American Syringomyelia Alliance Project Inc

Nonprofit profile at a glance

EIN
752245195
IRS 990 coverage
2012–2023
Forms available
Form 990 2023
Location
Longview, TX, USA
Phone
9032367079
Rating
77
Verdict
SUPPORTED
Rating confidence
Moderate

Official website

Reported finances

Revenue
$969,539
Expenses
$417,316
Assets
$4,423,982
Liabilities
$22,785

Source: IRS Form 990. Selected filing: tax year 2023. Amounts in USD.

Leadership & pay

14 people listed

Executive titles in this filing

  • Patrice Schaublin (Executive Director)
  • Eric Berning (President)
  • John Caemmerer (Vice President)

Highest reported compensation

  • Patrice Schaublin (Executive Director): $65,726 total reported compensation

Source: IRS Form 990. Selected filing: tax year 2023. Names and roles reflect this filing, not necessarily current officeholders.

Overview

Mission

To provide support for persons affected by Syringomyelia and Chiari Malformation through support groups, information dissemination, conducting an annual medical conference, and distributing educational materials. Also to raise funds to provide grants for medical research.

What it reported doing in 2023

ASAP works toward accomplishing its mission by funding research. ASAPs goals include increasing public awareness of the existence of the disorder and its devastating effects financially supporting research efforts and raising funds to find all causes, to develop new treatments and to improve existing treatments coordinating the efforts of organizations working towards improving the lives of people with Syringomyelia and/or Chiari

Operating model

Revenue model
Mixed. Its operating money came from several sources; no one source provided a clear majority.
Distribution model
Direct operator. The filing allocates 92% of reported program-service expenses outside its grant, affiliate-payment, and member-benefit lines. This expense classification does not rule out separately announced grant awards.
  • Includes noncash contributions: Reported contributions include donated property or goods.

The verdict

SUPPORTED - The filed numbers largely add up and most voting board members are independent. A relatively small share of available resources goes toward mission work and fundraising costs are high for each dollar raised.

Rating breakdown

  • Financial Efficiency: 56
  • Transparency & Controls: 93
  • Accountability: 90
  • Sustainability: 83
  • Growth: 100

Detailed rating inputs

Financial Efficiency

  • Mission deployment rate: 51.2%; rating input score 51
  • Program expense ratio: 73.9%; rating input score 74
  • Fundraising efficiency: $7.34 raised per $1 spent on fundraising; rating input score 29; 29th percentile among comparable filings

Transparency & Controls

  • Consistency checks: 100%; rating input score 100; 63rd percentile among comparable filings
  • Pay-setting controls: Limited
  • Foreign activity oversight: Limited
  • Grant itemization coverage: 100%; rating input score 100; 76th percentile among comparable filings
  • Major donor itemization: Limited
  • Related-party transparency: Limited

Accountability

  • Independent voting board: 100%; rating input score 100; 63rd percentile among comparable filings
  • Governance controls: 6 of 8 controls in place; rating input score 75
    • Conflict-of-interest policy: Pass
    • Whistleblower policy: Pass
    • Document-retention policy: Fail
    • CEO compensation review process: Fail
    • Other executive compensation review process: NotApplicable
    • Form 990 shared with the board: Pass
    • Board meeting minutes documented: Pass
    • Audit committee oversight: Pass
    • Independent financial-statement audit: Pass

Sustainability

  • Operating margin: 57%; rating input score 94; 94th percentile among comparable filings
  • Total-asset coverage ratio: 10.6; rating input score 93; 93rd percentile among comparable filings
  • Liabilities to assets ratio: 0.01; rating input score 75; 75th percentile among comparable filings
  • Officer compensation ratio: 15.7%; rating input score 21; 21st percentile among comparable filings

Growth

  • Program expense growth: 3.5% per year; rating input score 100; 37th percentile among comparable filings
  • Revenue growth: 10.1% per year; rating input score 100; 67th percentile among comparable filings
  • Asset growth: 16.8% per year; rating input score 100; 75th percentile among comparable filings

Details

  • Where the money goes: 51.2% of revenue deployed · 73.9% of spending went to programs
  • Governance: 13 of 13 board members independent · 6 of 8 filing controls reported
  • Programs: 2 filed program accomplishments · $308K in reported program spending
  • Leadership: top reported pay $66K · 14 people listed
  • Consistency: 36 of 36 current checks pass
  • Schedules: 8 filed schedules · includes grants
  • Filing history: 12 filing years from 2012 to 2023
  • Contacts: How to reach this organization
  • Money network: 3 filed money-flow records
  • Related organizations: 2 filed related-organization links
  • Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
  • People: Everyone the filings name, and which of them the filings identify by more than a name.

Key Signals

Signals prioritize questions for review. They are not findings of misconduct.

  • Review — Financial Efficiency: Mission deployment rate scored 51/100.
  • High — Financial Efficiency: Fundraising efficiency scored 29/100.
  • Review — Accountability: Governance controls: 2 of 8 not reported.
  • High — Sustainability: Officer compensation ratio scored 21/100.