Center for Human Genetics Inc

Nonprofit profile at a glance

EIN
043154223
IRS 990 coverage
2010–2024
Forms available
Form 990 2024
Location
Cambridge, MA, USA
Phone
6174927092
Rating
63
Verdict
SUPPORTED
Rating confidence
Moderate
Sector
Birth Defects, Genetic Diseases Research

Official website

Reported finances

Revenue
$3,179,113
Expenses
$3,373,349
Assets
$14,111,114
Liabilities
$895,114

Source: IRS Form 990. Selected filing: tax year 2024. Amounts in USD.

Leadership & pay

3 people listed

Executive titles in this filing

  • AUBREY MILUNSKY (PRESIDENT)

Highest reported compensation

  • JEFFREY MILUNSKY (TREASURER): $424,268 total reported compensation
  • AUBREY MILUNSKY (PRESIDENT): $100,000 total reported compensation

Source: IRS Form 990. Selected filing: tax year 2024. Names and roles reflect this filing, not necessarily current officeholders.

Overview

Mission

To function as a local and national clinic and diagnostic reference resource for birth defect and genetic disorders; to provide technology and services to referring physicians and patients for the benefit of all persons suffering from illness, defects or disorders; to teach medical students, residents, fellows and other personnel engaged in health services and health education; to advance scientific knowledge through research; to take active part in the planning for and the promotion of the specific genetic and general mental and physical health and human needs and interests of the local and national patient popuation and their physicians; to provide services related to genetics; to gather data and analyze it for the purpose of sharing it generally with the local, national and international medical communities; to improve and develop testing protocols and knowledge and to share such results freely and openly; to establish, own, operate, conduct or maintain facilities for teaching.

What it reported doing in 2024

Provide clinical diagnostic testing and other related medical research and services in the areas of birth and other genetics disorders to patients, hospitals, and other organizations within the medical community.

Operating model

Revenue model
Earned-program. 96% of the money available for current operations came from fees and other program revenue.
Distribution model
Direct operator. The filing allocates 100% of reported program-service expenses outside its grant, affiliate-payment, and member-benefit lines. This expense classification does not rule out separately announced grant awards.

The verdict

SUPPORTED - A large share of available resources goes toward mission work and the filed numbers largely add up. A relatively small share of voting board members are independent and revenue has declined or grown slowly.

Rating breakdown

  • Financial Efficiency: 71
  • Transparency & Controls: 66
  • Accountability: 52
  • Sustainability: 42
  • Growth: 40

Detailed rating inputs

Financial Efficiency

  • Mission deployment rate: 80.7%; rating input score 81
  • Program expense ratio: 79.1%; rating input score 79
  • Fundraising efficiency: Limited

Transparency & Controls

  • Consistency checks: 100%; rating input score 100; 63rd percentile among comparable filings
  • Pay-setting controls: 1 of 6 controls in place; rating input score 17
    • Compensation committee: Missing
    • Independent consultant: Missing
    • Other Form 990s reviewed: Missing
    • Written employment contract: Pass
    • Compensation survey or study: Missing
    • Board or committee approval: Missing
  • Foreign activity oversight: Limited
  • Grant itemization coverage: Limited
  • Major donor itemization: Limited
  • Related-party transparency: Limited

Accountability

  • Independent voting board: 33.3%; rating input score 33; 7th percentile among comparable filings
  • Governance controls: 7 of 9 controls in place; rating input score 78
    • Conflict-of-interest policy: Pass
    • Whistleblower policy: Pass
    • Document-retention policy: Pass
    • CEO compensation review process: Fail
    • Other executive compensation review process: Fail
    • Form 990 shared with the board: Pass
    • Board meeting minutes documented: Pass
    • Audit committee oversight: Pass
    • Independent financial-statement audit: Pass

Sustainability

  • Operating margin: -6.1%; rating input score 18; 18th percentile among comparable filings
  • Total-asset coverage ratio: 4.18; rating input score 81; 81st percentile among comparable filings
  • Liabilities to assets ratio: 0.06; rating input score 66; 66th percentile among comparable filings
  • Officer compensation ratio: 15.5%; rating input score 18; 18th percentile among comparable filings

Growth

  • Program expense growth: 0% per year; rating input score 100; 14th percentile among comparable filings
  • Revenue growth: -5.7% per year; rating input score 0; 3rd percentile among comparable filings
  • Asset growth: -2.3% per year; rating input score 0; 7th percentile among comparable filings

Details

  • Where the money goes: 80.7% of revenue deployed · 79.1% of spending went to programs
  • Governance: 1 of 3 board members independent · 7 of 9 filing controls reported
  • Programs: 1 filed program accomplishment · $2.7M in reported program spending
  • Leadership: top reported pay $424K · 3 people listed · 1 of 6 pay-setting controls reported
  • Consistency: 26 of 26 current checks pass
  • Schedules: 5 filed schedules · includes executive pay
  • Filing history: 15 filing years from 2010 to 2024
  • Contacts: How to reach this organization
  • Money network: 2 filed money-flow records
  • Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
  • People: Everyone the filings name, and which of them the filings identify by more than a name.
  • Staff and benefit plans: Retirement and health plans the organization files with the Department of Labor, and the people in them.

Key Signals

Signals prioritize questions for review. They are not findings of misconduct.

  • Moderate — Accountability: Independent voting board scored 33/100.
  • High — Growth: Revenue growth scored 0/100.
  • High — Sustainability: Operating margin scored 18/100.
  • Review — Accountability: Governance controls: 2 of 9 not reported.
  • High — Growth: Asset growth scored 0/100.
  • High — Sustainability: Officer compensation ratio scored 18/100.