Blood & Marrow Transplant Information Network

Nonprofit profile at a glance

EIN
363774980
IRS 990 coverage
2010–2025
Forms available
Form 990 2025
Location
Highland Park, IL, USA
Phone
8885977674
Rating
81
Verdict
STRONG
Rating confidence
Moderate
Sector
Printing, Publishing

Official website

Reported finances

Revenue
$704,913
Expenses
$889,867
Assets
$925,849
Liabilities
$27,611

Source: IRS Form 990. Selected filing: tax year 2025. Amounts in USD.

Leadership & pay

5 people listed

Highest reported compensation

  • SUSAN K STEWART (Executive Dir.): $97,660 total reported compensation

Source: IRS Form 990. Selected filing: tax year 2025. Names and roles reflect this filing, not necessarily current officeholders.

Overview

Mission

Blood & marrow transplant information network (bmt infonet) is a not-for-profit 501(c)(3) organization dedicated to providing patients and their loved ones with emotional support, and high-quality easy-to-understand information about blood stem cell transplants (bone marrow, peripheral blood, and cord blood) and other cellular therapies.

What it reported doing in 2025

Special projects: 1-enhanced the online directory of mental health professionals who had experience working with stem cell transplant and/or cart-t therapy. The directory is searchable by experience level, age of patient, languages spoken and state. 2-expanded the online directory of transplant centers, searchable by disease, treatment and location. 3-expanded the number of virtual support groups that offer mental health counseling direct to patients and their caregivers. 4-continued offering a mental health training program specifically for the facilitators of the support groups.

Operating model

Revenue model
Donor-supported. 79% of the money available for current operations came from contributions and gifts.
Distribution model
Direct operator. The filing allocates 81% of reported program-service expenses outside its grant, affiliate-payment, and member-benefit lines. This expense classification does not rule out separately announced grant awards.

The verdict

STRONG - A large share of available resources goes toward mission work and the filed numbers largely add up. Some filing-based governance responses are negative or unanswered and expenses are high relative to revenue.

Rating breakdown

  • Financial Efficiency: 91
  • Transparency & Controls: 94
  • Accountability: 51
  • Sustainability: 25
  • Growth: 100

Detailed rating inputs

Financial Efficiency

  • Mission deployment rate: 100%; rating input score 100
  • Program expense ratio: 87.4%; rating input score 87
  • Fundraising efficiency: $19.12 raised per $1 spent on fundraising; rating input score 54; 54th percentile among comparable filings

Transparency & Controls

  • Consistency checks: 100%; rating input score 100; 63rd percentile among comparable filings
  • Pay-setting controls: Limited
  • Foreign activity oversight: Limited
  • Grant itemization coverage: 100%; rating input score 100; 78th percentile among comparable filings
  • Major donor itemization: Yes; rating input score 100
  • Related-party transparency: Limited

Accountability

  • Independent voting board: 60%; rating input score 60; 16th percentile among comparable filings
  • Governance controls: 3 of 8 controls in place; rating input score 38
    • Conflict-of-interest policy: Fail
    • Whistleblower policy: Fail
    • Document-retention policy: Fail
    • CEO compensation review process: NotApplicable
    • Other executive compensation review process: Fail
    • Form 990 shared with the board: Pass
    • Board meeting minutes documented: Pass
    • Audit committee oversight: Fail
    • Independent financial-statement audit: Pass

Sustainability

  • Operating margin: -26.2%; rating input score 5; 5th percentile among comparable filings
  • Total-asset coverage ratio: 1.04; rating input score 44; 44th percentile among comparable filings
  • Liabilities to assets ratio: 0.03; rating input score 49; 49th percentile among comparable filings
  • Officer compensation ratio: 11%; rating input score 34; 34th percentile among comparable filings

Growth

  • Program expense growth: 10% per year; rating input score 100; 58th percentile among comparable filings
  • Revenue growth: 6.1% per year; rating input score 100; 43rd percentile among comparable filings
  • Asset growth: 13.4% per year; rating input score 100; 65th percentile among comparable filings

Details

  • Where the money goes: 100% of revenue deployed · 87.4% of spending went to programs
  • Governance: 3 of 5 board members independent · 3 of 8 filing controls reported
  • Programs: 5 filed program accomplishments · $778K in reported program spending
  • Leadership: top reported pay $98K · 5 people listed
  • Consistency: 31 of 31 current checks pass
  • Schedules: 5 filed schedules · includes major donors and grants
  • Filing history: 16 filing years from 2010 to 2025
  • Contacts: How to reach this organization
  • Money network: 1 filed money-flow record
  • Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
  • People: Everyone the filings name, and which of them the filings identify by more than a name.

Key Signals

Signals prioritize questions for review. They are not findings of misconduct.

  • Moderate — Accountability: Governance controls: 5 of 8 not reported.
  • High — Sustainability: Operating margin scored 5/100.
  • Review — Financial Efficiency: Fundraising efficiency scored 54/100.
  • Moderate — Sustainability: Total-asset coverage ratio scored 44/100.
  • Moderate — Sustainability: Officer compensation ratio scored 34/100.
  • Moderate — Sustainability: Liabilities to assets ratio scored 49/100.