Als United Greater New York Inc

Nonprofit profile at a glance

EIN
133616680
IRS 990 coverage
2018–2024
Forms available
Form 990 2024
Location
New York, NY, USA
Phone
2126191400
Rating
83
Verdict
STRONG
Rating confidence
Moderate

Official website

Reported finances

Revenue
$4,470,387
Expenses
$5,067,113
Assets
$6,641,980
Liabilities
$1,553,852

Source: IRS Form 990. Selected filing: tax year 2024. Amounts in USD.

Leadership & pay

24 people listed

Executive titles in this filing

  • KRISTEN COCOMAN (PRESIDENT & CEO)
  • REGINA ACKLEY (VICE PRESIDENT & COO)

Highest reported compensation

  • KRISTEN COCOMAN (PRESIDENT & CEO): $229,698 total reported compensation
  • REGINA ACKLEY (VICE PRESIDENT & COO): $177,392 total reported compensation
  • JORDANA NEWLER (DIR. OF FUNDRAISING): $137,335 total reported compensation

Source: IRS Form 990. Selected filing: tax year 2024. Names and roles reflect this filing, not necessarily current officeholders.

Overview

Mission

To support & empower the als community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, & providing comprehensive care to individuals & families affected by als.

What it reported doing in 2024

Public awareness and education: als united greater New York works to promote awareness to affected families to help them understand all facets of the complex and devastating disease that is als, as well as the work of the organization among the general public, healthcare professionals, and the scientific community. Through external relations, our website and social media channels, the organization continually raises awareness about als and the search for a cure. On average, 63,000 viewers visit our website annually to access this vital source of information for those battling the disease and looking for information about services and the latest news about the disease. Our social media platforms, including facebook, instagram, youtube, x and linkedin reach 18,500 followers.

Operating model

Revenue model
Donor-supported. 84% of the money available for current operations came from contributions and gifts.
Distribution model
Direct operator. The filing allocates 94% of reported program-service expenses outside its grant, affiliate-payment, and member-benefit lines. This expense classification does not rule out separately announced grant awards.
  • Includes noncash contributions: Reported contributions include donated property or goods.

The verdict

STRONG - A large share of available resources goes toward mission work and the filed numbers largely add up. Fundraising costs are high for each dollar raised and expenses are high relative to revenue.

Rating breakdown

  • Financial Efficiency: 86
  • Transparency & Controls: 75
  • Accountability: 100
  • Sustainability: 25
  • Growth: 100

Detailed rating inputs

Financial Efficiency

  • Mission deployment rate: 95.8%; rating input score 96
  • Program expense ratio: 84.4%; rating input score 84
  • Fundraising efficiency: $11.81 raised per $1 spent on fundraising; rating input score 43; 43rd percentile among comparable filings

Transparency & Controls

  • Consistency checks: 100%; rating input score 100; 63rd percentile among comparable filings
  • Pay-setting controls: 1 of 6 controls in place; rating input score 17
    • Compensation committee: Missing
    • Independent consultant: Missing
    • Other Form 990s reviewed: Missing
    • Written employment contract: Missing
    • Compensation survey or study: Missing
    • Board or committee approval: Pass
  • Foreign activity oversight: Limited
  • Grant itemization coverage: 100%; rating input score 100; 72nd percentile among comparable filings
  • Major donor itemization: Yes; rating input score 100
  • Related-party transparency: Limited

Accountability

  • Independent voting board: 100%; rating input score 100; 63rd percentile among comparable filings
  • Governance controls: 9 of 9 controls in place; rating input score 100
    • Conflict-of-interest policy: Pass
    • Whistleblower policy: Pass
    • Document-retention policy: Pass
    • CEO compensation review process: Pass
    • Other executive compensation review process: Pass
    • Form 990 shared with the board: Pass
    • Board meeting minutes documented: Pass
    • Audit committee oversight: Pass
    • Independent financial-statement audit: Pass

Sustainability

  • Operating margin: -13.3%; rating input score 10; 10th percentile among comparable filings
  • Total-asset coverage ratio: 1.31; rating input score 47; 47th percentile among comparable filings
  • Liabilities to assets ratio: 0.23; rating input score 40; 40th percentile among comparable filings
  • Officer compensation ratio: 17.9%; rating input score 14; 14th percentile among comparable filings

Growth

  • Program expense growth: 0% per year; rating input score 100; 14th percentile among comparable filings
  • Revenue growth: 2.5% per year; rating input score 100; 23rd percentile among comparable filings
  • Asset growth: 0.7% per year; rating input score 100; 14th percentile among comparable filings

Details

  • Where the money goes: 95.8% of revenue deployed · 84.4% of spending went to programs
  • Governance: 18 of 18 board members independent · 9 of 9 filing controls reported
  • Programs: 4 filed program accomplishments · $4.3M in reported program spending
  • Leadership: top reported pay $230K · 24 people listed · 1 of 6 pay-setting controls reported
  • Consistency: 36 of 36 current checks pass
  • Schedules: 10 filed schedules · includes major donors, grants, and executive pay
  • Filing history: 6 filing years from 2018 to 2024
  • Contacts: How to reach this organization
  • Money network: 6 filed money-flow records
  • Related organizations: 1 filed related-organization link
  • Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
  • People: Everyone the filings name, and which of them the filings identify by more than a name.

Key Signals

Signals prioritize questions for review. They are not findings of misconduct.

  • Moderate — Financial Efficiency: Fundraising efficiency scored 43/100.
  • High — Sustainability: Operating margin scored 10/100.
  • Moderate — Sustainability: Total-asset coverage ratio scored 47/100.
  • High — Sustainability: Officer compensation ratio scored 14/100.
  • Moderate — Sustainability: Liabilities to assets ratio scored 40/100.