Breathestrong Cf Inc

Nonprofit profile at a glance

EIN
264020016
IRS 990 coverage
2019–2024
Forms available
Form 990 2024, Form 990-EZ 2017
Location
Tucker, GA, USA
Phone
6789386054
Rating
81
Verdict
STRONG
Rating confidence
Moderate
Sector
Philanthropy, Voluntarism, and Grantmaking Foundations N.E.C.

Reported finances

Revenue
$1,240,249
Expenses
$897,919
Assets
$969,265
Liabilities
$52,230

Source: IRS Form 990. Selected filing: tax year 2024. Amounts in USD.

Leadership & pay

10 people listed

Executive titles in this filing

  • DR PETER H SCOTT (President)

Highest reported compensation

  • REBECCA PENUEL (Executive Dir.): $78,461 total reported compensation

Source: IRS Form 990. Selected filing: tax year 2024. Names and roles reflect this filing, not necessarily current officeholders.

Overview

Mission

BreatheStrong CF promotes awareness in various ways for the cause of cystic fibrosis, conducting outreach and fundraising involving running-related events and other activities for the support and enhancement of the cystic fibrosis community. BreatheStrong CF promotes and advances the well-being of people with cystic fibrosis through education, direct support, and providing opportunities to thrive.

What it reported doing in 2024

For year ended December 31, 2024, BreatheStrong CF, Inc. operated the following programs:(i)BreatheStrong CF Exercise Grant program: The BreatheStrong CF exercise grant program encourages children and adults with cystic fibrosis to make exercise a part of their lifestyle and treatment regimen. Exercise strengthens lungs, aids in airway clearance, increases appetite, and builds endurance. The Organization provides exercise grants for individuals living with CF who would benefit from healthy physical activities and need encouragement and financial assistance to do so. In 2024, 555 exercise grants were given to recipients in 46 states in the United States.(ii)BreatheStrong+: BreatheStrong+ is a year-round, virtual wellness program focused on fitness and nutrition as well as the impact wellness has on mental health for people with CF and their communities. The program provides education, resources, encouragement, motivation, and a sense of community for a focus on international health and wellness.Participation in the program includes the opportunity to be considered for a quarterly Afflo Vest mobile airway clearance vest giveaway for individuals with CF in the United States. The Organization provided AffloVests valued at $15,900 each to two adults and one child with cystic fibrosis.(iii)Susan C. Burroughs Critical Needs Initiative: The Susan C. Burroughs Critical Needs Initiative provides assistance with groceries and/or fuel for CF families in Georgia who are facing financial hardship and have been identified by their CF social worker as requiring assistance with immediate needs. In 2024, BreatheStrong CF, Inc. provided 309 instances of support for Georgia families and/or CF families in the Southeast affected by hurricanes Helene and Milton.(iv)Mens Sexual and Reproductive Health Initiative: The Mens Sexual and Reproductive Health Initiative addresses previously overlooked health concerns. This includes hormonal imbalances, infertility, body image, and sexual function. Appealing to a national audience, virtual sessions were held to provide expert-led discussions and resources for males living with cystic fibrosis.

Operating model

Revenue model
Donor-supported. 98% of the money available for current operations came from contributions and gifts.
Distribution model
Grant intermediary. The nonprofit sent 66% of its reported program spending out as grants.
  • Includes noncash contributions: Reported contributions include donated property or goods.

The verdict

STRONG - The filed numbers largely add up and a large share of available resources goes toward mission work. Fundraising costs are high for each dollar raised and some filing-based governance responses are negative or unanswered.

Rating breakdown

  • Financial Efficiency: 66
  • Transparency & Controls: 90
  • Accountability: 95
  • Sustainability: 63
  • Growth: 100

Detailed rating inputs

Financial Efficiency

  • Mission deployment rate: 60%; rating input score 60
  • Program expense ratio: 81.5%; rating input score 81
  • Fundraising efficiency: $17.94 raised per $1 spent on fundraising; rating input score 55; 55th percentile among comparable filings

Transparency & Controls

  • Consistency checks: 94.1%; rating input score 94; 25th percentile among comparable filings
  • Pay-setting controls: Limited
  • Foreign activity oversight: Limited
  • Grant itemization coverage: 100%; rating input score 100; 76th percentile among comparable filings
  • Major donor itemization: Yes; rating input score 100
  • Related-party transparency: Limited

Accountability

  • Independent voting board: 100%; rating input score 100; 63rd percentile among comparable filings
  • Governance controls: 7 of 8 controls in place; rating input score 88
    • Conflict-of-interest policy: Pass
    • Whistleblower policy: Pass
    • Document-retention policy: Pass
    • CEO compensation review process: NotApplicable
    • Other executive compensation review process: Pass
    • Form 990 shared with the board: Pass
    • Board meeting minutes documented: Pass
    • Audit committee oversight: Fail
    • Independent financial-statement audit: Pass

Sustainability

  • Operating margin: 27.6%; rating input score 83; 83rd percentile among comparable filings
  • Total-asset coverage ratio: 1.08; rating input score 45; 45th percentile among comparable filings
  • Liabilities to assets ratio: 0.05; rating input score 51; 51st percentile among comparable filings
  • Officer compensation ratio: 8.7%; rating input score 41; 41st percentile among comparable filings

Growth

  • Program expense growth: 28.1% per year; rating input score 100; 89th percentile among comparable filings
  • Revenue growth: 18.2% per year; rating input score 100; 83rd percentile among comparable filings
  • Asset growth: 23.6% per year; rating input score 100; 86th percentile among comparable filings

Details

  • Where the money goes: 60% of revenue deployed · 81.5% of spending went to programs
  • Governance: 9 of 9 board members independent · 7 of 8 filing controls reported
  • Programs: 1 filed program accomplishment · $732K in reported program spending
  • Leadership: top reported pay $78K · 10 people listed
  • Consistency: 29 of 30 current checks pass · 1 finding to review
  • Schedules: 7 filed schedules · includes major donors and grants
  • Filing history: 5 filing years from 2019 to 2024
  • Contacts: How to reach this organization
  • Money network: 1 filed money-flow record
  • Related organizations: Filed and resolved organization relationships.
  • Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
  • People: Everyone the filings name, and which of them the filings identify by more than a name.

Key Signals

Signals prioritize questions for review. They are not findings of misconduct.

  • Review — Financial Efficiency: Fundraising efficiency scored 55/100.
  • Review — Accountability: Governance controls: Audit committee oversight not reported.
  • Moderate — Sustainability: Total-asset coverage ratio scored 45/100.
  • Moderate — Transparency & Controls: Schedule A contributions reconciliation did not reconcile in the filed values.
  • Moderate — Sustainability: Officer compensation ratio scored 41/100.
  • Review — Sustainability: Liabilities to assets ratio scored 51/100.