Association for the Bladder Exstrophy Community

Nonprofit profile at a glance

EIN
680252009
IRS 990-EZ coverage
2019–2024
Forms available
Form 990 2020, Form 990-EZ 2024, Form 990-N 2014
Location
Vero Beach, FL, USA
Rating
86
Verdict
STRONG
Rating confidence
Moderate
Sector
Patient Services - Entertainment, Recreation

Reported finances

Revenue
$92,904
Expenses
$100,418
Assets
$34,297

Source: IRS Form 990-EZ. Selected filing: tax year 2024. Amounts in USD.

Leadership & pay

5 people listed

Executive titles in this filing

  • Pamela Artigas (President and Executive Director)
  • Janet Gibson (Vice President)

People named in this filing

  • Pamela Artigas (President and Executive Director)
  • Janet Gibson (Vice President)
  • Thomas Exler (Board Member)

Selected names, not a complete roster or a statement of current roles. Open leadership details for the complete filed list.

Source: IRS Form 990-EZ. Selected filing: tax year 2024. Names and roles reflect this filing, not necessarily current officeholders.

Overview

Mission

The a ssociation for the bladder exstrophy community exists to provide information about this rare defect and support to individuals and their families through education advocacy and support.

What it reported doing in 2024

Global Care- A-BE-C provides treatment for families in developing countries with bladder exstrophy. Annual workshops in India and Uganda offer medical care by renowned specialists along with education for patients families and local healthcare providers on managing this condition.

Operating model

Revenue model
Donor-supported. 100% of the money available for current operations came from contributions and gifts.
Distribution model
Direct operator. The filing allocates 100% of reported program-service expenses outside its grant, affiliate-payment, and member-benefit lines. This expense classification does not rule out separately announced grant awards.

The verdict

STRONG - A large share of available resources goes toward mission work and the filed numbers largely add up. Revenue has declined or grown slowly and expenses are high relative to revenue.

Rating breakdown

  • Financial Efficiency: 99
  • Transparency & Controls: 82
  • Sustainability: 29
  • Growth: 40

Detailed rating inputs

Financial Efficiency

  • Mission deployment rate: 100%; rating input score 100
  • Program expense ratio: 96.7%; rating input score 97

Transparency & Controls

  • Consistency checks: 100%; rating input score 100; 52nd percentile among comparable filings
  • Major donor itemization: Limited

Sustainability

  • Operating margin: -8.1%; rating input score 33; 33rd percentile among comparable filings
  • Total-asset coverage ratio: 0.34; rating input score 23; 23rd percentile among comparable filings
  • Liabilities to assets ratio: Limited
  • Officer compensation ratio: 0%; rating input score 56; 56th percentile among comparable filings

Growth

  • Program expense growth: 15.1% per year; rating input score 100; 78th percentile among comparable filings
  • Revenue growth: -29.7% per year; rating input score 0; 10th percentile among comparable filings
  • Asset growth: -11.8% per year; rating input score 0; 15th percentile among comparable filings

Details

  • Where the money goes: 100% of revenue deployed · 96.7% of spending went to programs
  • Governance: Filed governance answers
  • Accomplishments: 3 filed program accomplishments · $97K in reported program spending
  • Leadership: top reported pay $0 · 5 people listed
  • Consistency: 8 of 8 current checks pass
  • Schedules: 2 filed schedules
  • Filing history: 5 filing years from 2019 to 2024
  • Contacts: How to reach this organization
  • Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
  • People: Everyone the filings name, and which of them the filings identify by more than a name.

Key Signals

Signals prioritize questions for review. They are not findings of misconduct.

  • High — Growth: Revenue growth scored 0/100.
  • Moderate — Sustainability: Operating margin scored 33/100.
  • High — Sustainability: Total-asset coverage ratio scored 23/100.
  • High — Growth: Asset growth scored 0/100.
  • Review — Sustainability: Officer compensation ratio scored 56/100.