Boston International Turner Syndrome Summit
Nonprofit profile at a glance
- EIN
- 810692862
- IRS 990-EZ coverage
- 2023–2025
- Forms available
- Form 990-EZ 2025, Form 990-N 2023
- Location
- Mansfield, MA, USA
- Phone
- 6176404582
- Rating
- 84
- Verdict
- STRONG
- Rating confidence
- Moderate
- Sector
- Youth Development N.E.C.
Reported finances
- Revenue
- $51,286
- Expenses
- $55,389
- Assets
- $47,097
- Liabilities
- $0
Source: IRS Form 990-EZ. Selected filing: tax year 2025. Amounts in USD.
Leadership & pay
12 people listed
Executive titles in this filing
- Lori Harris (President)
People named in this filing
- Lori Harris (President)
- Sydney DeCosta (Member at Large)
- Michelle Contos (Project Management Director)
Selected names, not a complete roster or a statement of current roles. Open leadership details for the complete filed list.
Source: IRS Form 990-EZ. Selected filing: tax year 2025. Names and roles reflect this filing, not necessarily current officeholders.
Overview
Mission
Turner Syndrome patient education and support.
What it reported doing in 2025
Other Program Expenses totaling $12,020 (Program Operating Expenses of $2,796, outside food $1,176, Entertainment Expenses of $1,650, Tours Expenses of $864, Bus and other transportation expenses of $1,949, staff and contractor travel expenses of $2,179).
Operating model
- Revenue model
- Earned-program. 64% of the money available for current operations came from fees and other program revenue.
- Distribution model
- Member-benefit provider. The nonprofit used 81% of its reported program spending for member benefits.
The verdict
STRONG - A large share of available resources goes toward mission work and the filed numbers largely add up. Program spending has declined or grown slowly and revenue has declined or grown slowly.
Rating breakdown
- Financial Efficiency: 98
- Transparency & Controls: 82
- Sustainability: 42
- Growth: 0
Detailed rating inputs
Financial Efficiency
- Mission deployment rate: 100%; rating input score 100
- Program expense ratio: 95.2%; rating input score 95
Transparency & Controls
- Consistency checks: 100%; rating input score 100; 51st percentile among comparable filings
- Major donor itemization: Limited
Sustainability
- Operating margin: -8%; rating input score 31; 31st percentile among comparable filings
- Total-asset coverage ratio: 0.85; rating input score 43; 43rd percentile among comparable filings
- Liabilities to assets ratio: 0; rating input score 66; 66th percentile among comparable filings
- Officer compensation ratio: 0%; rating input score 56; 56th percentile among comparable filings
Growth
- Program expense growth: -1.9% per year; rating input score 0; 42nd percentile among comparable filings
- Revenue growth: -17.2% per year; rating input score 0; 17th percentile among comparable filings
- Asset growth: -7.2% per year; rating input score 0; 21st percentile among comparable filings
Details
- Where the money goes: 100% of revenue deployed · 95.2% of spending went to programs
- Governance: Filed governance answers
- Accomplishments: 4 filed program accomplishments · $53K in reported program spending
- Leadership: top reported pay $0 · 12 people listed
- Consistency: 9 of 9 current checks pass
- Schedules: 2 filed schedules
- Filing history: 3 filing years from 2023 to 2025
- Contacts: How to reach this organization
- Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
- People: Everyone the filings name, and which of them the filings identify by more than a name.
Key Signals
Signals prioritize questions for review. They are not findings of misconduct.
- High — Growth: Program expense growth scored 0/100.
- High — Growth: Revenue growth scored 0/100.
- Moderate — Sustainability: Operating margin scored 31/100.
- High — Growth: Asset growth scored 0/100.
- Moderate — Sustainability: Total-asset coverage ratio scored 43/100.
- Review — Sustainability: Officer compensation ratio scored 56/100.