Center for Information and Study on Clinical Research Participation Inc

Nonprofit profile at a glance

EIN
200588190
IRS 990 coverage
2010–2025
Forms available
Form 990 2025
Location
Boston, MA, USA
Phone
6177252750
Rating
73
Verdict
SUPPORTED
Rating confidence
Moderate
Sector
Medical Research N.E.C.

Official website

Reported finances

Revenue
$13,860,918
Expenses
$12,717,765
Assets
$10,437,018
Liabilities
$2,259,398

Source: IRS Form 990. Selected filing: tax year 2025. Amounts in USD.

Leadership & pay

11 people listed

Highest reported compensation

  • CAROLINE CASEY (CFO & COO): $305,084 total reported compensation
  • ANNICK DEBRUIN (CHIEF RESEARCH AND INSIGHTS OFFICER): $269,450 total reported compensation
  • JASMINE MASULLO (SR. DIRECTOR, RESEARCH SERVICES): $177,744 total reported compensation

Source: IRS Form 990. Selected filing: tax year 2025. Names and roles reflect this filing, not necessarily current officeholders.

Overview

Mission

Our core mission is to provide accessible, relevant, useful, high-quality educational resources, programs, and services that increase awareness and understanding of the clinical research process; recognize and appreciate the unprecedented gift of participation in clinical trials; enhance and enrich the participation experience for patients and their families; and promote engagement and partnership between clinical research professionals, patients, and the public.

What it reported doing in 2025

Research services - engaging patients and their support network to obtain meaningful insights for sponsors - including but not limited to pharmaceutical, biotechnology and medical device companies, contract research organizations, academic and for-profit institutions, foundations and nonprofit organizations. Provide patient & care partner advisory boards, clinical trial journey workshops, and custom research projects.

Operating model

Revenue model
Earned-program. 96% of the money available for current operations came from fees and other program revenue.
Distribution model
Direct operator. The filing allocates 100% of reported program-service expenses outside its grant, affiliate-payment, and member-benefit lines. This expense classification does not rule out separately announced grant awards.

The verdict

SUPPORTED - A large share of available resources goes toward mission work and the filed numbers largely add up. Fundraising costs are high for each dollar raised and total assets are small relative to annual expenses; liquid coverage is unknown.

Rating breakdown

  • Financial Efficiency: 71
  • Transparency & Controls: 70
  • Accountability: 85
  • Sustainability: 41
  • Growth: 100

Detailed rating inputs

Financial Efficiency

  • Mission deployment rate: 77.4%; rating input score 77
  • Program expense ratio: 85%; rating input score 85
  • Fundraising efficiency: $1.02 raised per $1 spent on fundraising; rating input score 2; 2nd percentile among comparable filings

Transparency & Controls

  • Consistency checks: 100%; rating input score 100; 64th percentile among comparable filings
  • Pay-setting controls: 1 of 6 controls in place; rating input score 17
    • Compensation committee: Missing
    • Independent consultant: Missing
    • Other Form 990s reviewed: Missing
    • Written employment contract: Missing
    • Compensation survey or study: Missing
    • Board or committee approval: Pass
  • Foreign activity oversight: Limited
  • Grant itemization coverage: Limited
  • Major donor itemization: Yes; rating input score 100
  • Related-party transparency: Limited

Accountability

  • Independent voting board: 75%; rating input score 75; 12th percentile among comparable filings
  • Governance controls: 8 of 9 controls in place; rating input score 100
    • Conflict-of-interest policy: Pass
    • Whistleblower policy: Pass
    • Document-retention policy: Pass
    • CEO compensation review process: Limited
    • Other executive compensation review process: Pass
    • Form 990 shared with the board: Pass
    • Board meeting minutes documented: Pass
    • Audit committee oversight: Pass
    • Independent financial-statement audit: Pass

Sustainability

  • Operating margin: 8.2%; rating input score 54; 54th percentile among comparable filings
  • Total-asset coverage ratio: 0.82; rating input score 23; 23rd percentile among comparable filings
  • Liabilities to assets ratio: 0.22; rating input score 50; 50th percentile among comparable filings
  • Officer compensation ratio: 10.5%; rating input score 22; 22nd percentile among comparable filings

Growth

  • Program expense growth: 17.9% per year; rating input score 100; 85th percentile among comparable filings
  • Revenue growth: 17.8% per year; rating input score 100; 90th percentile among comparable filings
  • Asset growth: 19.7% per year; rating input score 100; 90th percentile among comparable filings

Details

  • Where the money goes: 77.4% of revenue deployed · 85% of spending went to programs
  • Governance: 3 of 4 board members independent · 8 of 9 filing controls reported
  • Programs: 4 filed program accomplishments · $10.8M in reported program spending
  • Leadership: top reported pay $305K · 11 people listed · 1 of 6 pay-setting controls reported
  • Highest-paid contractors: 2 contractors listed · $329K reported
  • Consistency: 31 of 31 current checks pass
  • Schedules: 5 filed schedules · includes major donors and executive pay
  • Filing history: 16 filing years from 2010 to 2025
  • Contacts: How to reach this organization
  • Money network: 7 filed money-flow records
  • Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
  • People: Everyone the filings name, and which of them the filings identify by more than a name.
  • Staff and benefit plans: Retirement and health plans the organization files with the Department of Labor, and the people in them.

Key Signals

Signals prioritize questions for review. They are not findings of misconduct.

  • High — Financial Efficiency: Fundraising efficiency scored 2/100.
  • High — Sustainability: Total-asset coverage ratio scored 23/100.
  • Review — Sustainability: Operating margin scored 54/100.
  • High — Sustainability: Officer compensation ratio scored 22/100.
  • Review — Sustainability: Liabilities to assets ratio scored 50/100.