating margin: -19.1%; rating input score 7; 7th percentile among comparable filings
  • Total-asset coverage ratio: 0.39; rating input score 13; 13th percentile among comparable filings
  • Liabilities to assets ratio: 0.17; rating input score 48; 48th percentile among comparable filings
  • Officer compensation ratio: 9.8%; rating input score 30; 30th percentile among comparable filings

Growth

  • Program expense growth: 9.4% per year; rating input score 100; 62nd percentile among comparable filings
  • Revenue growth: 7.1% per year; rating input score 100; 55th percentile among comparable filings
  • Asset growth: -5.3% per year; rating input score 0; 3rd percentile among comparable filings

Details

  • Where the money goes: 100% of revenue deployed · 95.8% of spending went to programs
  • Governance: 12 of 13 board members independent · 6 of 9 filing controls reported
  • Programs: 1 filed program accomplishment · $5.1M in reported program spending
  • Leadership: top reported pay $237K · 15 people listed · 3 of 6 pay-setting controls reported
  • Consistency: 39 of 39 current checks pass
  • Schedules: 8 filed schedules · includes major donors, foreign activity, grants, and executive pay
  • Filing history: 16 filing years from 2009 to 2024
  • Contacts: How to reach this organization
  • Money network: 11 filed money-flow records
  • Related organizations: 8 filed related-organization links
  • Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
  • People: Everyone the filings name, and which of them the filings identify by more than a name.
  • Staff and benefit plans: Retirement and health plans the organization files with the Department of Labor, and the people in them.

Key Signals

Signals prioritize questions for review. They are not findings of misconduct.

  • Moderate — Transparency & Controls: Foreign activity oversight: 5 of 8 not reported.
  • High — Sustainability: Operating margin scored 7/100.
  • Review — Accountability: Governance controls: 2 of 8 not reported.
  • High — Sustainability: Total-asset coverage ratio scored 13/100.
  • High — Growth: Asset growth scored 0/100.
  • Moderate — Sustainability: Officer compensation ratio scored 30/100.
  • Moderate — Sustainability: Liabilities to assets ratio scored 48/100.