American Parkinson Disease Assoc
Nonprofit profile at a glance
- EIN
- 131962771
- IRS 990 coverage
- 2009–2025
- Forms available
- Form 990 2025
- Location
- Staten Island, NY, USA
- Phone
- 7189818001
- Rating
- 77
- Verdict
- SUPPORTED
- Rating confidence
- Moderate
- Sector
- Nerve, Muscle and Bone Diseases
Reported finances
- Revenue
- $12,091,858
- Expenses
- $8,237,303
- Assets
- $35,251,185
- Liabilities
- $3,703,967
Source: IRS Form 990. Selected filing: tax year 2025. Amounts in USD.
Leadership & pay
21 people listed
Executive titles in this filing
- LESLIE A CHAMBERS (PRESIDENT/CEO)
Highest reported compensation
- LESLIE A CHAMBERS (PRESIDENT/CEO): $408,810 total reported compensation
- MICHELLE MCDONALD (CHIEF OPERATIONS OFFICER): $282,556 total reported compensation
- REBECCA GILBERT (CHIEF MISSION OFFICER): $249,936 total reported compensation
Source: IRS Form 990. Selected filing: tax year 2025. Names and roles reflect this filing, not necessarily current officeholders.
Overview
Mission
See schedule o
What it reported doing in 2025
Patient services and educational programs - apda aims to support every person and every family impacted by parkinson's. Through its nationwide system of chapters, information & referral (i&r) centers, and community partners. Apda uniquely delivers information, education, and support services to anyone with parkinson's disease and their families each day. 17 information and referral centers are grant funded along with community grants across the us to expand the reach in underserved communities. Apda conducted over 35 patient education webinars virtually and in person regarding education on topics that address the symptoms, treatments, and challenges of living with parkinson's disease. Apda offered more than 30 national specialized programs "press", parkinson's roadmap for education and support, press on, and care partner connection in 15 states.
Operating model
- Revenue model
- Donor-supported. 99% of the money available for current operations came from contributions and gifts.
- Distribution model
- Hybrid. The nonprofit split its reported program spending across 73% for direct work, and 27% for grants.
The verdict
SUPPORTED - The filed numbers largely add up and most voting board members are independent. A relatively small share of available resources goes toward mission work and fundraising costs are high for each dollar raised.
Rating breakdown
- Financial Efficiency: 58
- Transparency & Controls: 85
- Accountability: 100
- Sustainability: 70
- Growth: 100
Detailed rating inputs
Financial Efficiency
- Mission deployment rate: 52.5%; rating input score 52
- Program expense ratio: 76.3%; rating input score 76
- Fundraising efficiency: $9.4 raised per $1 spent on fundraising; rating input score 31; 31st percentile among comparable filings
Transparency & Controls
- Consistency checks: 94.4%; rating input score 94; 25th percentile among comparable filings
- Pay-setting controls: 6 of 6 controls in place; rating input score 100
- Compensation committee: Pass
- Independent consultant: Pass
- Other Form 990s reviewed: Pass
- Written employment contract: Pass
- Compensation survey or study: Pass
- Board or committee approval: Pass
- Foreign activity oversight: Limited
- Grant itemization coverage: 59%; rating input score 59; 19th percentile among comparable filings
- Major donor itemization: Yes; rating input score 100
- Related-party transparency: Limited
Accountability
- Independent voting board: 100%; rating input score 100; 64th percentile among comparable filings
- Governance controls: 9 of 9 controls in place; rating input score 100
- Conflict-of-interest policy: Pass
- Whistleblower policy: Pass
- Document-retention policy: Pass
- CEO compensation review process: Pass
- Other executive compensation review process: Pass
- Form 990 shared with the board: Pass
- Board meeting minutes documented: Pass
- Audit committee oversight: Pass
- Independent financial-statement audit: Pass
Sustainability
- Operating margin: 31.9%; rating input score 85; 85th percentile among comparable filings
- Total-asset coverage ratio: 4.28; rating input score 75; 75th percentile among comparable filings
- Liabilities to assets ratio: 0.11; rating input score 65; 65th percentile among comparable filings
- Officer compensation ratio: 27.6%; rating input score 3; 3rd percentile among comparable filings
Growth
- Program expense growth: 5.3% per year; rating input score 100; 42nd percentile among comparable filings
- Revenue growth: 5% per year; rating input score 100; 41st percentile among comparable filings
- Asset growth: 9.1% per year; rating input score 100; 62nd percentile among comparable filings
Details
- Where the money goes: 52.5% of revenue deployed · 76.3% of spending went to programs
- Governance: 10 of 10 board members independent · 9 of 9 filing controls reported
- Programs: 3 filed program accomplishments · $6.3M in reported program spending
- Leadership: top reported pay $409K · 21 people listed · 6 of 6 pay-setting controls reported
- Highest-paid contractors: 5 contractors listed · $2M reported
- Consistency: 39 of 40 current checks pass · 1 finding to review
- Schedules: 9 filed schedules · includes major donors, grants, and executive pay
- Filing history: 17 filing years from 2009 to 2025
- Contacts: How to reach this organization
- Money network: 33 filed money-flow records
- Related organizations: 22 filed related-organization links
- Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
- People: Everyone the filings name, and which of them the filings identify by more than a name.
Key Signals
Signals prioritize questions for review. They are not findings of misconduct.
- Review — Financial Efficiency: Mission deployment rate scored 52/100.
- Moderate — Financial Efficiency: Fundraising efficiency scored 31/100.
- Review — Transparency & Controls: Grant itemization coverage scored 59/100.
- High — Sustainability: Officer compensation ratio scored 3/100.
- Review — Transparency & Controls: Domestic grant itemization did not reconcile in the filed values.