ALS United Orange County
Nonprofit profile at a glance
- EIN
- 330282720
- IRS 990 coverage
- 2023–2024
- Official website data refreshed
- Sep 2026
- Forms available
- Form 990 2024
- Location
- Tustin, CA, US
- Phone
- (714)285-1088
- Rating
- 78
- Verdict
- SUPPORTED
- Rating confidence
- Moderate
- Sector
- Health Support Services
Reported finances
- Revenue
- $852,070
- Expenses
- $744,303
- Assets
- $1,124,628
- Liabilities
- $16,010
Source: IRS Form 990. Selected filing: tax year 2024. Amounts in USD.
Leadership & pay
15 people listed
Executive titles in this filing
- BILL COLLINS (PAST PRESIDENT)
- NATALIE VILLEGAS (EXECUTIVE DIRECTOR)
- TOM MOTHERWAY (VICE PRESIDENT)
- MARK HERSHEY (PRESIDENT)
Highest reported compensation
- NATALIE VILLEGAS (EXECUTIVE DIRECTOR): $147,557 total reported compensation
Source: IRS Form 990. Selected filing: tax year 2024. Names and roles reflect this filing, not necessarily current officeholders.
Overview
Mission
ALS United Orange County is committed to supporting individuals and families impacted by ALS through compassionate care, research advocacy, and meaningful community partnerships.
What it reported doing in 2024
The als association seeks to promote awareness and understanding of als and the work of the association by providing up-to-date information and education materials to the als community, als patients and families, caregivers, researchers and members in the health care fields. Our vision is to create a world without als. Our mission is to lead the fight to treat and cure als thoughout research and education. The als orange county chapter donates contributes $30,000 every year to the uci neurology als clinic to help provide staff, research opportunities. In addition, an annual als symposium is offerred to pals and families to learn the latest information in research and community resources. Monthly support group meetings are offered to bring education and experience sharing.
Operating model
- Revenue model
- Mixed. Its operating money came from several sources; no one source provided a clear majority.
- Distribution model
- Direct operator. The filing allocates 100% of reported program-service expenses outside its grant, affiliate-payment, and member-benefit lines. This expense classification does not rule out separately announced grant awards.
- Includes noncash contributions: Reported contributions include donated property or goods.
The verdict
SUPPORTED - A large share of available resources goes toward mission work and the filed numbers largely add up. Some filing-based governance responses are negative or unanswered and revenue has declined or grown slowly.
Rating breakdown
- Financial Efficiency: 74
- Transparency & Controls: 92
- Accountability: 74
- Sustainability: 57
- Growth: 60
Detailed rating inputs
Financial Efficiency
- Mission deployment rate: 71.2%; rating input score 71
- Program expense ratio: 80%; rating input score 80
- Fundraising efficiency: $32.06 raised per $1 spent on fundraising; rating input score 70; 70th percentile among comparable filings
Transparency & Controls
- Consistency checks: 100%; rating input score 100; 63rd percentile among comparable filings
- Pay-setting controls: Limited
- Foreign activity oversight: Limited
- Grant itemization coverage: Limited
- Major donor itemization: Yes; rating input score 100
- Related-party transparency: Limited
Accountability
- Independent voting board: 100%; rating input score 100; 63rd percentile among comparable filings
- Governance controls: 3 of 8 controls in place; rating input score 38
- Conflict-of-interest policy: Pass
- Whistleblower policy: Pass
- Document-retention policy: Fail
- CEO compensation review process: Fail
- Other executive compensation review process: NotApplicable
- Form 990 shared with the board: Fail
- Board meeting minutes documented: Pass
- Audit committee oversight: Missing
- Independent financial-statement audit: Fail
Sustainability
- Operating margin: 12.6%; rating input score 66; 66th percentile among comparable filings
- Total-asset coverage ratio: 1.51; rating input score 56; 56th percentile among comparable filings
- Liabilities to assets ratio: 0.01; rating input score 66; 66th percentile among comparable filings
- Officer compensation ratio: 19.8%; rating input score 15; 15th percentile among comparable filings
Growth
- Program expense growth: 8.5% per year; rating input score 100; 58th percentile among comparable filings
- Revenue growth: -3.9% per year; rating input score 0; 6th percentile among comparable filings
- Asset growth: 10% per year; rating input score 100; 59th percentile among comparable filings
Details
- What they do: 4 programs and campaigns described on the official site · 1 operating location identified
- Where the money goes: 71.2% of revenue deployed · 80% of spending went to programs
- Governance: 14 of 14 board members independent · 3 of 8 filing controls reported
- Programs: 3 filed program accomplishments · $595K in reported program spending
- Leadership: top reported pay $148K · 15 people listed
- Consistency: 19 of 19 current checks pass
- Schedules: 5 filed schedules · includes major donors
- Filing history: 2 filing years from 2023 to 2024
- Contacts: How to reach this organization
- Money network: 3 filed money-flow records
- Related organizations: Filed and resolved organization relationships.
- Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
- People: Everyone the filings name, and which of them the filings identify by more than a name.
Key Signals
Signals prioritize questions for review. They are not findings of misconduct.
- Moderate — Accountability: Governance controls: 4 of 7 not reported.
- High — Growth: Revenue growth scored 0/100.
- Review — Sustainability: Total-asset coverage ratio scored 56/100.
- High — Sustainability: Officer compensation ratio scored 15/100.