Als United of Georgia Inc

What it reported doing in 2025

Care services -the relationship between the care services team and the persons diagnosed with als (pals) and their family members commence upon diagnosis. The goal of the program is to ensure that individuals and their families experience optimal emotional functioning given the devastation of the disease. Our attempt to successfully impact families can be outlined within our existing programs: education, kostiuk care grant, support groups, ricky p. Sweat equipment loaner & assistive technology program, sally panfel in-home care and respite program, paul b. Williams als transportation program, and client consultations. Individuals who are newly diagnosed often need time to absorb the impact of their diagnosis, therefore basic information and education is provided immediately by als united of Georgia. This information includes, but is not limited to, the diagnosis itself, disease trajectory, resources and support, and ongoing research. During fye 2026, als united of Georgia saw 190 individuals & their families diagnosed with als register with the organization. Annually the organization provides an educational symposium which highlights research, support and educational opportunities for people living with als, community providers, and supporters. Although to date there is no cure for this disease, als united of Georgia is passionate about the mission of one day finding a treatment and ultimately a cure.the financial hardship that families incur as the result of an als diagnosis can impact their quality of life tremendously. For those that may need additional help, the kostiuk care grant program strives to provide some relief. This program is a reimbursement program that assists families with expenses that are not traditionally covered by private insurances, medicaid or medicare. It will cover expenses related to home care assistance (respite), travel costs for attendance to and from als clinics, home modifications, auto modifications and communication devices. Recipients may apply for and receive up two grants per year in the amount of $1,000 per grant request. Grants are awarded twice a year on a first come first serve basis and will be based on availability of funds. During fye 2026, $203,000 was awarded in kostiuk care grant funds, serving 203 individuals. The support group program provides persons with als and their families the opportunity to connect with others in the community who share similar challenges and needs. The groups are designed to provide emotional and psychosocial support as well as resources and education. Knowing what questions to ask and where to look for resources is vital. The organization currently conducts monthly support groups that meet the needs of 159 counties in the state of Georgia. These groups are facilitated by professionals and community partners to ensure maximum results. Because the needs of caregivers and children can be very sensitive, the organizationhas developed specific groups to address those needs. During fye 2026, 100 support group meetings were held over 9 locations throughout the state, impacting over 1,220 individuals who participated & attended.as the disease progresses, individuals will experience a decline in functioning as it relates to mobility and speech. These challenges can impact independence and quality of life. In some situations, specific medical and communication devices are required but not covered by private insurance, medicaid or medicare. The equipment loaner program provides such equipment to people with als at no cost. This program works diligently to obtain, through grant funding or private donations, such items that can ensure increased independence. Als united of Georgia, in partnership with community providers, collaborate on the maintenance and storage of all equipment.90% of the current als community in Georgia continues to remain in their home throughout the disease process. This becomes increasingly difficult because they will require total adl care fr

Financial Efficiency

• Mission deployment rate: 58.3%; rating input score 58
• Program expense ratio: 75.8%; rating input score 76
• Fundraising efficiency: $8.82 raised per $1 spent on fundraising; rating input score 31; 31st percentile among comparable filings

Transparency & Controls

• Consistency checks: 100%; rating input score 100; 63rd percentile among comparable filings
• Pay-setting controls: Limited
• Foreign activity oversight: Limited
• Grant itemization coverage: 100%; rating input score 100; 75th percentile among comparable filings
• Major donor itemization: Yes; rating input score 100
• Related-party transparency: Limited

Accountability

• Independent voting board: 100%; rating input score 100; 63rd percentile among comparable filings
• Governance controls: 8 of 8 controls in place; rating input score 100
  • Conflict-of-interest policy: Pass
  • Whistleblower policy: Pass
  • Document-retention policy: Pass
  • CEO compensation review process: Pass
  • Other executive compensation review process: NotApplicable
  • Form 990 shared with the board: Pass
  • Board meeting minutes documented: Pass
  • Audit committee oversight: Pass
  • Independent financial-statement audit: Pass

Sustainability

• Operating margin: 25.1%; rating input score 78; 78th percentile among comparable filings
• Total-asset coverage ratio: 1.85; rating input score 55; 55th percentile among comparable filings
• Liabilities to assets ratio: 0.02; rating input score 70; 70th percentile among comparable filings
• Officer compensation ratio: 8.5%; rating input score 38; 38th percentile among comparable filings

Growth

• Program expense growth: 4.3% per year; rating input score 100; 32nd percentile among comparable filings
• Revenue growth: 5.2% per year; rating input score 100; 39th percentile among comparable filings
• Asset growth: 11.4% per year; rating input score 100; 63rd percentile among comparable filings