Pediatric Complex Care Association
Legal name: Association of Providers for Children with Complex Medical Needs
Nonprofit profile at a glance
- EIN
- 453801467
- IRS 990 coverage
- 2012–2025
- Official website data refreshed
- Sep 2026
- Forms available
- Form 990 2025, Form 990-EZ 2022, Form 990-N 2016
- Location
- Vancouver, WA, United States
- Phone
- 732-608-5350
- Rating
- 82
- Verdict
- STRONG
- Rating confidence
- Moderate
- Sector
- Voluntary Health Associations & Medical Disciplines N.E.C.
Reported finances
- Revenue
- $286,741
- Expenses
- $319,722
- Assets
- $108,596
- Liabilities
- $50,931
Source: IRS Form 990. Selected filing: tax year 2025. Amounts in USD.
Leadership & pay
14 people listed
Executive titles in this filing
- DAWN SCHWARTZ (PRESIDENT)
People named in this filing
- DAWN SCHWARTZ (PRESIDENT)
- DAN CONNORS (VICE PRESIDE)
- JAY HAYSTON (TREASURER)
Selected names, not a complete roster or a statement of current roles. Open leadership details for the complete filed list.
Source: IRS Form 990. Selected filing: tax year 2025. Names and roles reflect this filing, not necessarily current officeholders.
Overview
Mission
We create opportunities for organizations to promote excellence in the continuum of care for children with medical complexity and their families. _We offer member support and an opportunity to join a combined effort to promote excellence in care for medically fragile children._ About PCCA The Pediatric Complex Care Association (PCCA) is a national non-profit organization that serves to create opportunities for organizations to collaborate, network, share innovations, advocate, and promote excellence in the continuum of care for children with medical complexity and their families. Our community of members includes approximately 45 organizations for medically complex children who require post-acute and long-term care. We offer support to our members and an opportunity to join our united effort to promote excellence in care for the child.
What it reported doing in 2025
Conduct an annual educational conference and quarterly educational events providing professionals specific education for member and non-members working in the field of pediatric complex care.
Operating model
- Revenue model
- Mixed. Its operating money came from several sources; no one source provided a clear majority.
- Distribution model
- Direct operator. The filing allocates 100% of reported program-service expenses outside its grant, affiliate-payment, and member-benefit lines. This expense classification does not rule out separately announced grant awards.
The verdict
STRONG - A large share of available resources goes toward mission work and the filed numbers largely add up. Some filing-based governance responses are negative or unanswered and expenses are high relative to revenue.
Rating breakdown
- Financial Efficiency: 87
- Transparency & Controls: 90
- Accountability: 70
- Sustainability: 22
- Growth: 100
Detailed rating inputs
Financial Efficiency
- Mission deployment rate: 100%; rating input score 100
- Program expense ratio: 94.1%; rating input score 94
- Fundraising efficiency: Limited
Transparency & Controls
- Consistency checks: 100%; rating input score 100; 64th percentile among comparable filings
- Pay-setting controls: Limited
- Foreign activity oversight: Limited
- Grant itemization coverage: Limited
- Major donor itemization: Limited
- Related-party transparency: Limited
Accountability
- Independent voting board: 100%; rating input score 100; 64th percentile among comparable filings
- Governance controls: 2 of 7 controls in place; rating input score 29
- Conflict-of-interest policy: Pass
- Whistleblower policy: Fail
- Document-retention policy: Fail
- CEO compensation review process: NotApplicable
- Other executive compensation review process: NotApplicable
- Form 990 shared with the board: Fail
- Board meeting minutes documented: Pass
- Audit committee oversight: Missing
- Independent financial-statement audit: Fail
Sustainability
- Operating margin: -11.5%; rating input score 17; 17th percentile among comparable filings
- Total-asset coverage ratio: 0.34; rating input score 18; 18th percentile among comparable filings
- Liabilities to assets ratio: 0.47; rating input score 9; 9th percentile among comparable filings
- Officer compensation ratio: 0%; rating input score 67; 67th percentile among comparable filings
Growth
- Program expense growth: 14.3% per year; rating input score 100; 76th percentile among comparable filings
- Revenue growth: 6.3% per year; rating input score 100; 54th percentile among comparable filings
- Asset growth: 2.9% per year; rating input score 100; 35th percentile among comparable filings
Details
- What they do: Mission, programs, and operating context captured from the official website.
- Where the money goes: 100% of revenue deployed · 94.1% of spending went to programs
- Governance: 13 of 13 board members independent · 2 of 7 filing controls reported
- Programs: 2 filed program accomplishments · $301K in reported program spending
- Leadership: top reported pay $0 · 14 people listed
- Consistency: 22 of 22 current checks pass
- Schedules: 2 filed schedules
- Filing history: 8 filing years from 2012 to 2025
- Contacts: How to reach this organization
- Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
- People: Everyone the filings name, and which of them the filings identify by more than a name.
Key Signals
Signals prioritize questions for review. They are not findings of misconduct.
- High — Accountability: Governance controls: 4 of 6 not reported.
- High — Sustainability: Operating margin scored 17/100.
- High — Sustainability: Total-asset coverage ratio scored 18/100.
- High — Sustainability: Liabilities to assets ratio scored 9/100.