ALS Northwest

What it reported doing in 2025

Outreach and advocacyals northwest provides ongoing financial support to support federal and state public policy initiatives to improve the lives of families living with als, outreach efforts to raise public awareness about als, as well as cutting edge global research working toward an effective treatment and ultimately a cure for als. The organization contributed to a national effort that funded significant projects to understand the cause of als, the disease mechanism, genetics, biomarkers for als, environmental factors, and translational research to move therapy ideas from the lab bench to therapy. Public policy accomplishments during the year ended january 31, 2026, include advocacy of people with als to connect with legislators in Washington dc to advocate for continued funding for the national als registry, the als research program at the department of defense, the act for als act and federal support for als research. Awareness events sponsored by the organization include walk als, ski als, ride als, may als awareness month, als research symposium, creation of public service announcements, mission connected social media, and creation of videos that illustrate what als is and how the organizations services can help.november national family caregiver month activities serve as opportunities to bring hope and community to people with als and their families. By coming together at awareness events, people with als and their families as well as those who have lost a loved one to als find strength and support with one another. The large number of people who participate in these efforts raise the profile of als across the region and engage community awareness of the services and resources available from als northwest. Research is a critical part of the organizations mission.as part of the effort to increase the knowledge of als and those affected, the organization promotes als events that promote the national als registry. This effort is vital to understand the full incidence and prevalence of als across Oregon and southwest Washington so that we can identify and strategically plan to serve as many families living with als in the northwest.

Financial Efficiency

• Mission deployment rate: 85.4%; rating input score 85
• Program expense ratio: 78.4%; rating input score 78
• Fundraising efficiency: $8.35 raised per $1 spent on fundraising; rating input score 29; 29th percentile among comparable filings

Transparency & Controls

• Consistency checks: 93.8%; rating input score 94; 21st percentile among comparable filings
• Pay-setting controls: 1 of 6 controls in place; rating input score 17
  • Compensation committee: Missing
  • Independent consultant: Missing
  • Other Form 990s reviewed: Missing
  • Written employment contract: Missing
  • Compensation survey or study: Missing
  • Board or committee approval: Pass
• Foreign activity oversight: Limited
• Grant itemization coverage: 98.1%; rating input score 98; 40th percentile among comparable filings
• Major donor itemization: Yes; rating input score 100
• Related-party transparency: Limited

Accountability

• Independent voting board: 100%; rating input score 100; 63rd percentile among comparable filings
• Governance controls: 8 of 8 controls in place; rating input score 100
  • Conflict-of-interest policy: Pass
  • Whistleblower policy: Pass
  • Document-retention policy: Pass
  • CEO compensation review process: NotApplicable
  • Other executive compensation review process: Pass
  • Form 990 shared with the board: Pass
  • Board meeting minutes documented: Pass
  • Audit committee oversight: Pass
  • Independent financial-statement audit: Pass

Sustainability

• Operating margin: -8.3%; rating input score 11; 11th percentile among comparable filings
• Total-asset coverage ratio: 1.46; rating input score 47; 47th percentile among comparable filings
• Liabilities to assets ratio: 0.09; rating input score 50; 50th percentile among comparable filings
• Officer compensation ratio: 9.4%; rating input score 35; 35th percentile among comparable filings

Growth

• Program expense growth: 6.2% per year; rating input score 100; 42nd percentile among comparable filings
• Revenue growth: 5.9% per year; rating input score 100; 44th percentile among comparable filings
• Asset growth: 10.3% per year; rating input score 100; 59th percentile among comparable filings