Alport Syndrome Hope for a Cure Foundation

Nonprofit profile at a glance

EIN
270433806
IRS 990-EZ coverage
2012–2012
Forms available
Form 990-EZ 2012
Location
Lewisville, TX, USA
Phone
4699516533
Rating
65
Verdict
SUPPORTED
Rating confidence
Limited
Sector
Alliance/Advocacy Organizations

Official website

Reported finances

Revenue
$2,870
Expenses
$30,285
Assets
$37,724

Source: IRS Form 990-EZ. Selected filing: tax year 2012. Amounts in USD.

Leadership & pay

4 people listed

Source: IRS Form 990-EZ. Selected filing: tax year 2012. Names and roles reflect this filing, not necessarily current officeholders.

Overview

Mission

Our mission is to raise awareness of Alport Syndrome and other chronic kidney disease, support patients and families affected by Alport Syndrome, help fund diagnostic testing and gene therapy in Hope for a Cure.

What it reported doing in 2012

Donation of $15,000 to Children's Medical Center, Dallas TX to purchase nephrology equipment for the dialysis unit at Children's Medical Center. Annually approximately 100 children are serviced through the dialysis unit and receive a direct benefit from the equipment.

Operating model

Revenue model
Donor-supported. 100% of the money available for current operations came from contributions and gifts.
Distribution model
Transfer-based 990-EZ. The 990-EZ reports grants or member benefits, but it does not separate enough spending to show the nonprofit’s full delivery mix.

The verdict

SUPPORTED - The filed numbers largely add up and a large share of available resources goes toward mission work. Expenses are high relative to revenue and total assets are small relative to annual expenses; liquid coverage is unknown.

Rating breakdown

  • Financial Efficiency: 62
  • Transparency & Controls: 82
  • Sustainability: 17
  • Growth: NotEnoughData

Detailed rating inputs

Financial Efficiency

  • Mission deployment rate: 100%; rating input score 100
  • Program expense ratio: Limited

Transparency & Controls

  • Consistency checks: 100%; rating input score 100; 51st percentile among comparable filings
  • Major donor itemization: Limited

Sustainability

  • Operating margin: -955.2%; rating input score 2; 2nd percentile among comparable filings
  • Total-asset coverage ratio: 1.25; rating input score 54; 54th percentile among comparable filings
  • Liabilities to assets ratio: Limited
  • Officer compensation ratio: Limited

Growth

  • Program expense growth: Limited
  • Revenue growth: Limited
  • Asset growth: Limited

Details

  • Where the money goes: 100% of revenue deployed
  • Governance: Filed governance answers
  • Accomplishments: 1 filed program accomplishment
  • Leadership: top reported pay $0 · 4 people listed
  • Consistency: 5 of 5 current checks pass
  • Schedules: 2 filed schedules
  • Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
  • People: Everyone the filings name, and which of them the filings identify by more than a name.

Key Signals

Signals prioritize questions for review. They are not findings of misconduct.

Grant-readiness screening is separate from the live rating, not a measure of program quality. Review the source records before making a grant decision.

  • High — Sustainability: Operating margin scored 2/100.
  • Review — Sustainability: Total-asset coverage ratio scored 54/100.
  • High — Grant Readiness: Automatic revocation: this organization had its federal tax-exempt status automatically revoked.