Cancer Cachexia Society Inc

Nonprofit profile at a glance

EIN
831771930
IRS 990 coverage
2023–2025
Forms available
Form 990 2025, Form 990-EZ 2024
Location
Issaquah, WA, USA
Phone
2633621140
Rating
69
Verdict
SUPPORTED
Rating confidence
Moderate
Sector
Cancer Research

Official website

Reported finances

Revenue
$621,686
Expenses
$295,606
Assets
$470,960
Liabilities
$0

Source: IRS Form 990. Selected filing: tax year 2025. Amounts in USD.

Leadership & pay

13 people listed

Executive titles in this filing

  • Jose Garcia MD PhD (President)
  • Richard Skipworth MD (Vice President)

People named in this filing

  • Andrea Bonetto PHD (Board Member)
  • Paul Gregorevic PhD (Secretary)
  • Andrew Judge PhD (Board Member)

Selected names, not a complete roster or a statement of current roles. Open leadership details for the complete filed list.

Source: IRS Form 990. Selected filing: tax year 2025. Names and roles reflect this filing, not necessarily current officeholders.

Overview

Mission

The goal of our society is to bring an awareness of cachexia to the oncology field, so as to accelerate research to improve diagnosis and treatment strategies. We also seek to perform community outreach to inform patients about this syndrome and current treatment options. We hope to accomplish these goals by providing useful educational resources such as hosting biennial international conferences and online seminars, sharing the latest pre-clinical and clinical findings, and creating networking opportunities. We invite you to join our growing community of scientists, clinicians, patients, and caregivers that together are committed to making a difference in how we discover and treat cancer cachexia.

Operating model

Revenue model
Donor-supported. 76% of the money available for current operations came from contributions and gifts.
Distribution model
Direct operator. The filing allocates 100% of reported program-service expenses outside its grant, affiliate-payment, and member-benefit lines. This expense classification does not rule out separately announced grant awards.

The verdict

SUPPORTED - The filed numbers largely add up and program spending has grown recently. A relatively small share of available resources goes toward mission work and some filing-based governance responses are negative or unanswered.

Rating breakdown

  • Financial Efficiency: 53
  • Transparency & Controls: 92
  • Accountability: 58
  • Sustainability: 79
  • Growth: 100

Detailed rating inputs

Financial Efficiency

  • Mission deployment rate: 42.4%; rating input score 42
  • Program expense ratio: 89.3%; rating input score 89
  • Fundraising efficiency: Limited

Transparency & Controls

  • Consistency checks: 100%; rating input score 100; 63rd percentile among comparable filings
  • Pay-setting controls: Limited
  • Foreign activity oversight: Limited
  • Grant itemization coverage: Limited
  • Major donor itemization: Yes; rating input score 100
  • Related-party transparency: Limited

Accountability

  • Independent voting board: 100%; rating input score 100; 64th percentile among comparable filings
  • Governance controls: 0 of 7 controls in place; rating input score 0
    • Conflict-of-interest policy: Fail
    • Whistleblower policy: Fail
    • Document-retention policy: Fail
    • CEO compensation review process: NotApplicable
    • Other executive compensation review process: NotApplicable
    • Form 990 shared with the board: Fail
    • Board meeting minutes documented: Fail
    • Audit committee oversight: Missing
    • Independent financial-statement audit: Fail

Sustainability

  • Operating margin: 52.5%; rating input score 91; 91st percentile among comparable filings
  • Total-asset coverage ratio: 1.59; rating input score 57; 57th percentile among comparable filings
  • Liabilities to assets ratio: 0; rating input score 88; 88th percentile among comparable filings
  • Officer compensation ratio: 0%; rating input score 78; 78th percentile among comparable filings

Growth

  • Program expense growth: 4.5% per year; rating input score 100; 34th percentile among comparable filings
  • Revenue growth: 36.6% per year; rating input score 100; 93rd percentile among comparable filings
  • Asset growth: 35.2% per year; rating input score 100; 91st percentile among comparable filings

Details

  • Where the money goes: 42.4% of revenue deployed · 89.3% of spending went to programs
  • Governance: 13 of 13 board members independent · 0 of 7 filing controls reported
  • Programs: 2 filed program accomplishments · $264K in reported program spending
  • Leadership: top reported pay $0 · 13 people listed
  • Consistency: 15 of 16 current checks pass · 1 finding to review
  • Schedules: 3 filed schedules · includes major donors
  • Filing history: 2 filing years from 2023 to 2025
  • Contacts: How to reach this organization
  • Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
  • People: Everyone the filings name, and which of them the filings identify by more than a name.

Key Signals

Signals prioritize questions for review. They are not findings of misconduct.

  • Moderate — Financial Efficiency: Mission deployment rate scored 42/100.
  • High — Accountability: Governance controls: 6 of 6 not reported.
  • Moderate — Transparency & Controls: Schedule A contributions reconciliation did not reconcile in the filed values.
  • Review — Sustainability: Total-asset coverage ratio scored 57/100.